Shedding Psoriatics
TV ClubHouse: Archive: Shedding Psoriatics
Cinder | Sunday, October 12, 2003 - 09:33 am     I thought I was in the twilight zone when I saw the SAME picture. When I first joined over there I used my email address- when I started posted I tried to switch to Cinder- but it was already taken- so CindAr was a compromise. It was a good one though. When I chose Cinder for TVCH- 4 years ago- I only had a cat. Now I have a dog also- and DAR is the 1st half of her name. |
Sia | Sunday, October 12, 2003 - 10:05 pm     Half, what are you taking that has worked so well for you? My cousin's young son is still battling psoriasis and it's so difficult for him to concentrate in school. It really looks like you're clearing up. Is this a new drug on the market? Thanks for any info. |
Sia | Sunday, October 12, 2003 - 10:24 pm     Oh, I went back a page and looked, Half, at your previous post. You are taking Enbrel? I will try and look that up on the 'net for my cousin. |
Halfunit | Monday, October 13, 2003 - 08:31 am     Sia - yes, I've been taking Enbrel since 7/29. Two shots per week, one on Tuesday, and one on Friday. The injections are given at home. It has worked wonders for me. I'm not using any other drugs other than Enbrel, just to see what it will do on it's own. One word of caution though - if your cousin doesn't have good prescription insurance, she may be out of luck. A month's supply (4 shots) is approximately $1200. I am lucky - I only have to pay $18. Keep us posted! |
Kstme | Monday, October 13, 2003 - 09:10 am     Half...WOW! Congrats on your success with the shots!!! Whoohoo! |
Tabbyking | Monday, October 13, 2003 - 10:28 am     wow, what wonderful results! continued success to you! i don't have psoriasis, but i have ichthyosis, which is very dry skin. i know how self-conscious skin disorders can make someone. being physically uncomfortable on top of that must be awful. i went to a dermatologist when i was about 21, thinking he could really finally help me with my skin disorder. his suggestion, made with laughter?: he whipped out a jar of tartar sauce from his top drawer. i literally almost slapped his smug face. (ichthy means fish, and because you have dry or scaley skin, the disorder is called that.) i was so embarrassed and humiliated, i actually wanted to do him physical harm...so he could hurt, too! |
Egbok | Monday, October 13, 2003 - 10:39 am     Super results Half!! I'm so happy for you!! |
Halfunit | Monday, October 13, 2003 - 10:50 am     Thanks you guys! I am still in the clearing phase, and while I'm super duper happy, I'll be even happier if I STAY clear! Tabby - that is horrible. That dermie is an ass. Too bad you didn't lay him out flat! Have you thought about going to another doctor? |
Babyruth | Tuesday, October 14, 2003 - 08:39 am     Yay, Halfie! Great looking results! I'm so glad the Enbrel is working for you. Hey, have you gotten that flu shot yet? You need it even more when you're on Enbrel. Tawk to me if you have questions about that. |
Moondance | Tuesday, October 14, 2003 - 05:26 pm     Hmmm me thinks Dopey had something to do with it! Looks GREAT MSHalfCrazyUnit! |
Halfunit | Tuesday, October 14, 2003 - 06:15 pm     My long distance good luck charm!  |
Ginger1218 | Wednesday, November 19, 2003 - 07:13 am     Half - I have been thinking about you and wondering how you are doing. I have talked my sister into looking into Enbrel. She has joined the Psoriasis Organization. I found her a doctor that will prescribe Enbrel, (since her Doctor was not willing to - I think he just wanted to keep her taking laser treatments that did not work) So this new doctor is now trying to get it precertified by the insurance company. I feel so bad for her, she is suffering. So, I pray they can certify it for her and she can start taking it. I will probably give her the shots, because she can't do stuff that like LOL -she is wussy. I had shown her your pictures of the improvement, so I was curious as to how you were doing. |
Halfunit | Wednesday, November 19, 2003 - 04:20 pm     Ginger - what a wonderful sister you are!! I am doing unbelievably well, thank you for asking! All of my areas of clearing are still clear, and I think my legs are even better than the last picture above. I will have to take another soon, and I will post it. Maybe Sunday, so that I can use natural sunlight - I have no overhead lights in this stinkin' house, and the lighting for pictures is terrible. The secret of insurance coverage is being diagnosed with psoriatic arthritis. I don't believe Enbrel has been approved by the FDA for psoriasis alone, but it is in the works. As for the shots, they are hardly noticable. If your sister starts taking them, she will have the latest and greatest needle which is a big improvement from the older version. The trick is to grab a hunk 'o flesh and stick it, then relaxing the grip on the skin while injecting. You don't have to jab hard at all, the needle goes in like a hot knife through butter . My fingers are crossed that she gets the insurance company's approval !! Keep us posted! |
Ginger1218 | Sunday, November 30, 2003 - 11:49 am     Still waiting to find out about the insurance. And she is an even better sister. She is my best friend and I would do anything for her. So that is why when she suffers, it hurts me. |
|