Shedding Psoriatics
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TV ClubHouse: Archive: Shedding Psoriatics
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Archive through July 28, 2003 25   07/28 10:16pm
Archive through October 12, 2003 25   10/12 09:17am

Cinder

Sunday, October 12, 2003 - 09:33 am EditMoveDeleteIP
I thought I was in the twilight zone when I saw the SAME picture.
When I first joined over there I used my email address- when I started posted I tried to switch to Cinder- but it was already taken- so CindAr was a compromise. It was a good one though. When I chose Cinder for TVCH- 4 years ago- I only had a cat. Now I have a dog also- and DAR is the 1st half of her name.

Sia

Sunday, October 12, 2003 - 10:05 pm EditMoveDeleteIP
Half, what are you taking that has worked so well for you? My cousin's young son is still battling psoriasis and it's so difficult for him to concentrate in school. It really looks like you're clearing up. Is this a new drug on the market? Thanks for any info.

Sia

Sunday, October 12, 2003 - 10:24 pm EditMoveDeleteIP
Oh, I went back a page and looked, Half, at your previous post. You are taking Enbrel? I will try and look that up on the 'net for my cousin. :)

Halfunit

Monday, October 13, 2003 - 08:31 am EditMoveDeleteIP
Sia - yes, I've been taking Enbrel since 7/29. Two shots per week, one on Tuesday, and one on Friday. The injections are given at home.

It has worked wonders for me. I'm not using any other drugs other than Enbrel, just to see what it will do on it's own.

One word of caution though - if your cousin doesn't have good prescription insurance, she may be out of luck.

A month's supply (4 shots) is approximately $1200. I am lucky - I only have to pay $18.

Keep us posted!

Kstme

Monday, October 13, 2003 - 09:10 am EditMoveDeleteIP
Half...WOW! Congrats on your success with the shots!!! Whoohoo!

Tabbyking

Monday, October 13, 2003 - 10:28 am EditMoveDeleteIP
wow, what wonderful results! continued success to you! i don't have psoriasis, but i have ichthyosis, which is very dry skin. i know how self-conscious skin disorders can make someone. being physically uncomfortable on top of that must be awful.
i went to a dermatologist when i was about 21, thinking he could really finally help me with my skin disorder. his suggestion, made with laughter?:
he whipped out a jar of tartar sauce from his top drawer. i literally almost slapped his smug face.
(ichthy means fish, and because you have dry or scaley skin, the disorder is called that.) i was so embarrassed and humiliated, i actually wanted to do him physical harm...so he could hurt, too!

Egbok

Monday, October 13, 2003 - 10:39 am EditMoveDeleteIP
Super results Half!! I'm so happy for you!!

Halfunit

Monday, October 13, 2003 - 10:50 am EditMoveDeleteIP
Thanks you guys! I am still in the clearing phase, and while I'm super duper happy, I'll be even happier if I STAY clear!

Tabby - that is horrible. That dermie is an ass. Too bad you didn't lay him out flat!

Have you thought about going to another doctor?

Babyruth

Tuesday, October 14, 2003 - 08:39 am EditMoveDeleteIP
Yay, Halfie! Great looking results! I'm so glad the Enbrel is working for you. :)

Hey, have you gotten that flu shot yet? You need it even more when you're on Enbrel. Tawk to me if you have questions about that.

Moondance

Tuesday, October 14, 2003 - 05:26 pm EditMoveDeleteIP
Hmmm me thinks Dopey had something to do with it!

Looks GREAT MSHalfCrazyUnit!

Halfunit

Tuesday, October 14, 2003 - 06:15 pm EditMoveDeleteIP
My long distance good luck charm! LuckyDopey

Ginger1218

Wednesday, November 19, 2003 - 07:13 am EditMoveDeleteIP
Half - I have been thinking about you and wondering how you are doing. I have talked my sister into looking into Enbrel. She has joined the Psoriasis Organization. I found her a doctor that will prescribe Enbrel, (since her Doctor was not willing to - I think he just wanted to keep her taking laser treatments that did not work) So this new doctor is now trying to get it precertified by the insurance company.
I feel so bad for her, she is suffering. So, I pray they can certify it for her and she can start taking it. I will probably give her the shots, because she can't do stuff that like LOL -she is wussy.

I had shown her your pictures of the improvement, so I was curious as to how you were doing.

Halfunit

Wednesday, November 19, 2003 - 04:20 pm EditMoveDeleteIP
Ginger - what a wonderful sister you are!!

I am doing unbelievably well, thank you for asking! All of my areas of clearing are still clear, and I think my legs are even better than the last picture above. I will have to take another soon, and I will post it. Maybe Sunday, so that I can use natural sunlight - I have no overhead lights in this stinkin' house, and the lighting for pictures is terrible.

The secret of insurance coverage is being diagnosed with psoriatic arthritis. I don't believe Enbrel has been approved by the FDA for psoriasis alone, but it is in the works.

As for the shots, they are hardly noticable. If your sister starts taking them, she will have the latest and greatest needle which is a big improvement from the older version. The trick is to grab a hunk 'o flesh and stick it, then relaxing the grip on the skin while injecting. You don't have to jab hard at all, the needle goes in like a hot knife through butter :).

My fingers are crossed that she gets the insurance company's approval !! Keep us posted!

Ginger1218

Sunday, November 30, 2003 - 11:49 am EditMoveDeleteIP
Still waiting to find out about the insurance. And she is an even better sister. She is my best friend and I would do anything for her. :) So that is why when she suffers, it hurts me.