Archive through November 14, 2002
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TV ClubHouse: Archives: The Shedding Psoriatics: Archive through November 14, 2002

Sia

Sunday, September 29, 2002 - 07:36 pm EditMoveDeleteIP
Does anyone here have experience with Prednisone? My cousin's son (who is only 8 or 9) is in the hospital AGAIN, this time with pain in his chest--unknown origin. So far they have been unable to identify the cause. This is the little boy whose eczema has been so severe that he has required hospitalization for intravenous administration of Prednisone steroid medication. I'm really worried about him. The prednisone was given to him in the hospital about two weeks ago.

Cinder

Sunday, September 29, 2002 - 07:56 pm EditMoveDeleteIP
My cousin has taken it. I will email her and ask her. (i tried to get her to come to the board) She has also been hospitalized at least twice.

Vanillarose

Sunday, September 29, 2002 - 08:21 pm EditMoveDeleteIP
Sia, I'm so sorry to hear about the trouble your nephew is having. I wonder if he has asthma or allergies? My son does not have ecxema, but he does have asthma and severe allergies, both of which can be related to ecxema. (Believe me, when my son was young I learned a lot about these conditions. We went through it all, just short of him actually being admitted to the hospital, which came very close a couple of times at least!)

Allergies and or asthma could also cause the chest pain. I hope the doctor has checked out that possibility thoroughly!

Also, if he is on the Prednisone for short term he should be fine. My son was on it many, many times.

Schoolmarm

Sunday, September 29, 2002 - 08:37 pm EditMoveDeleteIP
Be careful with Prednisone!!! I go into adrenal gland failure and repiratory distress (and a trip to the ER) about a day or two after I stop taking it. The doctors seem baffled by this, but there are other people with this side effect. His chest pain may be because of lung constriction.

You feel like superman or superwoman when you take this wonder drug. However, for me, it is NOT a drug I will ever take again.

First reaction: taken after a brown recluse spider bite...went off the meds...the next day, I had a horrible time catching my breath and they thought I was having a heart attack. I also got hives.

Second reaction: taken after an extreme system infestation of poison ivy had about a week of meds...went of the meds...the next day I had a horrible headache, lots of vomiting, frothy urine (I know, TOO much info) and I was quite the limp dishrag. My friends literally dragged me to the ER. Adrenal gland failure.

I will NEVER take prednisone again!

Weinermr

Sunday, September 29, 2002 - 08:55 pm EditMoveDeleteIP
Sia,

Prednisone can be very very bad medicine. I know it has helped many people, but it can have some very severe side effects, including hallucinations, tremors, and seizures, among others. Be very careful.

P.S. And the effects can be permanent.

I'm not saying these things will happen with certainty, but I am saying in some circumstances Prednisone causes more damage than it ever helps in the first place.

Neko

Saturday, October 05, 2002 - 09:24 am EditMoveDeleteIP
I went and got my biopsy done today.

*Looks down at the 4 mm of skin she's missing and the stich...*

I didn't realize I'd need a stitch to close the hole!!

Anyways, in 3 weeks, I'll find out what really is wrong with my skin....wether it's P or something else.

Schoolmarm

Saturday, October 05, 2002 - 09:41 am EditMoveDeleteIP
Neko...I had the same little stitch when I had a mole removed and biopsied. He took a "little pizza cutter" and rolled it around just the top layer of skin and popped the mole out. I had NO clue that I would need a stich.

Your stitch with itch for a while. Please try to relax while you wait for the results of your biopsy. I was so nervous I thought that I would crawl right out of my skin, but I couldn't verbalize it to anyone. I dreaded going back to the doctor, but had a great relief when I found out that I had GREAT results.

Just knowing what the heck it is, will be worth it for you!

BIG HUG!

Hey, do any of you have rosaecia? (or however you spell it) I've got the red face, but don't want to be on antibiotics all the time. Any good home cures? I'm slathering on Noxema and leaving it on....seems to work for the flaking skin and lessens the red and the acne....funny, I never had acne until I moved here (I swear it's something in the water...or maybe just hormonal changes as I get older).

Sia

Saturday, October 05, 2002 - 11:26 am EditMoveDeleteIP
Guys, I'm sorry. I've been away for this thread for days and have not posted about little cousin M. He is doing better and stayed overnight one night. The problems with his chest were due to severe chest congestion. Doctor said it was "almost pneumonia," but gave him antibiotics to clear it up, and he's feeling better. He has returned to school and everything.

Thanks so much for your posts! I'm so busy, so again I apologize for neglecting to come here and catch up with your messages! blkcatyarn

Sia

Saturday, October 05, 2002 - 11:31 am EditMoveDeleteIP
VanillaRose, my young cousin does have severe allergies. He's particularly allergic to cats, and they can't have any housepets. I'm sure he's been taking injections for the allergies for years now, though.

Allyg8r

Monday, October 07, 2002 - 12:12 pm EditMoveDeleteIP
Sia and Vanillarose (and any others looking for info on eczema):

My niece in Toronto has terrible eczema - it often limits her activities due to the itching and burning, and in the warmer months she is often embarassed to wear shorts and t-shirts. Special arrangements had to be made with her elementary school to allow her to take gym in sweatpants and long sleeve shirts.

She started using "Protopic" about a year and a half ago - from what i understand it is the first non-steroidal cream that is truly effective on the rash. ALthough at the time it had not been approved in Canada, we were in Cleveland for a family function, and arranged for her to see a dermatologist there, and she started using it. Since then, it has been released in Canada. Although it's not a "miracle" drug per se, it has had a better impact than any of the other treatments. In fact, Global TV (a Canadian Network) interviewed my sister with my niece last thursday on their success with the cream, during their "Healthwatch" segment.

You all may already know about this, and you all may have far more extensive knowledge than I, but I thought I'd add the info in case someone may have not heard about it...

My hearts go out to all of you that suffer....

Aunt_Bob

Tuesday, October 08, 2002 - 03:27 am EditMoveDeleteIP
Thank you Allyg8r...

Sia

Saturday, October 12, 2002 - 11:04 am EditMoveDeleteIP
Thanks, Ally. Hey, nobody's been to this thread for DAYS! What? Did everyone get too busy? Isn't that how it always is? I know everyone is frenetic with activity; it's crazy around here all the time.

I saw my young cousin the other day. He is doing MUCH better! kittenrun

Vanillarose

Sunday, October 13, 2002 - 09:40 am EditMoveDeleteIP
Sia, I'm so glad that M is doing better!

Sia

Sunday, October 13, 2002 - 10:29 pm EditMoveDeleteIP
Thanks for your well-wishes, Vanilla! That boy has so many challenges; this is just too big a burden for a child so young. I can't understand why he is saddled with such a severe skin condition.

Sia

Monday, October 21, 2002 - 11:30 pm EditMoveDeleteIP
Nobody's been here for a week! I hope everyone is doing well. Just stopping by to wish everyone a great day tomorrow. bannerkitties2

Halfunit

Tuesday, October 22, 2002 - 03:44 pm EditMoveDeleteIP
LOL Sia... I'm still around and flaking, although this time of year seems to be my busiest with birthdays, holidays, and volleyball 2 nights a week.

I'm glad to see you are keeping the thread from sinking!!!

Cinder

Tuesday, October 22, 2002 - 09:15 pm EditMoveDeleteIP
I still check the boards, but mainly lurk. I finally ordered the dead sea salts and should receive them soon. I made an appointment with a dermatologist to see about new meds, but could not get one until December 11.

Neko

Friday, November 01, 2002 - 08:14 pm EditMoveDeleteIP
Results of my biopsy came back.....

It is P.
Darn!
*Slams her fist..er...paw on the desk*

I was sortof hoping that this would give us a better indication of what to use..but it didn't.

At least I don't have to have allergy tests...

Sia

Friday, November 01, 2002 - 09:03 pm EditMoveDeleteIP
Neko, what does this mean in terms of your treatment? What is wrong, and what did the doctor propose to do about the problem? Thanks for keeping us updated. I hate it that your biopsy is positive. Prayers for healing out for you, Neko!

{{{Neko}}}
bannerflowers

Aunt_Bob

Saturday, November 02, 2002 - 01:37 pm EditMoveDeleteIP
Neko...baby, Hi...I think your "P." means you are an official member of this elite group...dubbed "The Shedding Psoriatics"...am I right?

Thanks hun for keeping us updated and letting us know that you are alright. I am a little confused as to what you meant by your statement..."I was sort of hoping that this would give us a better indication of what to use..but it didn't." Would you explain that for me when you get a chance.

Thanks 'little cat' ... Be good...

Pcakes2

Thursday, November 14, 2002 - 06:51 am EditMoveDeleteIP
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Halfunit

Thursday, November 14, 2002 - 08:24 am EditMoveDeleteIP
Thanks for putting it out there, Pcakes!

Neko

Thursday, November 14, 2002 - 09:43 am EditMoveDeleteIP
I meant, that knowing it was P didn't REALLY help.
We where quite sure it was P since it's genetic in my family, but since nothing was working on it, they thought it might be a fungus or something.

So, they were still giving me tons of lotions and creams for P still anyways.

I'll be going to the doctor in December to talk about the results.

Ginger1218

Thursday, November 14, 2002 - 12:31 pm EditMoveDeleteIP
Ok, let me just put my 2 cents worth in here. First of all, my sister has psoriasis. She is basically the only one in our family that I know of that has it, or had it. Her bad spots are her lower legs and her back, and her head. She has been to doctor after doctor after doctor. Tried every medication, dead sea salts, sun, you name it she tried it. I really want her to come here and read all this.

Now, on to something very important. Prednisone.
Prednisone can be considered a miracle drug for some illnesses. It can be necessary and save lives. BUT!!!!! - it is also sooo dangerous. My mother was a severe asthmatic all of her life. She is gone now 10 years. She took prednisone when she was younger for 25 years straight. They did not know the side affects and how it can totally destroy your body. After 25 years, she was very carefully weaned off. Unfortunately, way too late. She developed Addisons Disease, which is when the Adrenal Glands stop working completely. She was in the hospital 5 months until they figured that one out. She was in the top hospitals in NYC and nobody knew what was wrong. The only way to keep that from killing you is to take one cortisone pill a day. The prednisne ate away at her bones. Destroyed her spine, and made her bones sooo brittle. As if that was not bad enough, it made her skin, paper thin, so that she had purple marks all over her arms. At the very end, she had such severe asthma and Chronic Obstructive Pulmonary Disease, that they had to put her on major high doses of prednisone. That finished her off. She wound up bleeding to death from the sores internally that the prednisone did to her.

I am very sorry to bring all your heads down, and depress you all, but people need to know to tread very carefully with prednisone. In the short term, sometimes is is necessary. But if you can do without it. Ok, I am rambling.

Sia

Thursday, November 14, 2002 - 03:36 pm EditMoveDeleteIP
Ginger, that really worries me. My daughter has had an allergic reaction to something (unknown cause) three or four times in the last two years, and the doctor has prescribed Pediapred (prednisone) to get rid of the hives each time.

My daughter just had the hives on Tuesday and Wednesday this week, and I took her to the doctor Wednesday evening. ONE dose of the prednisone was enough to get rid of the hives, but my sister (whose kids take prednisone for asthma) told me today that I should continue to give my daughter the prednisone for the entire seven days for which it was prescribed. I know prednisone is a steroid and it scares me, so I'd given her just two doses and wanted to quit. What should I do?

edited to add: After the first dose of the steroid cleared up the hives, I could clearly see a bite-mark on my daughter's eyelid. I think she was bitten by a spider or an insect. I don't really know WHAT to think! She had a mark like this the last time she broke out, too. In addition to having the bumps, she gets swelling in the joings, and her hands and feet turn deep red. I took pictures each time and would have to scan the early ones (March 2001 & March 2002), but the newest ones (not developed yet) will be on a floppy so I can post them here if you want to see what this looks like.