Author |
Message |
Julieboo
Member
02-05-2002
| Sunday, July 27, 2008 - 8:04 pm
WOW!!! The burden some people carry. And the things some of us complain about. Heartbreaking. Did anyone else see this tonight? Why oh why didn't they fix this tumor a long time ago? I sure hope this show has a happy ending...
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Jodied75
Member
08-26-2004
| Sunday, July 27, 2008 - 9:07 pm
I have no idea what you're talking about. What kind of show is this, and when is it on? Your board topic in all caps really caught my attention! lol
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Reader234
Member
08-13-2000
| Sunday, July 27, 2008 - 9:33 pm
is it your shocking story? or a reality shows shocking story? link please
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Pamy
Member
01-02-2002
| Sunday, July 27, 2008 - 10:09 pm
it's a TLC tv show
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Texannie
Member
07-16-2001
| Monday, July 28, 2008 - 5:20 am
i saw the first part, amazing! were they able to remove the tumors?
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Marameko
Member
07-15-2002
| Monday, July 28, 2008 - 5:25 am
I agree Julie, it was hard for me to look.Absolutely amazing that a person has to live like that. We don't have problems when you think about this person.
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Julieboo
Member
02-05-2002
| Monday, July 28, 2008 - 7:02 am
I was way bummed that they really did not "fix" him at all by the end of the show. Though he did agree to have some of the smaller pieces removed. Just nothing do that he'd need blood. And by the end of the show nothing had actually been done. So sad. So hard to watch. And to think I lament over things like large pores (or a zit or oily skin....)
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Julieboo
Member
02-05-2002
| Monday, July 28, 2008 - 7:05 am
I won't post a photo as the unsuspecting might get really upset. You really need to prepare yourself. And yes, this is truly how this guy looks. Here is a link: http://teamsugar.com/group/897409/blog/900498 Discovery Channel said: "Surrounded by a loving family, it seems incredible that he has not been treated and his face was allowed to grow so big. However, through years of medical misinformation, some misdiagnosis, lack of finances, and reluctance to undergo treatment due to religious beliefs, the growth has continued to obliterate his face."
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Marameko
Member
07-15-2002
| Monday, July 28, 2008 - 7:45 am
That growth is bigger then I realized. When I saw him on tv I said out loud < to myself > "what is that".
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Julieboo
Member
02-05-2002
| Monday, July 28, 2008 - 8:46 am
It was so hard to watch. I just can't comprehend how he does not want to get rid of it. But he for sure has worn different shoes than I have!
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Jimmer
Moderator
08-30-2000
| Monday, July 28, 2008 - 8:48 am
While I have a lot of empathy for anyone in that situation, it is somewhat tempered by the knowledge that he has refused medical assistance based on his personal beliefs. So it is partly his decision not to do more about it than has been done.
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Jodied75
Member
08-26-2004
| Monday, July 28, 2008 - 9:09 am
I agree with you, Jimmer. This is where I have a lot of anger towards certain religious practices, especially involved with Jehovah's Witness and Scientology.
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Reader234
Member
08-13-2000
| Monday, July 28, 2008 - 1:35 pm
Jodied - add Christian Scientist to the list! (and unfortunately I have personal knowledge of the damage that can be done thanks to CS people)
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Seamonkey
Moderator
09-07-2000
| Monday, July 28, 2008 - 9:55 pm
I also felt anger at the mother who imposed those beliefs on a kid who then never got treatment early on. And that isn't just a "growth" but his actual face, so that will make it all the more difficult to deal with at this point.
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Julieboo
Member
02-05-2002
| Tuesday, July 29, 2008 - 7:16 am
Yeah Sea, I really blame the mom. She really was likely close to his only friend and ally so of course this guy is going to probably honor his mother the rest of his life by abiding by her wishes. Too bad it will literally kill him.
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Jodied75
Member
08-26-2004
| Tuesday, July 29, 2008 - 9:55 am
Agree with you all! I simply can't comprehend that...I mean, he was a minor and it was in her power to get him help or not. Honestly, I don't understand why authorities weren't called in. The medical personnel should have reported it.
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Julieboo
Member
02-05-2002
| Tuesday, July 29, 2008 - 9:56 am
It was (started) more than 50 years ago, so I am sure that had a lot to do with it...
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Laura11103
Member
08-13-2002
| Tuesday, July 29, 2008 - 12:04 pm
Whatever religion he believes in, how cruel is it that they'd want him to continue looking like this when he could be helped... I blame the mom, the religion and sorry to say, I blame him for being that unbendable that he's unwilling to help himself, wouldn't whatever god he believes in forgive him? There should be something in the Jehovah's Witness manual that says "unless you have the most horrific tumor that eventually will destroy your face and your life"... it's just incompehensible...
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Happymom
Member
01-20-2003
| Tuesday, July 29, 2008 - 3:12 pm
wow. that poor poor guy. can he even eat? can he talk? if so, where is his mouth? Julie, what do you mean when you say it was more than 50 yr ago? (Is the guy more than 50 yrs. old?)
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Seamonkey
Moderator
09-07-2000
| Tuesday, July 29, 2008 - 4:38 pm
Yes.. when he talks you can see movement and they actually showed his mouth because the doctor pointed out that it has badly affected his teeth and jaw/mouth. Julie's link shows him when he was younger and it wasn't so advanced.
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Julieboo
Member
02-05-2002
| Tuesday, July 29, 2008 - 4:44 pm
Yes he is 51 years old.
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Jkm
Member
07-10-2002
| Wednesday, July 30, 2008 - 8:36 am
I think it has more to do with - he's scared -- if you live with something everyday - you don't realize the changes -- only others that see you sporatically do -- like weight gain/loss - you don't notice on a daily basis - but someone that hasn't seen you in a while will notice the change. I think the religion part in minor excuse for the fear he has -- from what we saw - he's never had any kind of operation before -- so he has fear and will have to overcome that before he will get help. His fear of doing something is greater than his fear of doing nothing... In reality - with as large as it is now - I'm sure there is really very little they can do - I'm guessing that even with transfusions they couldn't remove the bulk of it any more with out killing him. I feel for his sister....
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Happymom
Member
01-20-2003
| Wednesday, July 30, 2008 - 9:57 am
Thanks Sea and Julie. This is so sad.
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Serenity
Member
06-28-2005
| Wednesday, July 30, 2008 - 7:14 pm
Did anyone else see the episode with the man from India who had some abnormal disease that gave him limbs like "tree roots" ? I found that one hard to watch. God bless the family that takes care of him daily 
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