Author |
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Resortgirl
Member
09-23-2000
| Tuesday, April 01, 2008 - 5:00 pm
Kar, I don't think it was my place, it's just so strange that 3 people I know pretty well have this. I looked at the protocol... holy shmoly! That's a lot of work! But if it works, it's worth it. I think mine is a combination of huge stress and possibly taking very strong antibiotics for a month straight. Who knows? I'm just hoping for some relief down the road. For all of us!!
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Pamy
Member
01-02-2002
| Tuesday, April 01, 2008 - 5:59 pm
RG, I also think it helps to talk about it, to share things that help or dont help, and to come here and vent on bad days! This place was my saviour last year!! If not for tvch I wouldnt know about Corvalen and the other stuff. Sharina was soooo very helpful and insightful and really gave us some great advice and she is the one that introduced us to Corvalen and some other things. This thread is great for venting and I do think it releases some of the pain just to type it outta your system! and you are posting to ppl that totally understand how you feel...unlike your loved ones, I know they try but they can never understand how shitty we really feel on a bad day! Rg, xoxoxoxoxoo and remember we are here for ya! ((Tess))) just cuz I lurve ya
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Karuuna
Board Administrator
08-31-2000
| Tuesday, April 01, 2008 - 6:10 pm
pssssttt, Pamy, I was the one who brought up Corvalen, from my readings/radio program with Dr. Teitelbaum. Sharinia suggested we take the Calm (magnesium supplement) 
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Pamy
Member
01-02-2002
| Tuesday, April 01, 2008 - 7:23 pm
Ahhhhh!!!! Thanks for reminding me! I still have the fibro fog! lol and thanks so much cuz that stuff rocks!!! You were going to report on that Energy Revitalization System, I see you say you are still doing it, how do you like it??
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Tess
Member
04-13-2001
| Tuesday, April 01, 2008 - 7:42 pm
From what I've read in the past, some doctors postulate that fibro can have beginnings due to severe trauma to the body and/or very severe infections. I don't know if those theories are still being batted around but I've had both the trauma and the infections. When I was young, I got several system-wide infections and was horribly ill for weeks, sometimes months, each time. Then when I first moved to MN, I slipped on a patch of ice, flipped upside down and landed on the top of my head. That is a life-long injury which has been exacerbated by being rear-ended at stop lights FOUR (yep 4) times. And finally, I had massive liver, gall bladder surgery when I was 31. That put me over the edge for good and I've had fibro since then. Then came the Lupus and the COPD. I'm so used to taking medicine for everything else that I don't even notice the one I take for Fibro. RG, you can't take credit for having the Fibro Summer Camp!! I rode on a jet ski, remember???? Still one of the most fun things I've ever done in my life. There was that one day that I couldn't move though and everyone thought I was still sleeping. Bless Michelle for leaving me her cell number since y'all were out on the lake and came back to get me. The next morning I had 4 people come and check to be sure I could sit up. It really was funny. Pamy, I lurvs ya back! 
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Mameblanche
Member
08-24-2002
| Wednesday, April 02, 2008 - 3:18 am
I've posted a longwinded (semi-coherent) update in my folder about how my mom is doing, (we took her by ambulance to emerg today, she was vomiting, she fell, AND she was delirious.) Bottom line, mom is stable, they are investigating diagnostic possiblities at this moment and she's staying in the hospital at least for a couple of days. It was a BAD day for fibrofatigue (due to getting over a BAD cold) and fibrofog!
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Karuuna
Board Administrator
08-31-2000
| Wednesday, April 02, 2008 - 6:55 am
Tess, the current theories are that the long term infections are actually never cured, and that's what causes the fibro. I'm still thinking of going to the Teitelbaum center in Denver and getting checked out to see what they think about my condition. Typically they put 90% of their patients on a long term antibiotic (like 6 months) because that's how many of them continue to show signs of those infections. (((( Mame )))) You and your mum are in my prayers!
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Mameblanche
Member
08-24-2002
| Wednesday, April 02, 2008 - 11:14 am
Thanks Kar, and everyone for their prayers and positive thoughts for my mom! 
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Tess
Member
04-13-2001
| Wednesday, April 02, 2008 - 11:43 am
Kar, with my health history, that actually makes sense. I hope you do go to the center and they can help you. It breaks my heart to think of you continually in pain. Love you, Mame. Lots of prayers for you and mom.
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Lakecat
Member
10-01-2006
| Wednesday, April 02, 2008 - 12:15 pm
I should have known I could come on this board and find support for my fibro pain,i should have checked here a long time ago.I was diagnosed two months ago was given several pain injections whiched helped alot-he also prescribed cymbalta,vicodin and muscle relaxers.Im afraid to take the Cymbalta cause I dont want to gain weight.Not familiar with Corvalen.I go look it up.
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Tess
Member
04-13-2001
| Wednesday, April 02, 2008 - 1:12 pm
Lakecat, I lost 53 pounds after starting on Cymbalta and I had them to lose. My side effects have worn off not. Everyone has different side-effect and in differing degrees. I think it's impossible to predict from one person to another without trying it out. For instance, I know from experience that I cannot take Vicodin but many people (like my husband) have no problems with it at all. Good luck and keep checking in to let us know how you are doing and what helps you.
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Resortgirl
Member
09-23-2000
| Wednesday, April 02, 2008 - 4:09 pm
Lakecat, the side affects listed for cymbalta are actually weight loss and anorexia. I haven't gained any weight on it. I hope the medications that you are on kick Fibro's butt!!
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Pamy
Member
01-02-2002
| Wednesday, April 02, 2008 - 6:12 pm
((Mame))) you and your mom continue to be in my thoughts and prayers. xoxoxoxo Welcome Lakecat! glad you found us, this is a great place!
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Lakecat
Member
10-01-2006
| Thursday, April 03, 2008 - 7:08 am
Thanks everyone.He gave me ALOT of samples of Cymbalta so I guess Ill start today.I really havent had any pain that I cant live with since the injections but Im sure it will return with a vengeance.Was also diagnosed with gall stones on Tues-guess Ill ck out the gall stone thread too.Ive only gone to the TV and News and Views thread-occasionally the cat or dog thread-this board is a wealth of info!
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Mameblanche
Member
08-24-2002
| Thursday, April 03, 2008 - 7:51 am
Hi FFF, I am still overwhelmed with fatigue, and I am congested (again) and have a sore throat. My rotator cuff injury hurts like the dickens, and I feel like something the cat threw up. BUT mom is doing so much better at the hospital today, nothing else matters. 
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Tess
Member
04-13-2001
| Thursday, April 03, 2008 - 10:55 am
Oooops, I made a typo. I meant to say that my Cymbalta side-effects have worn off NOW. Lakecat, good luck with the gall stones. The liver surgery I talked about earlier actually started with gall stones (which I didn't know I had) and things got more than a bit out of control. This was 22 years ago and things have changed so much. You take care of yourself and let us know how the gall bladder part comes out, too.
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Lakecat
Member
10-01-2006
| Saturday, April 05, 2008 - 10:45 am
Thanks Tess,I couldnt find anything regarding your liver.What thread is it in?
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Tess
Member
04-13-2001
| Saturday, April 05, 2008 - 11:30 pm
Oh, it's up thread a ways. I didn't give any real details. It was after that surgery that I got very sick with everything ailing me now. How weird to go into the hospital with a pain in my side (and a virus) and wake up completely different.
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Pamy
Member
01-02-2002
| Sunday, April 06, 2008 - 9:12 am
sending love and hugs to my FFF!
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Sharinia
Member
09-07-2002
| Wednesday, April 09, 2008 - 4:36 pm
Ruby - are you out there?? It's been a few weeks, and I haven't seen any emails from you. Just hope that I didn't miss anything, and that you are okay Hugs to all ((FFF))
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Mameblanche
Member
08-24-2002
| Thursday, April 10, 2008 - 4:53 am
((((Lakecat)))) I hope today is a better day for you! My shouder aches this morning like a son of a gun. The pain got me out of bed early and here I am. Just took a couple of motrin and hoping for some relief soon. Then its back to bed for me after calling the nursinghome to check up on mom.
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Sharinia
Member
09-07-2002
| Friday, April 11, 2008 - 3:18 pm
(((Mames))) hope your shoulder is feeling a bit better today. what's the latest word on that (with the doctors)?
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Mameblanche
Member
08-24-2002
| Friday, April 11, 2008 - 7:17 pm
Hiya Shar and thanks for inquiring... xoxo I saw my doc tonight and he's sending me to a shoulder specialist (physiatrist?) and physio. I told him the pain is 24/7 just the degree of discomfort changes a bit now and then. I only got 3 hours sleep last night it hurt so bad. I'm on a Tylenol 3 w/codein at the moment, so I'm blotto and can barely see the screen. I hope that it knocks me out and I can sleep like the dead. The pain makes me grumpy and the codein makes me irritable so I am not really at my genial best lately. I was really down about it last night, having a bit of a pityparty, saying that I suffered for FIVE YEARS with my fibroid pain and finally after my partial hysterectomy found life to be painfree, and now here I am about 3 years later in constant pain again, even if it's a totally different body part. I have a zero pain tolerance and it's getting to me. The fibroid pain was worse. BUT it was in intermittant flareups. This bloody rotatorcuff shit is unrelenting and constant. The worst part is I see no end in sight. Dammit. Sorry for ranting/venting folks. Mom updated: Apparently Mom's back to her usual schtick. According to my galpal who visited her today, she just poked at her dinner and ate just a morsel of it. I give up. Sigh. Sometimes life just sucks wind.
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Pamy
Member
01-02-2002
| Friday, April 11, 2008 - 7:55 pm
(((Mame))) come here and vent!!! thats what we are here for!! I think it helps to let it out! I hope the specialist finds something to help your pain. xoxoxoxxooo
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Mameblanche
Member
08-24-2002
| Friday, April 11, 2008 - 8:01 pm
Pamy & Shar - FFF!
I may be cracked, but I love you guys!
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