Author |
Message |
Sunshyne4u
Member
06-17-2003
| Thursday, January 10, 2008 - 3:46 am
i didnt say Traz was addictive. Has anyone read Dr T's book...from Fatigue to fantastic ? (I cant remember the title) They have some info about it on the Canadian Site. Dolph or anyone who reads here. fibro symptoms can 'mimic' other conditions as well. I would suggest that the stroke and heart attack symptoms should be ignored until a few trips to emerg can confirm that it is NOT what it seems. You wouldnt believe how many women would tell me that they had pain for hours (sometimes days) and didnt want to come in causing a fuss. For heart and stroke recovery, prompt treatment is crucial! Then at least you can relax a bit when the grabbing stabbing chest pain hits (or half your face goes numb down into the neck) it is too easy to shrug off some of the stuff as being "only fibro or only chronic fatigue" when it could be actually be caused by something else. Way up a couple of pages Sharinia talked about her symptoms of fibro disappearing with a regime of Cleanses, Severe dietary restrictions and TOXIN removal. I dont remember it all and it might be spread around a bit...but this gives us all hope that not every symptom could be 'permanent'. in my case my difficulty walking and severe vertigo/ migraines were lessened by a brutal regime of Anti-lymes antibiotics for weeks on end. BEFORE being referred to the specialist I had 'accepted' my condition 'as is'. I really didnt believe anything could lessen it. I really think Hope is important when accepting this condition as part of our lives. My specialist said that some people go into full remission. But there is no clearcut reason why. I personally feel that for ME it is a genetic combination of things. Since I had symptoms already as a child, it is obvious I've had some form of it since birth. Howver, what was the Trigger of the genes? The latest discussion in genetics seems to be that if we can turn a gene ON by a trigger of bacterial/ viral infection OR chemical/ food allergies, is it possible to turn it OFF?? anyways, I've blabbed enough. For someone who never used to come here, YIKES...too much
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Mameblanche
Member
08-24-2002
| Thursday, January 10, 2008 - 12:46 pm
Took my Tylenol 3 and my muscle relaxant last night. Did 9 loads of laundry (8 at home 1 at mom's nursing home) Tuesday/Wednesday. I am in pain and walking stiffly, at a 45 degree angle. The pain last night was tremendous. But today its a bit better. I'm probably going to grab a book and go back to bed soon.
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Holly
Member
06-19-2005
| Thursday, January 10, 2008 - 1:42 pm
You're SO lucky you can do that, Mame. Wish I could too 
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Mameblanche
Member
08-24-2002
| Thursday, January 10, 2008 - 1:52 pm
Holly I wish I had a job (course I'd take the day off if I was in this rough shape, LOL).
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Holly
Member
06-19-2005
| Thursday, January 10, 2008 - 1:54 pm
LOL Mame. We're never happy, are we? 
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Mameblanche
Member
08-24-2002
| Thursday, January 10, 2008 - 2:12 pm
Yep, the grass is always greener, unless it's smoked. {wink}
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Dolphinschild
Member
06-21-2006
| Thursday, January 10, 2008 - 4:28 pm
Im sorry your not feeling well today Ms. Mame! My pain levels have been pretty good concidering the stress I have been under. I have been waiting for the crash. I did catch a cold or the flu though. I am battling that . Wish it would go away. Anyways, rest and get to feeling better soon. Hugs...
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Dahli
Member
11-27-2000
| Thursday, January 10, 2008 - 8:33 pm
Hey Mame, I'm sorry to see the you're hurting... you've really got your hands full even without a job doncha? I work out of my home which is great when I'm sick but it gets lonesome sometimes. Love it in the winter tho. Have you ever considered something like that?
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Mameblanche
Member
08-24-2002
| Thursday, January 10, 2008 - 9:27 pm
Thx DC & Dahli, I do freelance writing from home, but it's been a while. Ive been focussing on finding a perm-pt job with benefits. So far not been too successful.
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Sunshyne4u
Member
06-17-2003
| Friday, January 11, 2008 - 4:13 am
I would suggest that the stroke and heart attack symptoms should be ignored until a few trips to emerg can confirm that it is NOT what it seems. I am sure most people nver even NOTICED my severe miswording of my sentence. That is what happens when I type out stuff, it doesnt make sense so I edit it, then proofread and MISS stupid mistakes. of COURSE the above sentence should read I would suggest that the stroke and heart attack symptoms should NOT be ignored GOOD grief 
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Sunshyne4u
Member
06-17-2003
| Friday, January 11, 2008 - 4:27 am
YIKES Mame, you have tons of energy ( or drink tons of coffee LOL) to attempt a million loads of laundry it is amazingly hard work! I detest trying to drag wet clothes out of the washing machine....dont ahve a drier that works so I hang stuff up. I have stools though, so I am not having to put my arms up. actually, I havent done laundry for around a month or so. I'm running out of underwear LOL I would have loved to do a load of cottons today but I'm exhausted. I am STILL trying to find a vehicle that I can drive. Getting in and out and in and out of Vehicles kills me....it is starting to really depress me. I rule out almost every vehicle just trying to get in and out..since I have to drag my right leg in and out. AND you can imagine how much I love being stared at like I'm some kind of Psych case...because of the unsteadiness and lurching way I walk. Stuttering over words, mixing up words...It amazes me that they let me Test Drive ROTFLMAO I've been slowing looking for months now. Ruled out all the vans, Ruled out most Small SUVs...now feel I'm stuck trying to find a sedan. I usually can only look for part of a day then recover for a week or two. Today was Toyota and Chev dealership days. Will possibly test drive a Yaris and Camry/ hybrid. I know I'll barely be able to walk tomorrow but renting a vehicle for yet ANOTHER month is making me angry. I purposefully kept it so that I could catch all of those 'great liquidations' of 2007 at Christmas. There werent any! Since almost all 2007s are gone, it never occurred. I wasted 700$ for nothing and as my next month has already started I HAVE TO force myself to find something that I can 'make do' with. so Tomorrow I hit the Ford dealership and Revisit Honda. I will hopefully test drive a couple more there. I cannot have any vibrations thru the steering OR coming thru the seat causing the degenerating discs in my neck to swell and go numb/ spasm. the new cars/ suvs and Vans all seem to built so cheap! plastic rubber etc I test drove a vehicle the other day that Bounced so hard over pavement seams that My whole chest and belly bounced...it was a very uncomfortable and BIZARRE feeling. It was great on the Hwy, Horrible in city. SIGH
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Mameblanche
Member
08-24-2002
| Friday, January 11, 2008 - 10:25 am
((((((((Sun)))))))) I'm sorry things are so difficult for you... that what most of us take for granted is a pain in the (choose a bodypart of your choice). Sometimes when I read your posts and Shars too, I think of the movie about the boy in the plastic bubble (I think Travolta starred in it a billion years ago). I know you guys have been through the mill and are both coping so well. I find you both amazingly resillient, and to top it off you both share so much info that you've learned from the school of hard knocks - and your job. Wow. I may not always follow all the medical jargon or the presciptive stuff y'all write about, but the meat and potatoes of what you talk about, the daily struggles, and what you've overcome touches me deeply. And yep, I do my laundry all in one fell swoop on a good day, and then I roll over and die for a few days after. Right now I'm STILL a bit mellow from the meds, even though I took them on Tuesday night! The nice thing is that this time they did not affect my mood. DH dreads when I take the T3 & Muscle relaxant cuz it turns me into a very agitaged b*tch-on-wheels for about 48 hours. This time I've just been extra mellow and sailed through it. Not sure why, but not looking a gift horse in the face either lol. Still hoping to hear that they can fit me in for a massage today at the massage school. I left a vm on their ans machine yesterday. My disc in my lower back is the main brunt of the pain. Ironically I do not let them near my disc, (I'd go through the roof with pain and then have to kill them )(j/k) but the overall massage helps enormously anyways, believe it or not. Good luck finding your perfect auto.
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Rubyroo77
Member
08-13-2005
| Friday, January 11, 2008 - 10:30 am
I am so sorry Mame that you are in pain. Good for you for doing the laundry..I think it depresses us more if we don't try to accomplish something everyday. I don't work outside the house either Mame..and couldn't if I wanted to. My heart breaks for anyone with FM. I think we all experience different things, sometimes even making a decision is difficult. Sun-I have similar problems as you- as far as the wierd vision- hard time swallowing etc..where did you learn about this-I have had a hard time finding info about this being related to fibro. I know with fibro there is burning pain, but is the strange mentholating feeling on my skin really part of fibro? I also get an internal tremor, it can get really bad sometimes..I can feel it in my stomach, mostly my chest, my eyes shake sometimes, nobody can see it, my son felt it though..I read that it can be from PM or lyme, or magnesium, or B12, or potassium deficincy. I take lots of mag, potassium and B's..I am so stumped as to what this is. Dahli-how is your Jackson doing? Sun-I wish you the best in your search for a vehicle, that must be hard for you.
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Dahli
Member
11-27-2000
| Friday, January 11, 2008 - 11:20 am
Ruby, I have the menthol sensation on my arms and it's quite annoying, and have seen a number of practitioners about it... And Mame I so agree with you - Sunshyne can really lay it out there, her information is so helpful on so many topics, it's quite remarkable.
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Mameblanche
Member
08-24-2002
| Friday, January 11, 2008 - 11:35 am
Thx Ruby & Dahli! Every now and again I repost an informative article I wrote about Fibro in 2000, and I'm thinking of posting it again, if I can find it.
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Dolphinschild
Member
06-21-2006
| Friday, January 11, 2008 - 12:54 pm
I am thankful for this thread, I have been learning a lot here and all the little light bulbs have been going off too. Sunshyne, I worked in ER as a secretary and I totally agree with you. When I worked there and even several years afterwards, I never wanted to have to go to ER or have the Ambulance crew come. I have seen how horrible they all can be in the back at the nurses station and how horrible they are to each other. I had two head nurses that had it out for me and I never knew why. The place was so high school clicky and if you weren't related to someone you weren't worth crap, so they treated you like shtt. I was harassed by these nurses who always tried to get me fired and they even made up lies to do it too. Such as one time they told my boss I told a mother on the phone, (while I had to call her to let her know her son was coming in on an ambulance from a car accident.) They told my boss I told her when I called, "Your son is coming in on an ambulance and your son is going to die." Lucky for me one of the paramedics were standing at my desk and she was waiting for me to hand her the info I got from the mother and she heard the whole conversation. I was surprised to hear the paramedic go against the nurses and back me up and even wrote a statement to the fact. She ended up with a small target on her back for a while with that one. I don't blame you one bit for not wanting to have to go in by them. I went to a different hospital when I needed to be seen for awhile. I also appreciate all your posts and info. Thank you so much for taking the time to share. Ms. Mame, I am glad your meds didn't effect you like usual. It must have been nice to get some reprieve (sp). Today I woke up with my right hip burning and lower back stiff. I was hunched over like an 80 yr old woman. It hurts to move and it hurts to sit or stand too. Thankfully I see my Chiro today. He will do physical therapy on it to help me today. He usually does acupressure on me. His office also has something homeopathic here that another Fibro patient takes that is simular to what was mentioned here to take. They are going to talk to me about it today. His other patient said it has made a big difference in her since she started it. It is also half the cost of the other, which right now money is an issue, so I will try what he has before I go to the other. Since my stay at the hospital with my Mom, I have a head cold and this morning I woke up with a cold sore on my upper lip. So the beginning of the year is starting off rough for me. I hope this means that the rest of the year will be smoother. One can only hope! I hope everyone has a good day! Hugs...
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Mameblanche
Member
08-24-2002
| Friday, January 11, 2008 - 1:52 pm
(((DC))), sorry you have a cold and feel like crap. The pain is somewhat improved for me but it's still there. Feels kinda sciatic. I'm also hunched over at an angle. We'd make a fine pair, walking down the street, eh? DH came home early and now he's on his way to get an MRI, and he has another one coming up tomorrow. (Shoulder/Arm and Knee/leg) I hope they can figure out why he's in so much pain all the time, and find a way to resolve it for him.
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Rubyroo77
Member
08-13-2005
| Friday, January 11, 2008 - 2:39 pm
Dahli-you have that feeling, too? It feels so cold and even painful and is bothering me so much- I even have it on my face, neck and back..it's been really bad for a while..I feel like I need to wrap up in an electric blanket..but I don't have one..only a heating pad..for which I am so grateful for right now! Dolphin-I am so sorry you are hurting today. Have you ever heard of taking Lysiene? My husband would get cold sores all the time..his brother told him about Lysiene, he started to take it when he would feel a cold sore coming on, and it would nip it in the bud, and not come out. So I told him to take it everyday instead of waiting for his immune system to lower..he has been taking it everyday, and never gets a coldsore. I read a natural health magazine when I was at my chiro, and there was an article about how doctors were using Lysiene in herpes cases and were having great success with it. Try it! And I hope you feel better tomorrow.
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Pamy
Member
01-02-2002
| Friday, January 11, 2008 - 4:48 pm
sending love and hugs to all my FFF.
    
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Sharinia
Member
09-07-2002
| Friday, January 11, 2008 - 5:30 pm
(((FFF)))) sorry I haven't been posting here in a bit Ruby, thanks for your kind note - I did see your post, btw it's been a super busy week for me, and unfortunately the weekend will prolly be more of the same.... but next week should hopefully be better

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Costacat
Member
07-15-2000
| Friday, January 11, 2008 - 6:26 pm
Since this IS the chronic pain thread... I'm hoping to FINALLY get rid of mine. I managed to get surgery scheduled for my shoulder. Unfortunately, it's an accelerated program... due to a cancellation, I'll be having my pre op appt at 8:45 am on Monday, and then going in for the surgery at noon!!! I hope this solves the problem. The pain has been constant and almost intolerable for the last three weeks. The down side of my taking someone's cancellation is that I don't have time to really mentally "prepare" for this. Yikes! Surgery on Monday! Holy smokes!!!
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Mameblanche
Member
08-24-2002
| Friday, January 11, 2008 - 6:38 pm
(((((((Costa)))))))) With all of us here praying for you and sending you positive vibes... you're bound to ace it. Think of how lucky you are to get this cancellation... 3 weeks of INTOLLERABLE pain is more than enough in my book.
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Mameblanche
Member
08-24-2002
| Friday, January 11, 2008 - 6:40 pm
Oh and I goofed. DH is not having an MRI on his shoulder this time round. Today's MRI was for one leg, and tomorrow it's for the other leg.
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Mocha
Member
08-12-2001
| Friday, January 11, 2008 - 6:45 pm
Good luck Costa!
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Dolphinschild
Member
06-21-2006
| Friday, January 11, 2008 - 8:53 pm
Costa I hope your surgery goes well! At least you have the weekend to mentally prepare some. Ms. Mame I hope they are able to find what is wrong with Vinnie, so he can be feeling better soon. I told my Chiro about the radio show that Karuuna has been posting and he had me send it to him by email so he can read it. He also wanted Dr. T's website. I told him about the Corlaven and he is going to try to get it for me. From what I told My Chiro that I read from the radio postings, he started me on a few things he had in his cabinet. One of them is this- Fibroplex plus link And the other is- ATP Plus Link He was just going to start me on the ATP Plus only, but after talking a little longer he put me on the Fibroplex plus powder too. He was able to do the acupressure on me to get my hip to calm down today. Rubyroo Thank you for posting the info. I have taken L-Lysine for 15 years off and on for cold sores. I use to get them several times a year (almost every month) growing up, and 15 yrs ago I discovered the Lysine. I started taking it and I up to 3 years without a cold sore. I started taking some this morning. My Mom finally had a good day. She felt well enough for me to wash her hair at the sink today. Tomorrow I will be cleaning house for her and Sunday doing laundry. She goes in to the Ortho Weds. I hope it is good news.
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