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Citruscitygal
Member
08-07-2003
| Tuesday, February 19, 2008 - 7:57 pm
Any TVCHers or family members dealing with gluten sensitivity? After years of dealing with stomach pain I have been diagnosed as gluten sensitive. I'm learning that I've had other symptoms over the years that were related to gluten. No other doctor was able to connect all the dots. Has any one else had symptoms other than digestive that you were aware of or that improved by removing gluten from your diet? My diet is still very restricted, right now more because of the years of inflammation that needs to heal than the gluten issue. But I am testing new foods and making some progress. Actually adding in gluten free foods will be a treat. I know I have a lot to learn and would welcome any advice, suggestions, sources of gluten free products that have passed the taste test, etc. Were there foods where you were surprised to find hidden gluten or gluten by-products? I know I will be shopping at Whole Foods and Trader Joes for gluten free products and that there are some restaurants that offer gluten free foods on the menu, but I will appreciate all the info I can get. TIA
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Kc103
Member
07-13-2004
| Tuesday, February 19, 2008 - 9:45 pm
I have not had problems with this myself, but there is a radio personality in my city that talks about the gluten issue very regularly because he has been dealing with it. I'll put a link on here to a page where they discuss different things about it. I realize that some of the information is Chicago-area related, but it looks as though there are some links and tips on there as well. http://wgnradio.com/index.php?option=com_content&task=view&id=3103&Itemid=249 I hope that you start to heal and feel better! 
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Eeyoreslament
Member
07-20-2003
| Wednesday, February 20, 2008 - 12:39 am
I'm a waitress and Celiac's Disease is really more common than you would think. I'm not sure if it spelled that way, but it's something like that. I also have a co-worker/friend who has learned she has a ton of food intolerances. She really got into the naturopathic remedies. Not to voodoo stuff, but she went through a few cleanses, for candida, then this long term food restiction diet where she would reintroduce problem foods one at a time. She found out that she has problems with flours and alcohols, and cocoa. Anyways, lots of problems were discovered via the candida cleanse, but she has never felt healthier after completing it. Check it out. It turns out candida is lurking in most of us, and we feed it every day with our reliance on so much sugar and carbs. :-) As a waitress, I just want you to know that most restaurants DON'T MIND altering their items for your food intolerance. So don't feel bad about going out for dinner, etc. Just make sure you communicate your intolerance to the server, and make sure they communicate it with the kitchen. Good luck!!
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Texannie
Member
07-16-2001
| Wednesday, February 20, 2008 - 6:49 am
Is it Celiac or a sensitivity? We went through this with my son. He had a sensitivity but not celiac. Ezekial bread became his friend (grudgingly) aslo rice cakes. Good luck. I know it's hard. But in reality, fruits, veggies and protein aren't a bad way to eat. I have done a cleanse (not necesarrily for candida) and it was wonderful.
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Citruscitygal
Member
08-07-2003
| Wednesday, February 20, 2008 - 1:33 pm
Thank you all for the info. Texannie this is copied from my lab report Although you do not possess the main genes predisposing to celiac sprue, HLA gene analysis reveals that you have two copies of a gene that predisposes to gluten sensitivity, It's not Celiac, just a sensitivity, but I don't use the term just lightly. It has caused untold pain and suffering, mentally and physically for nearly 20 years. Now that I've started discussing my diagnosis with other people and by the number of products now available in stores etc, I'm learning how many people have this problem to one degree or another. Based on the verrrrrry limited diet I have been able to tolerate for over a year, anything (even gluten free) will be an improvement. I'm currently working with a new doctor (who prescribes naturopathic remedies whenever possible) and a nutritionist who has been sooooo helpful. I'm feeling better and am finally hopeful that there is light at the end of this tunnel. Gratefully taking in all your suggestions.
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Eeyoreslament
Member
07-20-2003
| Wednesday, February 20, 2008 - 2:03 pm
Rice pasta is another way to enjoy pasta again....I had a customer who used to bring in her own pasta for us (when I works at a pasta restaurant, and we'd boil it up and then do the sauce she wanted.
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Jan
Moderator
08-01-2000
| Wednesday, February 20, 2008 - 4:00 pm
Citruscitygal , my sister spent a lifetime often feeling sick - so much so that I used to tell her she was a hypochondriac. Then about 20 years ago ( when she was around 30) she became horribly ill and was dying of malnutrition - she could keep nothing in - everything ran through her. She was so skinny she looked like the people in concentration camps. Finally an internist diagnosed her as celiac sprue. for 20 years she has been on a gluten free diet ( and she became a vegetarian on top of it!). After the first year, she settled right in to her new diet as you can find almost anything anymore in a gluten free form in the states - even Amy's pizza!!! so there is definitely a strong light at the end of the tunnel! ( the only sad part for my sister is that we are a fat disposed family and she was always the skinny one. Now that she knows what to avoid to feel well, she is as fat as the rest of us!! )
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Konamouse
Member
07-16-2001
| Wednesday, February 20, 2008 - 9:28 pm
Let's just stay with eating like a Celiac and I'll bet you'll feel so good, you'll never go back to Wheat, Rye, Barley or Oats (technically, Oats do not have the gliadin that triggers the immune response but most Oats in the US are cross contaminated with wheat). I'm a local expert for Celiacs so here goes all my favorite websites: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ http://www.celiac.org/ http://www.gluten.net/ http://www.glutenfreerestaurants.org/ http://www.glutenfree.com/ Many newly diagnosed celiacs are also lactose intolerant for a few months (until their intestinal villi are healed). And if you've had symptoms for years, you may be iron deficient. Early osteoporosis is also possible (due to years of poor calcium absorption). Multivitamin w/ iron and calcium supplement often prescribed. I'll keep an eye in this thread to help out if there are more questions. I've taste-tested many items and can share my opinion if you like.

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Juju2bigdog
Member
10-27-2000
| Wednesday, February 20, 2008 - 11:31 pm
Citruscity, I sent you an e-mail.
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Citruscitygal
Member
08-07-2003
| Thursday, February 21, 2008 - 9:32 pm
Popping in to thank everyone for all the information and suggestions. Kona - I will check out all the links. Thank you. May not be posting for a few days as I have a lot of tax deadlines to meet by the end of the month (I do accounting). But I will be reading. TIA for any more info or suggestions. Juju - got the email will respond ASAP. Thanks
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