Author |
Message |
Mameblanche
Member
08-24-2002
| Saturday, January 05, 2008 - 10:03 pm
Yeah, I had a partial hysto in 2004 and I STILL get PMS... VERY emotional last few days of the month & first few days of next. Sigh. HATE it! I'm nutsy enough without the hormones on the rampage. LOL I think we all just need a group hug. 
|
Pamy
Member
01-02-2002
| Saturday, January 05, 2008 - 10:27 pm
(((FFF)))
|
Sunshyne4u
Member
06-17-2003
| Sunday, January 06, 2008 - 3:42 am
i confess I didnt read the light link but ANY kind of Flickering does me in. There are grocery stores that I cant shop at due to the lighting and Ceiling fans. (can run in and grab ONE thing if desperate) same with Restaurants. NO flickering candles on table and Cant have them on the tables beside me either LOL SIGH and my WORST TV show?? Tribal Council Survivor...my stomach starts rolling and I space out (once I figured out it was the flames, I just listen and glance up now and again if the Contestants are arguing LOL)
|
Sunshyne4u
Member
06-17-2003
| Sunday, January 06, 2008 - 3:45 am
By the way, many of you guys may be having more problems on those cold wet or stormy days due to wearing heavier clothes. I find winter hellish on my neck and shoulders due directly to the Sweaters and pullovers. It seems ridiculous to have problems with that light of a weight but I cant wear my hair up in a bun or a ponytail anymore due to it making my head sit off centre on my neck. Crazy
|
Dolphinschild
Member
06-21-2006
| Tuesday, January 08, 2008 - 2:53 pm
I was diagnosed Fibermyalgia on Saturday by the VA Rheumatologist. He sent my local VA doctor orders for my treatment. I just talked to her on the phone. She is going to try to put me on Lyrica or Cymbalta, which ever she can get approved. Is anyone on these meds for their Fibro?
|
Mameblanche
Member
08-24-2002
| Tuesday, January 08, 2008 - 3:31 pm
(((DC))) You'll find many wonderful, caring and knowledgeable folks here in this thread. I'm just so sorry you're suffering from Fibro too.
|
Dolphinschild
Member
06-21-2006
| Tuesday, January 08, 2008 - 3:52 pm
Hi Ms. Mame! At least we have a name for my pain and body issues and I can tell Dr. Quack (IN YOUR FACE!) Well that is what Sarabear wants to tell him lol. If my new doctor doesn't quit on me (which she mentioned quitting the VA soon if they don't stop some of their crap and it causing her unnecessary stress), I will have her to treat me for this. If she does quit, and I get stuck with Dr. Quack again, I at least have the Rheumatologist doctors diagnosis and orders in my medical record he can't ignore. I see my favorite doctor in Redding tomorrow if weather permits, so he will read the report too. Either way I just need to wait and see the Endocronologist now and I should be back on track. Thanks for the hugs...
|
Mameblanche
Member
08-24-2002
| Tuesday, January 08, 2008 - 4:16 pm
Hope you don't have to deal with Dr. Quack again. That would suck. But like you say, he's gonna hafta accept it as fact now that it's been officially diagnosed.
|
Dovez
Member
08-27-2005
| Tuesday, January 08, 2008 - 4:42 pm
oh, dc, so not happy with quack quacks. they just aren't necessary in our lives but seem to keep showing up. but (((((())))))'s for you. and ms. sunshyne...believe it or not, we southern california gals don't wear heavy clothes even on the coldest of days. we're that stupid!! (sorry if this doesn't include you ms pamy!)
|
Sunshyne4u
Member
06-17-2003
| Tuesday, January 08, 2008 - 4:46 pm
Dolphin, I know quite a few of us have tried Lyrica and Gabapentin as well as Neurontin...all the same family of meds. everyone is physiologically different and reacts to the meds individually. It might be best to do some trials. These meds should ALL work within days of starting. IF they dont, it isnt for you. I am not sure what else you've tried already. I myself consider nerve deadeners as a Last resort. once you are on them, it is difficult to get off since the pain is so much more obvious (not sure if that is the right word) Also the itching....WOW i just about lose my mind from the itching when I tried to stop. However in the old days prior to the drugs, I was itchy but somehow it didnt seem as bad. hard to explain. Ultracet....i've read some people have good results. I wish my fibro spasms were more in one area. There is a lady here who gets Botox injections in her neck!! LOL They'd have to botox my whole BODY!!!! can u imagine?? JK!
|
Sunshyne4u
Member
06-17-2003
| Tuesday, January 08, 2008 - 4:52 pm
on a different note, I got a call from my Cousin in Saskatchewan last night. Its been years since we've talked but since she is having some changes with her fibro she wanted my opinion. It is interesting how these things travel in families. There are three of us in the cousins and one of my cousins has three of his children now 'diagnosed' with Lupus. My cousin and I were talking about her brother's kids and how we think there is a good Chance that the 'chronic pain and food digestion problems' are probably in line with Fibro. I worry a bit. At first when only one of the twins got it, the doctors were looking at both of them with great interest. Now BOTH have it...and later, one more sibling!! Geez I'd love to contact my cousin (their dad) but he's always been a 'I know everything' type of person. As for genetics, it is possible that the kids do have problems as his wife was ten year older than him and had all the kids late in life. So if you have a genetic 'tendency', it is more likely to be triggered by a virus. I bet everyone in the house was really sick with a virus the year before all of this 'lupus' started. Anyways, I needed to vent and although this is NOT the vent thread...oh well.
|
Seamonkey
Moderator
09-07-2000
| Tuesday, January 08, 2008 - 4:52 pm
That is not great news about the compact flourescents.. I just anecdotally think they are ramping up my depression.. sigh.. I've been off antidepressants for quite awhile, too. I remember back when all offices had the long flourescents, some had some bad side effects and there was a healthier option, but I don't know of that would be available anymore. I am almost completely switched to them, for eco reasons, and soon it won't be a choice anyway. I'd say that PMS vs Meno.. about the same but, as Pamy points out, meno is less predictable.. so it always seemed worse to me.
|
Karuuna
Board Administrator
08-31-2000
| Tuesday, January 08, 2008 - 6:11 pm
Just a clarification to Sunshyne's comments... it can take longer than a few days for Cymbalta to work, since it is a different type of drug than Lyrica. It may be two weeks or more. How quickly Lyrica works depends on the dosage. I had to start with a tiny 25mg dose, because it really sedated me. I didn't have pain relief until I worked up to 150 mg.
|
Dolphinschild
Member
06-21-2006
| Tuesday, January 08, 2008 - 6:47 pm
Thanks everyone for the info. So itchiness comes with Fibromyalgia? I thought it was my hormones that would cause me to have a burning crazy itch all over. It started in 1994. Also the Rheumatologist said that my IBS is directly a condition caused by the Fibro. He said if it wasn't for the Fibro I wouldn't have IBS at all. My new doctor didn't know which med she would be able to get approved for me, but the two choices that she mentioned the Rheumatoid doctor suggested was Lyrica and Cymbalta. They have me staying on low dose of Trazadone to work on my sleep, and they made sure my cyclobenzaprine (muscle relaxer) had refills. I have had headaches my whole life and at 18 went into migraines. He said my dizziness and headaches as a child was from the Fibro too. So I am learning a lot and getting a better understandy of WHY finally.
|
Pamy
Member
01-02-2002
| Tuesday, January 08, 2008 - 7:28 pm
((Dolphin))) welcome to our FFF (fibro friends forever)group I love trazadone and have taken it for sleep for couple years. If you read back in this thread we talk about and give website info about CORVALEN AND CALM a few of us are those supplements and have had success with them. I have noticed considerable pain improvemnt on them.. if you smoke.. quit now! ask me how LOL (i feel like a herbal life salesgirl) I also take vicadin (hydrocodone) for pain
|
Sunshyne4u
Member
06-17-2003
| Tuesday, January 08, 2008 - 7:58 pm
it is the weird stuff of fibro that I was surprised to see. Ringing in the ears, visual flashes, I often get a quick sensation of the room turning sideways and the feeling like I'm falling sideways too....even though I'm sitting in a chair stationary. And the hypersensitivity! My family used to bug me about the "princess and the Pea" story. I'm truly like that. I've woke up in Hellish pain because there was a long wrinkle in the sheet from when the bed was made. Yet I'm so uncomfortable I once slept all night with my cellphone in my back pocket (i'm a back sleeper) and NEVER NOTICED because I always feel such pain LOL!! I laughed when I put my hand down to rub my spasms before getting up and found my 1/2 thick cellphone in the middle of the burning spot. or that weird feeling that there is something in your shoe pushing up on your sole of foot....and there is nothing there. I dont know. It is all 'nerve' related...but it is WEIRD>
|
Sunshyne4u
Member
06-17-2003
| Tuesday, January 08, 2008 - 8:03 pm
trazadone increased my blood pressure (and I'm usually low!) and gave me migraines. My doctor is against giving me anything that Might be addictive. i'm not sure. Is vicadin a narcotic? like vicodin ok I looked it up narcotic analgesic, a controlled substance schedule WOW Pamy. Did you try all the others first and this was the only one which worked?? just curious also, does it impair you? drowsy? blurry thinking? wouldnt want to drive at highest blood level?
|
Pamy
Member
01-02-2002
| Tuesday, January 08, 2008 - 9:35 pm
LOL I spelled it wrong. I take the generic version of vicodin, Hydrocodone. It doesnt impair me at all. It takes edge of my pain...I take as needed. Might take 2 a day/1 day/or zero. I have been on it for couple years. I take less and less since corvalen/calm/no smoke tried different sleep stuff and Trazadone 50mg is the best for me...no side effects, no 'hangover', love it. My blood pressure has always been perfect and still is after couple yrs of traz. I dont care if its addictive. I dont plan to stop taking it.
|
Pamy
Member
01-02-2002
| Tuesday, January 08, 2008 - 9:36 pm
eta...not saying it is addictive, not sure, dont care 
|
Dolphinschild
Member
06-21-2006
| Tuesday, January 08, 2008 - 11:11 pm
Pamy, I don't smoke, I have been a life long Non-smoker. I also don't drink alcohol, I quit that 22 years ago this year. I am allergic to Codien and Vicoden/Hydrocodone. Vicoden/Hydrocodone is addicting. I have been on Trazadone before when I first started my PTSD treatment, so I am happy to take it. The muscle relaxer Cyclobenzaprine is what my doctor gives me for my muscles that go into goose eggs and rip cords they tighten up so much. Then the nerves pinch from it. The Mayo Clinic website I think it is, said that this muscle relaxer is usually given for fibromyalgia to help with these problems. It also mentioned the Trazadone as a treatment too. I have always had headaches and my mom thought growing pains growing up, but now I guess they weren't. I also get weird stabbing pains in my chest and neck, never knew why. I also could be doing nothing and all of a sudden my head will feel heavy, it is to heavy to hold up and I will get dizzy. I had that when I was a kid too and the Rheumatologist said that was the FM too. So I am glad I am finally getting answers from a life time of weird stuff going on with my body and the pain too. I am working on going back in the thread to catch up with the posts and stuff you mentioned before. It will take a while, there is a lot to read. Thank you all for your support and info. I greatly appreciate it. I hope my VA doctor can get the special approval for the med for me, or I will have to have my civilian PA handle it and I will have to pay cash for the meds .
|
Dolphinschild
Member
06-21-2006
| Wednesday, January 09, 2008 - 2:28 am
Sunshyne, you wrote a post Tuesday, January 01, 2008 - 6:54 pm and you mentioned about cold spots and such. I will be sitting down or standing up and I will feel like someone put a cold hand on my leg. I will be looking for what is cold touching my leg and there is nothing there. Sometimes I feel like someone grabbed me too and there will be nothing there. That started a few months ago. I have also woken up choking on my own spit recently, which scared the crap out of me. I have never done that before. Also I have been swollowing down the wrong pipe more recently too. When I swollow sometimes I get a clicking kind of feeling in my throat too, which I am not sure if it is the thyroid thing going on, or the colloid cyst in my neck by thyroid. Anyways, I have had the itching thing since 1994. It will feel like a million little bugs are biting me, and it will burn and itch. When I scratch, it is so efforic, but the moment I stop the biting and burning persists. My skin will turn beat red too like hives. When I was pregnant with my youngest one, I would flame up with the itch every day and it would last for hours. The longest time it lasted was 6 hours. I usually take benadryl to control it since she was born. I always thought it was hormones, well at least that is what my Gyn told me he said it might be. Allergic to a hormone. So I assumed it was hormonal. I also feel the right side of my chin and jaw, next to my mouth go numb. I keep telling my doctors about it and they just shrug at me. I had bells polsy a few years ago from the VA dentist, who hit the nerve on that side. People thought I had a stroke from my lip sagging, so I thought it was residual from that, which maybe it is I don't know. But it makes me nervous you know, wondering if I am going into stroke. I have to tell you, a lot of things in my life are starting to make since physically for me. Like the cold spots I get on my leg, the waking up choking, the dizziness I have always had too. I do feel more emotionally at ease finding out where it all stems from and mostly I am at peace that it isn't in my head and I am not crazy. All I could say for hours after my appt. was, "I knew I wasn't crazy," I would just pop up out of the blue and say it and my friend Shelia and my parents would just chuckle at me, because it would come out of no where. Anyways, I am still reading and trying to catch up. Thank you for sharing your posts. Hugs...
|
Pamy
Member
01-02-2002
| Wednesday, January 09, 2008 - 6:10 am
Dolphin...gotta run will post more tonite but here is the site that has the Corvalen and Calm supplements www.needs.com hugs
|
Karuuna
Board Administrator
08-31-2000
| Wednesday, January 09, 2008 - 7:54 am
Trazodone is an antidepressant, and is not addictive. I still owe you all the rest of that transcript. I think the next section is on pain, so it will be pretty interesting!
|
Pamy
Member
01-02-2002
| Wednesday, January 09, 2008 - 10:28 pm
yah!!! thanks Kar, I cant wait for the next installment!
|
Dolphinschild
Member
06-21-2006
| Thursday, January 10, 2008 - 1:04 am
Thanks Pamy and Kar. Kar I can't wait for the next installment either. I told my doctor in Redding about this today. So he is going to go to Dr. T's website and check things out.
|