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Archive through October 17, 2007

The TVClubHouse: General Discussions ARCHIVES: Oct. 2007 ~ Dec. 2007: Health Center: Fibromyalgia & Chronic Pain: Archive through October 17, 2007 users admin

Author Message
Resortgirl
Member

09-23-2000

Sunday, October 07, 2007 - 5:55 pm   Edit Post Move Post Delete Post View Post Send Resortgirl a private message Print Post    
Kar, I really haven't looked into it at all yet. I was going to wait for these final tests and then depending on what they come up with I was going to ask for a referral to Mayo. No idea how long it takes to get in or how long one needs to be there. Lots of research and legwork to do on that yet. But if you do have the chance to go there, I think it is absolutely one of the best medical facilities in the country. Without a doubt. I'll let you know more as I know more...

New symptom this week... major pain in the right arm and there are several areas that the muscles feel knotted and painful to the touch.

My daughter came up this weekend and we hired a massage therapist to come to the house and give massages. It was heaven. Not having to drive home, being able to just roll into bed... pure bliss!!

Mameblanche
Member

08-24-2002

Sunday, October 07, 2007 - 7:36 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
RG - I had the same luxury massages for several months a few years ago. A neighbours niece was staying with her during the school year. The niece was studying to be a Naturopathic, holistic doctor and they are taught massage, so every few days, when I was in dire need on a bad pain day, (or just wanting a bit of pampering on a good day) I'd give her a call and if she could fit it into her schedule she would take the elevator up with her massage table and it was heaven on earth. We even talked dh into getting a couple of massages on his bad chronic pain days (he has arthritis among other things). And it didn't cost much because as a student she's not allowed to charge much, if anything, from what I understand. She was a lovely gal, and I was happy for her and sad for me when she graduated cuz she moved out of her aunt's place and back home to her mom's place, out of town.

Mameblanche
Member

08-24-2002

Sunday, October 07, 2007 - 7:36 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
(((Welcome Ruby!)))

Juju2bigdog
Member

10-27-2000

Sunday, October 07, 2007 - 10:45 pm   Edit Post Move Post Delete Post View Post Send Juju2bigdog a private message Print Post    
Mayo Clinic is world-renowned and has been for decades.

Mameblanche
Member

08-24-2002

Monday, October 08, 2007 - 6:38 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
I use their website for major medical info.

Meggieprice
Member

07-09-2001

Monday, October 08, 2007 - 8:39 pm   Edit Post Move Post Delete Post View Post Send Meggieprice a private message Print Post    
I have been reading this thread often lately. Not only do I live with chronic pain, but I have two friends here, Pam and Pamy, who I know have lived with unreal obstacles for years.

I wanted to share that my sister has a tenant in her back apartment who had fibro for many years, was addicted to many different drugs both for pian and for sleep. She started taking shark oil and felt it was a complete miracle for her. She takes no more drugs and is living a symptom free life. I know her experience is her experience but wanted to share it.

(Her name is ALSO Pam- I Know three people named Pam with Fibro. )

Anyway hugs and love to each and every one of you posting here, I know what it is to have your life guided by pain.

Pamy
Member

01-02-2002

Monday, October 08, 2007 - 9:36 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
that is strange, 3 Pam's with fibro. wow

shark oil? havent heard of that

Meggieprice
Member

07-09-2001

Tuesday, October 09, 2007 - 2:24 pm   Edit Post Move Post Delete Post View Post Send Meggieprice a private message Print Post    
Let me find out more about it.

Pamy
Member

01-02-2002

Tuesday, October 09, 2007 - 6:14 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Meggie, thx!

Seamonkey
Moderator

09-07-2000

Tuesday, October 09, 2007 - 10:03 pm   Edit Post Move Post Delete Post View Post Send Seamonkey a private message Print Post    
And I've met all three of those Pams..

Oh well not THAT Pam but I think Tater might also have fibro... and she's Pammie.

Meggieprice
Member

07-09-2001

Thursday, October 11, 2007 - 4:21 pm   Edit Post Move Post Delete Post View Post Send Meggieprice a private message Print Post    
My sister left a message today- it is called Sea Biotics, The Pam in question would be happy to have you call her Pamy.

Pamy
Member

01-02-2002

Thursday, October 11, 2007 - 11:04 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
oh that would be awesome! email me and I can give ya my #. thanks so much

Sunshyne4u
Member

06-17-2003

Thursday, October 11, 2007 - 11:04 pm   Edit Post Move Post Delete Post View Post Send Sunshyne4u a private message Print Post    
my chronic pain means massages are OUT

you guys sound like the level I was at in the early 90s

cross your fingers you dont end up like me. NOTHING works

worse still, I see specialists who keep on using 'fibro' standards on me when I am no where Near that level now. it is so dismissive.

going for a Followup with a new specialist tomorrow. The first visit went poorly and I am so worked up about how USELESS this is.

I am so tired of begging for some kind of relief.

until someone LISTENS to me and understands I am not just a "fibro" I will not get adequate treatment.

For years fibro was considered a Mental disorder. This stigma still follows

I have not read back....I'm just here to rant as I've had years as a medical professional and it is so demeaning for a doctor to lecture me about stuff and they are wrong, like thyroid theraputic levels and diagnostic TSH evaluation.

needless to say, no one likes to be made to feel stupid so I end up with a big strike against me. One day I hope to see someone who is truly a professional and understands I'm not an uneducated idiot.

I hate being talked down to especially when it is my specialty.

anyways, the mouth could rant on for hours but the hands wont type it.

Good thing eh??

Mameblanche
Member

08-24-2002

Friday, October 12, 2007 - 4:58 am   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
(((((((((((((((((Sun)))))))))))))))))
I hate that you are so frustrated. I have days like that and they are so debilitating. Don't give up, I do believe that someone out there has answers... just hope they are not in Antartica. I used to say that about the perfect guy for me... 'He's out there, but he's probably in Shanghai.' Actually he was in Italy! LOL.

Holly
Member

06-19-2005

Friday, October 12, 2007 - 5:39 am   Edit Post Move Post Delete Post View Post Send Holly a private message Print Post    
Sun, your comments on thyroid and TSH eval have intrigued me because last month, out of the blue, my doc's office called me following some routine bloodwork to say I had to start taking Synthroid. I'm leary about messing with hormones and thyroid meds without proper monitoring but his nurse simply says I needed it and would have to take it for life! Yet, my levels are described as mild hypothyroidism. I'm wondering if there's an alternative solution rather than being on synthroid?

Pamznic
Member

03-01-2006

Saturday, October 13, 2007 - 3:48 am   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
Howdy friends, It has been quite awhile since I have posted here but as I am awake at 3 am I thought I'd share my latest. After years of taking Pain Med's I decided to go off of just about everything. I haven't taken an Opiate for 8 days and tuesday my doctor and I will determine what other pain reliever I might go on. I have gone through this process on my own as I don't have the money or medical coverage to go through this properly. Without a doubt I stopped taking this med by shear mind over matter 10 yrs of opiate use by myself, I don't no where this will end but I am sure that my Fibro/chronic pain is still front and center. Wish me luck as I go through this and I shall keep you advise. My thoughts and good wishes are with you all.
Meggies Pam

Mameblanche
Member

08-24-2002

Saturday, October 13, 2007 - 3:02 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
((((((((Pamz)))))))))

Meggieprice
Member

07-09-2001

Sunday, October 14, 2007 - 3:15 pm   Edit Post Move Post Delete Post View Post Send Meggieprice a private message Print Post    
I finally e-mailed you Pamy- had a really rough couple of weeks with a reaction to a new medication, which I hoped would attack both pain and depression but Cymbalta was NOT the one for me! I sent you the phone number of the third Pam with fibro as she would be happy to talk to you, loves telling people her story and helping others with fibro.

I just had a long talk with Pamz- I am so freaking PROUD of her for attacking her pain med thing on her own. Her doctor basically left her on her own for two weeks and she quit on her own . Her strength, will, triumph of the human spirit- WOW- just wow!

I think people with fibro and chronic pain are some of the strongest people I have ever known.

Pamy
Member

01-02-2002

Sunday, October 14, 2007 - 3:26 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Thx Meggie!! prolly wont call til next weekend...looking fwd to it!

((Pamz)))

Sun, hope you are having a better day!

Holly, Sharina knows so much about alternate meds/vitamins, I would ck with her xxoxooxo

Sharinia
Member

09-07-2002

Sunday, October 14, 2007 - 4:55 pm   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
Pamy, I'm glad you mentioned my name, cause I didn't notice Holly's post

Holly, I have never needed thyroid myself, but have a folder full of notes on it from some smart friends (phds) who have gone the alternative route. I kept what they said just in case.

Here are some of their recommendations:

"Levoxyl is the generic form of Synthroid. Try finding a doctor willing to help you explore the use of Armour, biothroid or other desiccated thyroids."


"You can get low doses of armour online

http://nutri-meds.com/order_domestic_products.shtml

Also these folks may be able to hook you up with a doctor:

http://www.brodabarnes.org/

Getting a thyroid supplement will help you get rid of mercury. Maybe later, you won’t need the thyroid. Try to find an alternative doctor that will start with a desiccated thyroid supplement (like Armour or Nutri-meds) and then add in a T3 supplement (Cytomel)."


"You can get what is equivalent to a quarter grain without a prescription from www.nutri-meds.com The porcine usually works better than the bovine, but everyone is different.

If you only need a quarter grain, then the Nutri-meds is at a good price. However, Armour and especially Bio-throid are a lot cheaper when you start using higher doses. You have to be careful though. There are some insurance plans that want a high deductible when you purchase Armour or bio-throid. They may not be on their "approved" list. So the insurance company will charge you a $50 deductible for a ONE month supply. This is outrageous. It is much much cheaper to tell the pharmacist that you don't want to run this prescription through your insurance. Then it will only cost you about $25 to $35 for a THREE month supply of Armour or Bio-throid."


"For those with low body temps - Dr. Wilson (Wilson Syndrome) latest newsletter is quite informative. It's the issue entitled "WTS / I have more energy than I've ever had." The website URL is www.wilsonsthyroidsyndrome.com

http://thyroid.about.com/cs/doctors/a/topdocs.htm

More from Ray Peat:

www.efn.org/~raypeat

newsletters on hormones:

www.efn.org/~raypeat"


Hope this helps. You may also want to look for a thyroid forum on the net that discusses these alternatives - I bet it would be super helpful and you could find people to help guide you through it. gl!


Meggieprice
Member

07-09-2001

Sunday, October 14, 2007 - 5:30 pm   Edit Post Move Post Delete Post View Post Send Meggieprice a private message Print Post    
Sharina have you heard anything about the Sea Biotics I mentioned to Pamy? I know of someone who took them and not only cured her fibro but got off a life long use of many pain meds.

Pamy
Member

01-02-2002

Sunday, October 14, 2007 - 5:40 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
the last few days have caught up with me and I am not getting anything done today...I forgot(or remembered after I was away from home) to take the calm/corlean for 2 days, started back yesterday.....hoping it kicks in soon.

Shar, you are an angel to post that for Holly!

I am anxious to hear about the biotics!

Holly
Member

06-19-2005

Sunday, October 14, 2007 - 5:45 pm   Edit Post Move Post Delete Post View Post Send Holly a private message Print Post    
Thanks for noticing my post Pamy, and for all the information you posted Sharinia :-) VERY informative stuff!!

I'll start researching some of the alternatives you wrote about and let you know how it goes. Again, thanks gals :-)

Mameblanche
Member

08-24-2002

Wednesday, October 17, 2007 - 5:46 am   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
Got a whomping headache ... I wonder if its a migraine cuz it's lasted since yesterday afternoon. And still fighting fatigue, depression and irritability. I'm home today. I might go in (to work) this aft if I feel any better...

I was VERY upset yesterday aft. I wrote about it in my folder and in the Right Now thread. Not sure if my irritability came before my headache, but I do know I am in a funk right now, and just need to rest and regroup. I hope there aren't any repercussions from the job, (I was off last Wednesday too, cuz I spent all last Tuesday night in Emergency with my mom who'd fallen in the nursinghome.) I really think I began my tailspin right around then... and then I was exhausted by Monday from laundry Sunday, work and Curves on Monday. I wonder if the exhaustion/fatigue is the root of all this or if emotions triggered this in me physically. Hmmm. Chicken or Egg, what came first... eh? I hate when I get like this. I TRIED to rally myself this A.M. But just couldn't pull it off.

Karuuna
Board Administrator

08-31-2000

Wednesday, October 17, 2007 - 8:45 am   Edit Post Move Post Delete Post View Post Send Karuuna a private message Print Post    
Mame, I'm sorry you are not feeling well. It sounds like you've had an awful lot to deal with, and just need some down time to rest and regroup.