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Zachsmom
Member
07-13-2000
| Saturday, May 12, 2007 - 12:46 am
This is for those who have gone through it. When, and I ask again not as nicely, WHEN IN THE HELL DOES THE PAIN STOP? The insides of my bones are cold. It feels like someone took the marrow out and stuffed them with ice. I hurt so badly and pain meds do not work. I have taken 4 hot hot showers and it still does not warm me up. Who has gone through this and what was your relief? Between the meds and the chemo I do not think I can do this. Maybe let nature take it's course. And I am a tough cookie. Ask Sea. I just do not know how much more pain I can be in. I do not think I can do this.
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Sunshyne4u
Member
06-17-2003
| Saturday, May 12, 2007 - 12:54 am
what is your body temperature? take your temp. If you are below normal or above normal it makes a difference. I have reynauds (usually body temp 1-2 degrees below normal) so have the same ICE feeling you get. I also have severe chronic pain (no chemo) I dont want to post a bunch of stuff that doesnt help you. If your temp is high, the pain and cold feeling could be the start of a bad infection (especially if you've had a surgery) I have some ideas to sooth your discomfort but only when we rule out infection
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Sunshyne4u
Member
06-17-2003
| Saturday, May 12, 2007 - 12:56 am
by the way, I am bluish and cold before I even towel off when I've taken a shower. i've burnt myself by filling the bathtub with hot water from the tap since I'm soooo cold and in pain I cant feel the difference. Just saying I understand ...a little bit
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Zachsmom
Member
07-13-2000
| Saturday, May 12, 2007 - 1:50 am
Sunshyne..you know I adore you I just took an oxycontin (with Seamonkey's permission). I read your post and I do not understand the advice you are giving? This thread is for those who are going through chemo or have gone through chemo. My friggin bones hurt. To best explain (please excuse all spelling and gram errors and if you are concerned about grammar and speller, well, I flick you like a flea on a wet dog, and you all know which finger that is) My bones hurt at their most innermost core(feels like someone stuffed them with ice) and the outside of me is hot as a bitVH in heat. I am right now loopy from oxy and chemo drugs.
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Dolphinschild
Member
06-22-2006
| Saturday, May 12, 2007 - 1:57 am
Zachsmom, My temp drops to 96.5 and I get the freezing and can't warm up. I do that without chemo. I don't know if this will help, but what I have to do, to get my temp back up, (and I am freezing to the bone), I sit with a heating pad on my chest. I have to keep it at my chest and it helps. I don't know if you tried it or if it will work. Sorry for your pain. Don't give up. Zach needs you. Hugs...
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Mameblanche
Member
08-24-2002
| Saturday, May 12, 2007 - 6:54 am
Zmom, I'm also 'always cold' - that's just me. I have several SAFE heatingpads. They are called basically microwaveable beanbags, some are called Magic Bags (I think). Walmart and any pharmacy sells them. NEVER use a plug-in heating pad, severe burns can happen as a result. I have about 1/2 a dozen Magic Bags! I microwave each of them individually between a minute and a minute and a half (ONLY) and then one by one I put them under a blanket on the sofa or the bed, so that they warm up the length of the area where I am going to lie down. Once I get in I double up on the ones for my feet. In other words I sandwich my feet in between two of them. Then I put one on my chest, one on my back, on on my tummy or thighs, etc. NOTE - they make them all shapes and sizes. Squares, rectangles and horse-shoe shaped for neck and shoulders. It's WONDERFUL. Trust me. For me, its not about cancer, but always being easily and way too often freezing. And my feet get so cold, they ache terribly. I have found that using this method, is toasty and I like that its adjustable I can put these microwaveable beanbags wherever I need them on my body. When it's really bad, before I snuggle up with these heating pads, I also have a hot cup of herbal tea, so that my body is warmed from the inside AND the outside. I hope this works hon, I hate to think of you suffering... and hope this eases things for you at least a little bit. And remember -electric heating pads are dangerous. A doc in emerg once told me the worst and most common injuries he sees is from people who fell asleep with electric heating pads... I bless whoever invented the Microwaveable Magic Bags (and there are LOTS of good cheap knockoffs too, not all of mine are Magic Bags.) Good luck, Zmom!
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Lyn
Member
08-07-2002
| Saturday, May 12, 2007 - 9:47 am
My husband used a heating pad, dressed in many layers, had the heat wayyyy up (even in summer), wore a touque (and the hood of his hoodie up), sometimes wore his winter jacket in the house...and we snuggled under the covers constantly. (He said the last one was the best lol). I never could convince him to use the electric blanket Oh and he found that hot showers and baths helped but made him even colder a little bit later Hope you treatment cycle goes quickly and you're feeling better soon, Zachsmom 
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Seamonkey
Moderator
09-07-2000
| Saturday, May 12, 2007 - 10:39 am
Searching, I see a Thermo-pad said to be safe and instant and reusable. This Snuggle Safe Heating Pad sold for pets and said to stay warm for 12 hours after microwaving.
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Sunshyne4u
Member
06-17-2003
| Saturday, May 12, 2007 - 1:33 pm
okay, not a prob Zachsmom I was being vague as i didnt want to jump to conclusions that make not be accurate. If you are sure that there is no infection I'll add my two cents to all the other suggestions and add something that no one else has jsut to be different!. I like the idea of the warming bags or heating pads. since they can be a little $$ I have used two hotwater bottles (they are cheap to buy at the dollar store LOL) just watch out as they can burn ya if you are so cold you cant feel the burning (like I described in my earlier post) Anyways, as for that deep in the bone feeling....My grandpa was riddled with cancer and complained of the same thing. He found relief with TIGER BALM the red stuff! not white! It has a warming tendency and is deep penetrating for relief. just rememeber to wash hands after using it...if you rub eyes or touch privates it burns like heck. and if that fails.....Think of Roddy wearing those shorts hanging halfmast, all buff and rippled laying in the BB Backyard. That should help a bit LOL
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Sunshyne4u
Member
06-17-2003
| Saturday, May 12, 2007 - 1:34 pm

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Colordeagua
Member
10-25-2003
| Saturday, May 12, 2007 - 7:31 pm
A Wuvit? Kim was on Oprah not too long ago. Is chemo for breast or gyn cancer? Good web sites with message boards for those two: Breast Cancer.org Susan G. Komen For gyn: Hyster Sisters Cancer Concerns For all cancers: American Cancer Society ((((((Zmom)))))) I haven't been all the way where you are. I needed radiation, not chemo. And now it's time to take Tamoxifen tab. Only eight months remaining of five years!
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Lyn
Member
08-07-2002
| Saturday, May 12, 2007 - 8:50 pm
If the pain is from the cancer itself, Allan was given T3s and T4s...when that was deemed completely useless he was given morphine - which made him freak - so he was moved on to Fentanyl patches as well as Fentanyl liquid (given sublingually hourly for top offs). This gave him some relief...he was still in pain but said it was managable. (I bumped it up when necessary). Keep a daily log of your pain, rate it from 1-10 as well as comment how it's affecting your life that day. IE: Pain in (whatever area) is a 8...couldn't function, stayed in bed all day OR Pain in (whatever area) is a 3...took things slow but went about my day Bring this in to your oncologist so he'll have a better idea of how to help you
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Seamonkey
Moderator
09-07-2000
| Saturday, May 12, 2007 - 8:59 pm
Color, Zmom has non-Hodgkins lymphoma.
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Sunshyne4u
Member
06-17-2003
| Saturday, May 12, 2007 - 9:26 pm
then the tigerbalm should really help. My grandpa had bone marrow involvement...and the chemo is working on the bone marrow. Similar pain and discomfort I'd assume I think that any pain can be handled better if you know how long you need to ride it out. I'd suggest getting ahold of whomever gave the chemo and finding out how long the average person feels such pain. If it is two weeks for instance, then ya know.
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Juju2bigdog
Member
10-27-2000
| Saturday, May 12, 2007 - 9:33 pm
Just a minor point of interest, and I don't want to sidetrack the entire thread. I happen to know what a hot water bottle is because I grew up with a mother from Australia. It is a British thing, (usually) red rubber that you put hot water in and put in the foot of your bed at night to warm up your feet to get to sleep. I doubt that many Americans know what they are, and they are very hard if not impossible to find in stores. Canadians are closer to their British roots than Americans.
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Colordeagua
Member
10-25-2003
| Saturday, May 12, 2007 - 9:58 pm
Juju, I remember the red rubber hot water bottle. Sea, after I posted all that I figured she most likely had talked about it before, but I hadn't seen it. The American Cancer Society boards would probably be good for help. ((((Zmom)))) and prayers.
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Seamonkey
Moderator
09-07-2000
| Saturday, May 12, 2007 - 10:10 pm
We had one when I was a kid and I'm sure my parents had it for life.
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Jeneane
Member
05-18-2005
| Sunday, May 13, 2007 - 12:27 am
Zachsmom, I wish I could tell you there was an easy answer but when I went through chemo and my bones ached so much I thought I was going to crawl out of my skin, no meds worked. I just laid on the couch and groaned. The only up side was that it only lasted a couple of days and then got better until the next treatment. As I remember the Dr. said that unfortunately there were no meds that help. I am so sorry you are having to go through this but it does pass. I was about ready to quit the whole thing as well so I can understand your frustration and pain. Don't give up. I wish I could help or at least suggest something but I remember the last thing I wanted to here was a lot of people telling me how easy it was when they went through it so I am telling you as one of those it was not easy for. You will be in my thoughts and prayers. Be sure to mention all of this to the Dr. They did end up adjusting my dose so it was a little easier. Everyone has a different tolerance level and some extreme symptoms can indicate that it is too much medicine.
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Twiggyish
Member
08-14-2000
| Sunday, May 13, 2007 - 7:04 am
((Zmom))
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Colordeagua
Member
10-25-2003
| Sunday, May 13, 2007 - 7:11 am
I'm confused...is medical marijuana now legal in California? I had an on-line (and off-line a little) acquaintance in CA who went through chemo (different cancer) about three-four years ago. Her bones ached terribly. She used MM. She'd never been a smoker (of any kind) previously. She learned how. It relieved her pain greatly. I haven't had contact with her for some time. She has a business in the Los Angeles area with a web site. You could contact her through that. Knowing her a little, I feel quite certain she'd be happy to talk to you about it. She's a very friendly and warm person. Let me know if you'd like her name and web site.
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Colordeagua
Member
10-25-2003
| Sunday, May 13, 2007 - 8:03 am
And also, here's a direct link to the American Cancer Society / Cancer Survivors Network / Hodgkins and non- lymphoma message board. I found the ACS to be very helpful when I had my bout with DCIS (early BrCa). And one organization I did not -- Y-Me.
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Seamonkey
Moderator
09-07-2000
| Sunday, May 13, 2007 - 6:02 pm
I was wondering about medical marijuana.. yes it is legal in California and unfortunately the Feds are real jerks about it. Seems it might help for pain and for nausea. Zmom, I know you smoke anyway, but it also comes in brownies and cookies and such. Not sure where you get it (with prescription) around here.
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Karen
Member
09-07-2004
| Sunday, May 13, 2007 - 6:22 pm
You can contact the California Medical Marijuana Program. This link is to their FAQ page.
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Seamonkey
Moderator
09-07-2000
| Sunday, May 13, 2007 - 8:22 pm
I'm going to my doctor tomorrow and will ask him what he knows. That link had a link to County programs and Orange County (where I live and where Zmom lives, says ":not yet accepting applications"). I think our Board of Supervisors are dragging their heels.
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Zachsmom
Member
07-13-2000
| Monday, May 14, 2007 - 9:51 am
I am allergic to marijuana. If I smell someone who has smoked it my throat closes up. I will be okay. Pain is not as bad today. I have another treatment in 2 weeks and now I know what to expect. Dentist today to pull a couple of teeth. I hate this. At what point do I start losing my hair? I have four treatments. Those of you who have gone through this, how did you finally lose your vanity? I have since been pretty for many months, but I would like to look 'okay'.
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