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Hypogammaglobinemia - Questions and D...

The TVClubHouse: General Discussions ARCHIVES: Oct. 2007 ~ Dec. 2007: Health Center: Hypogammaglobinemia - Questions and Discussion users admin

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Archive through September 26, 2007Sunshyne4u25 09-26-07  11:56 pm
Archive through October 24, 2007Nightcrawler25 10-24-07  7:58 am
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Nightcrawler
Member

02-12-2002

Wednesday, October 24, 2007 - 8:07 am   Edit Post Move Post Delete Post View Post Send Nightcrawler a private message Print Post    
oh I stopped in to tell you all that I'm going to start my treatments today at noon or about 2hrs (Iowa time)
I got side tracked reading the good news that Sunshyne4u gave me.

I can't wait
I'm sick of being sick.

Sunshyne4u
Member

06-17-2003

Wednesday, October 24, 2007 - 3:25 pm   Edit Post Move Post Delete Post View Post Send Sunshyne4u a private message Print Post    
I sure hope it is that simple!

it could really help by Just being positive about the Chance that we may have figured out part of the problem.

depending on the specialty of your doctor they may dismiss my theory immediately. However, thru the years I have noticed the medical training of some doctors is not as complete as a person would expect. I actually have a specialist right now who didnt know that Thyroid normal Values have been dropped in 2003. I had to argue the point. SIGH!

Sunshyne4u
Member

06-17-2003

Wednesday, October 24, 2007 - 3:43 pm   Edit Post Move Post Delete Post View Post Send Sunshyne4u a private message Print Post    
I'd like to say that the values of the blood samples makes all the difference. Some tests are not done as part of blood donation.

anyways, I decided to do a quick search and found this article. Anything that you find that interests you could be asked during your next visit. Do ask the doctor though, the nurse hanging the product does NOT have training ((although I find most nurses FEEL that they know better than doctors or Lab personnel LOL))

anyways, here is a link and Way down at page 6-7 there are lists of causes and medications that will give a false LOW result.

I was quite surprised to see extreme athletics and Stress to cause this condition!

http://www.ccjm.org/PDFFILES/Rose2_06.pdf

I have no idea how expensive things are there but a good Naturopath could probably give you a list of good Vitamins/ herbs and minerals to encourage immune system healing.

Hope things go well for ya. I do appreciate the hug even if only for giving you some hope

Nightcrawler
Member

02-12-2002

Thursday, October 25, 2007 - 7:43 pm   Edit Post Move Post Delete Post View Post Send Nightcrawler a private message Print Post    
quick note
the ivig went fine it did take 3hrs
evry time that they would up the rate that the iv would ran I would get worm all over and my hart would burn a little ( like when they give contrast for a ct) so the took it slow but all went well

Sunshyne4u
you are right again
down here they don't check the leavle of antibodys
for the blood drives.
so there goes that:-(
I'll post more latter
nc

Sunshyne4u
Member

06-17-2003

Thursday, October 25, 2007 - 10:59 pm   Edit Post Move Post Delete Post View Post Send Sunshyne4u a private message Print Post    
No the level of Antibodies wouldnt be tested. I know that.

Tprot and Albumin levels would most likely be though. Albumin is taken off of samples put out as a separate Blood product.

you are thinking too specifically. If your immunoglobulins were low then, so should the TPROT and the albumin would be normal range.

also, if you are a regular donater WITH defective cells, this will really affect your body and your immunity due to the removal of 2 pints of your blood.

I really have NO idea how often you donate. But if you had an abnormally LOW wbc count or your cell factions looked abnormal, you would have been rejected. That is what I mean.

I should call our local Red Cross and see what battery of tests are run. I know that the nurses who deal with patients and collect the stuff do NOT know what we do/ have a rudimentary knowledge of the intricacies.

Anyways, Like I said quite a while ago, your past medical file will tell you the story.

Take care.

Nightcrawler
Member

02-12-2002

Tuesday, November 13, 2007 - 8:13 pm   Edit Post Move Post Delete Post View Post Send Nightcrawler a private message Print Post    
sorry it has been so long from the last time I posted
I had lots of over time latey we are very short staffed
I work in a grope home for the handy caped

I guess the stuff is working I'm still coughting alot and my nose is stuffed up all the time

so I'm not sure I'm better or not

I guess I
have not had to see the doctor thats a +

for what it did cost I guess I was hoping I would be all better right away

I'v been doing this sick all the time thing for so long I was just wanting to be well

but I guess still sick but not sick anuff to go to the doc. is better then nothing:-(

I go in for the next one on tuesday maybe it take more them 1 to get thing going

nc

Juju2bigdog
Member

10-27-2000

Wednesday, November 14, 2007 - 7:54 am   Edit Post Move Post Delete Post View Post Send Juju2bigdog a private message Print Post    
Hope it gets a whole lot better for you and soon, NC.

Sunshyne4u
Member

06-17-2003

Thursday, November 15, 2007 - 4:02 am   Edit Post Move Post Delete Post View Post Send Sunshyne4u a private message Print Post    
Group home for Handicapped. Hard tiring and emotionally draining work.

Wow, you are being worn out from all sides eh?

Well, Chin up we are rooting for ya.

Nightcrawler
Member

02-12-2002

Monday, December 03, 2007 - 1:56 pm   Edit Post Move Post Delete Post View Post Send Nightcrawler a private message Print Post    
well now i have had the 2nd round of this ivig
I must addmit I do fell better then I have in a long time.

kind of like I fell in the summer
better but not great

there was some one eles getting the same thing and he was going on a year of it and said it took him 3 mos of it to really fell alot better
so I hope I have just 1 more to go
then I will fell as good as the rest of u
nc

Sunshyne4u
Member

06-17-2003

Wednesday, December 05, 2007 - 4:42 pm   Edit Post Move Post Delete Post View Post Send Sunshyne4u a private message Print Post    
thx for the update.

I had a laugh at the "Feeling good as the rest of us". many of us are Chronic Fatigue Chronic Pain people LOL

You wouldnt want to feel 'as good as me' or you might want to jump off of a bridge or something LOL

((that was a joke by the way, I have found i'm being taken literally when I type goofy stuff....so that was my disclaimer LOL))

Nightcrawler
Member

02-12-2002

Thursday, December 06, 2007 - 9:33 pm   Edit Post Move Post Delete Post View Post Send Nightcrawler a private message Print Post    
ok u got me there

I hope to fell better then the rest of u

Bookie (my loveing wife)
is never sick so maybe as good as Bookie fells.
(God I hope our kids take after her in the heath department)

Sunshyne4u
Member

06-17-2003

Monday, December 31, 2007 - 1:45 am   Edit Post Move Post Delete Post View Post Send Sunshyne4u a private message Print Post    
almost another month later....hope you had a good Christmas and dont despair if results arent coming up as fast as you thought they might.

Christmas is a stressful busy time and that knocks all of our immune systems low for the season.

HEre's hoping that the New year will 'do the trick'.