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Pamy
Member
01-02-2002
| Friday, September 28, 2007 - 7:46 pm
I dont want ANYONE to stop giving advice here!!! I need this thread!!! I love hearing what has worked for others, I may try some of those things or I may not....someone else may try the ones I dont try...doesnt matter....it is great to have a place HERE at my net home(TVCH!) I dont want to surf web looking for tidbits of info This thread also helps me to share my pain with ppl that understand. It was a God send during the worst month of pain I had. Even though my family say they understand I know they cant...no way can they feel this pain but you all DO know and it helps just sharing here. I dont want anyone to ever stop helping each other here!
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Mameblanche
Member
08-24-2002
| Friday, September 28, 2007 - 8:23 pm
Not to worry Pamydoll, I started this thread for myself and others and also the Chronic Pain thread, and I asked to have them amalgamated when this was the thread everyone gravitated to, while the CP thread disappeared. What I like best about this thread is that while we are all different, and cope with various physically painful situations, we are not alone. We can share our frustrations and know there are folks who can sympathise and in many cases EMPATHISE. And while I don't always agree with each post, it's a tremendous learning curve discovering what has and hasn't worked for people. For instance I hate chiropractics, in my own experience, it hasn't been helpful one iota to me. BUT I know folks who swear by it, and who love it as much as I love and rely on massages. So I don't often mention my negative opinion of chiro. And I TRY to be nice about it nowadays. I used to be adamant and vehement that chiro was a snake-oil business, and full of gimmicks and shysters. Since learning how helpful its been for others I tend to keep my trap shut (for the most part) about my feelings on the subject. As I get older I am TRYING (in fits and starts) to listen more openmindedly and to share my opinion in a non-insistant way. They say that even though someone may start a thread, it's not really 'their' thread, but I have to admit, of all the threads I've started here, this is my pride and joy. When I read how much its helped others... I can't begin to say how great that makes me feel. I do not believe there is one cure-all for everyone and everything. But I guess sometimes we can't help ourselves from becoming overzealous about what works for us, and want to shout it to the world at large. If I could, I'd give everyone a microwaveable beanbag, a personal massage therapist, and a jaccuzzi! Cuz that's what works for me. LOL. Sorry... rambling rant over. My back is screaming at me, its so damned sore. I have got to turn off the computer and finally lie down with heat and T3s. PS/ EVERYONE who has EVER posted here in this thread has helped me in one way or another, and I appreciate it beyond measure. GENTLE HUGS.
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Resortgirl
Member
09-23-2000
| Saturday, September 29, 2007 - 6:37 am
I'm sorry I was cranky last night. It just drives me nuts when people want to compare pain.. eg. mines worse then yours kind of stuff... pain is pain, some have higher pain threshholds then others. I gave birth to three kids, 2 over 9 pounds without drugs, but getting my teeth cleaned is painful as hell to me. This new "pain" I'm having is so unfamiliar to me because it affects my activity level. Anyone that's met me knows I'm usually in highspeed motion and this is just kicking the crap out of me. I don't want sympathy at all though... just some ideas, of which are in abundance in this thread.
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Skootz
Member
07-23-2003
| Saturday, September 29, 2007 - 7:02 am
My idea....come back to Canada, remember the pain was all gone when you were here 
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Juju2bigdog
Member
10-27-2000
| Saturday, September 29, 2007 - 1:31 pm
I was unaware that Tylenol with codeine had become a prescription drug in Canada. I bought some a few years ago by asking at the pharmacy. How about aspirin with codeine? Is that now prescription only too?
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Skootz
Member
07-23-2003
| Saturday, September 29, 2007 - 2:06 pm
no, tylenol with codeine is not a prescription here in Canada, if you get any higher strength tylenol then #1, you have to have a script. Asprin with codeine I assume you can still get that...the products with codeine you have to ask the pharmacist to get it for you but it is still available upon request. Hope this helps juju. ETA...I use tylenol with codeine as my way of dealing with coughing in my family..codeine is a natural cough suppressent and I use it before any cough syrups as I find they don't work well. (the codeine tylenol was reccommended by my doctor to use it for this, and I wouldn't trade it back for anything)
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Zachsmom
Member
07-13-2000
| Saturday, September 29, 2007 - 5:02 pm
RG, do they know what is causing your pain? or do you have an unknown diagnosis? have you thought about going to a pain specialist? i think you need to be careful of any type of narcotic as those can be VERY addicting. does your insurance offer counseling? that may help as you stated you had thoughts of drinking. do you have a close friend or sponsor in AA? i am worried about you and hope and pray that your pain goes away soon. 
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Resortgirl
Member
09-23-2000
| Saturday, September 29, 2007 - 5:40 pm
Zmom, as of yet there is no official diagnosis. I had a Lupus test that came up positive back in March. The doctor wasn't sure if it was in fact Lupus because the test was barely positive. They are retesting now... for that, arthritis, Lymes, and other diseases. Don't worry about the pain stuff zmom. My drug of choice was alcohol. I hate pain pills because they make me feel shitty or weird in the head, but sometimes the pain is so bad I'd be willing to trade ONE day of shitty for one day of no pain. I normally end up tossing pain pills after they have been in the cupboard for a year or so. Anyway, I've got my AA pals and my friend Skootz to keep me on track with the alcohol, so don't fret. Thank you for caring!!
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Zachsmom
Member
07-13-2000
| Saturday, September 29, 2007 - 6:07 pm
keep insisting on lupus testing. it's a hard disease to diagnose. do you have a history in your family?
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Juju2bigdog
Member
10-27-2000
| Monday, October 01, 2007 - 8:34 am
Yes, thanks, Skootz. Just what I wanted to know. We have had a bottle of aspirin with codeine for a couple years without needing it, and now we are on the road and Bigdog has a toothache and is taking the aspirin with codeine for pain while he waits for the penicillin to kick in. So we may need some more one of these days.
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Sharinia
Member
09-07-2002
| Monday, October 01, 2007 - 4:04 pm
The doctor wasn't sure if it was in fact Lupus because the test was barely positive. are retesting now... for that, arthritis, Lymes, and other diseases. RG, I was in a very similar situation about eight years ago. I tested ANA positive 1:160 and my rheumatologist was waiting for it to develop into full blown lupus. I also had C3 & C4 bloodwork that was out of range, confirming a diagnosis of inflammatory arthritis, and got a fibro diagnosis (with the 'points' test), among other things. It was a very scary time for me, particularly because I was suddenly becoming very allergic to everything and reactive to medications. The most respected allergists in the chicago area were telling me NOT to take the meds that my rheumatologist was prescribing because I could have a fatal reaction. And my rheumatologist was freaking and telling me I 'had to try' or I would become crippled. Fun times, huh?? So anyway, this forced me to look for alternatives. What I learned from integrated MDs is that these are just 'labels' for underlying imbalances in the body that can be reversed -- ie, cured instead of just 'managed.' I was able to reverse all of my rheumatological symptoms and bloodwork in a matter of months by treating candida and staph infections in a hard core way, correcting some nutrient deficiencies, caring for my adrenals, and a few other related things. I never had those problems again. Every MD I've ever seen who has learned of my history has been very impressed. Like we always say here 'everyone is different,' but my understanding is that my case isn't unique at all in the world of alternative medicine - these are common results with these kinds of approaches if you commit to them in a *hard core* serious way. Here is a book I would highly recommend (to everyone here, actually) http://prestigepublishing.com/cgi-bin/htmlos.cgi/00245.1.661621326844224171 This author is extremely well respected in the world of integrated med. Integrated docs around the country send their worst patients to her and she cures them. http://www.thepowermall.com/thecenterforhealth/bio/rogers.htm Also, wrt lyme. Most docs don't use state of the art lyme testing and often you will get a false negative, unless you are catching it early. The lymies I know would tell you to seek out a 'LLMD' (lyme literate md) http://www.lymediseaseassociation.org/ Hope I didn't overwhelm you with TMI ... Again, I am not meaning to offend or sound pushy or anything - YMMV etc etc. Just sharing my opinion and experience and what I have learned 
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Kstme
Member
08-14-2000
| Monday, October 01, 2007 - 4:36 pm
I am here to moan and groan! Saturday night I fell down a flight of stairs. From the top to the landing. Did a somersault and the whole nine yards. For some very surprising reason, I didn't break anything, but my body has more bruises than I can count. I 'thought' I was sore yesterday, but, my oh my, today has been 300% worse. Every muscle, tendon, ligament, joint, and any connective tissues in the body hurts! Add that to the Fibro/Lupus issue and I am NOT having a good time today. I know it will be better, but I really needed to whine. The stupidest part of all of this...Thekid is on vacation, right? Her parting words were, 'Mom, don't do anything dumb, cause you always hurt yourself!' Well, this happened cause I was moving Maggie's metal kennel upstairs! I haven't told Thekid and I DON'T want her to know just how incredibly unco-ordinated I was! AND, how right she was! I have three days to hope the bruises that are visible will lighten up. I have one that goes from my big toe all the way across the top of the foot. Numerous small bruises on my arms and hands. I can hid the ones on the rest of my body with clothing. Dang, I need a keeper!
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Mameblanche
Member
08-24-2002
| Monday, October 01, 2007 - 4:44 pm
OMIGOSH (((((((Kstme))))))), you could have broken your neck - or worse! Have you gone for exrays? Or seen a doctor? Are you taking anything like muscle-relaxants and painkillers? Hot baths, icepaks, heating pads, the works! Feel better soon hon! I can just imagine how sore you are... my heart goes out to you. Even if you are a klutz, just like me!
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Pamy
Member
01-02-2002
| Monday, October 01, 2007 - 6:05 pm
(((Kstme)))
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Seamonkey
Moderator
09-07-2000
| Monday, October 01, 2007 - 6:25 pm
{{{Kstme}}}
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Ginger1218
Member
08-31-2001
| Tuesday, October 02, 2007 - 4:08 am
Kstme, have you ever heard of Arnica Gel? It is great for bruises
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Wavelength
Member
07-25-2007
| Tuesday, October 02, 2007 - 4:53 am
Morning everyone! Although my pain is new and may not end up being chronic, I thought maybe someone has gone through what I have and can help. Two weeks ago I had what seemed like an ordinary cold. I developed pain under my ribs on the right side that was excruciating every time I breathed. I had to learn to breath very shallow. The doctor said it was pneumonia and I was on antibiotics for 10 days. I just finished the medication yesterday and today the pain has traveled to my back just under my shoulder blades and it is the same pain while breathing. God forbid I yawn, or cough!! Just wanted to see if this sounds familiar to anyone. I'm thinking it has turned into pleurisy.
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Pamy
Member
01-02-2002
| Tuesday, October 02, 2007 - 5:15 am
did you cough alot during thu pnemonia?? if so you might have a rib out of place...that happens to me and it hurts to breath...have to go to Chiropracter and they adjust it back in....immediate relief
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Pamy
Member
01-02-2002
| Tuesday, October 02, 2007 - 5:17 am
RG and Kstme, hope you are both feeling better today! xoxxoox
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Kstme
Member
08-14-2000
| Tuesday, October 02, 2007 - 8:32 am
Wave, I'd definitely call your dr. and see what he says or what he recommends. Thank you, thank you! I am feeling a bit more energetic this morning. BUT, WOW, these bruises are looking more and more psychedelic as the minutes pass! They're even brighter than the black eye I had this summer. I hate being a klutz! You'd think since I can see now, I wouldn't be so accident prone, wouldn't you? HMPH! At least, I only have one skinned area...the right foot. The left foot is the one with the bruise from hell. My bum is feeling better this morning, though! Yea! Mame, I can't take any meds. I just need to let these muscles heal up.
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Rubyroo77
Member
08-13-2005
| Tuesday, October 02, 2007 - 4:53 pm
I am so surprised by this thread- Wow- I didn't realize so many have chronic pain/fibromyalgia. Wave-Pamy is right- it could be a rib..I have had to have many fixed lately..one of my chiro's taught my son and hubby how to put them back. I was reading some of the posts here. I have had fm for about 22 years. I feel for all of you! I was wondering (don't know if this was mentioned) if any of you drink or eat anything sweetened with aspartame. If you do you should look up the symptoms of aspartame poisoning. It's pretty fascinating. Kstme- I am so sorry about your fall..ouch!
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Pamy
Member
01-02-2002
| Tuesday, October 02, 2007 - 6:06 pm
Welcome Ruby!!! I have tried to cut back on diet coke, I was drinking 6 day, figuring it was 0 calories, so didnt matter, I am down to 1 and day and weaning off that
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Resortgirl
Member
09-23-2000
| Wednesday, October 03, 2007 - 4:00 am
Thanks Pamy! I am feeling better. Now that I'm off the Prednisone although it did help with the pain I was feeling, but what a price to pay! The doctor called yesterday and all but two of my tests results came back and all were fine. The two that are out yet are Lupus and Lymes. He did say that he thought he would see some changes in the blood tests for the other things though. Like kidney, liver function, if I had Lupus... I was at work so didn't get to ask too many questions. If they all come back "normal" I guess we are back to the drawing board. I have an appointment with a rhuemotologist in November... I hope everyone has a pain free day!!
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Sunshyne4u
Member
06-17-2003
| Friday, October 05, 2007 - 3:34 am
Lymes testing is really unreliable. If I recall correctly the test misses up to 80% of positive cases. Nonspecific / nonreactive results yet the person is clinically "Lymes". I did all kinds of research when I was 'diagnosed' with a negative test result. The specialist was doing research of some kind with the local Medical University. snip* In one year-long study by Dr. Sam Donta, MD, done on chronic Lyme patients, the initial ELISA tests proved to be more than 66+% inaccurate The conclusion of the researchers was: "the proposed Western Blot reporting criteria are grossly inadequate, because it excluded 69% of the infected children." i snipped those from a Lymes site. There are some more specific tests out there though. Just so that if Your test comes back negative, it MAY not mean you dont have the condition.
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Pamy
Member
01-02-2002
| Friday, October 05, 2007 - 6:27 am
Kar/Sharina....I got the corlevan and calm. I started taking 1 scoop of the corlevan in the am....do i take the calm at nite? or 1 dose in am and pm also..corlevan, it says to start slow with 1 scoop.....do you take 1 scoop in am/pm? i took 1 scoop yesterday and didnt feel anything different, so prolly ok if i take more tia
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