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Pamy
Member
01-02-2002
| Friday, August 03, 2007 - 3:44 pm
Dovez! well you shoulda stopped by maybe ya can honk on your way home I didnt know heat made it worse...I have found that when it goes from hot to cold it hurts more. I thought cold made it worse, who knew? Pam, no I dont get that, will have to ck it out...also need to ck out the aol thing Dove mentioned. Yes! I would love to chat more when you feel like it. Thanks again, ya all have helped me today!
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Kstme
Member
08-14-2000
| Friday, August 03, 2007 - 3:56 pm
grumble, grumble, grumble. I was diagnosed with Lupus in 1983 and the fibro jumped in just to mess up what little mind I had left. Pamy, I know you've been having a bad few weeks and so have I. I'm thinking it's the weather, stress, weather, stress and yea, more of that 's' word! All I did today was groom the pups. Didn't bathe them, just combed, clipped hair and nails and I was done for. This morning I went to get butter out of the refer in the garage. Got out there and absolutely could not remember why I was standing there. I HATE THAT! About a half hour later, I remembered. Damn, it's so embarrassing! I can't take anything except Advil. Allergies. I do have a drink when it's beyond dealing with and the pain is out of control. I'm glad we have the fibro thread back! Pamy BIG gentle {{{{{hugs}}}}}
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Pamy
Member
01-02-2002
| Friday, August 03, 2007 - 5:03 pm
Kstme,..OMG! Lupus AND fibro....I cant even imagine....our dear friend had lupus for years and I saw first hand what a horrible disease it is. she had the type that caused open sores on her face along with all other stuff. (((Kstme)))
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Pamy
Member
01-02-2002
| Friday, August 03, 2007 - 5:07 pm
ps, at least with the frig incident it was only you that knew LOL...lately I have been having trouble remembering saying good morning to staff...so I say it...forget ...then 20 min later, say 'I'm sorry I musta missed ya walk in, Good morning!!' and they look at me like HUH? so I finally told them all about the fog..and now I dont know if I still do it cuz they all just say 'no prob, Good morning to you too' LOL They are good to me in that kinda way, I am very blessed to have great staff, friends, and TVCH family/friends!!! xxoxoxoo
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Retired
Member
07-11-2001
| Friday, August 03, 2007 - 5:24 pm
(((Pamy, Kstme, Pamznic, Dovez))) and anyone else suffering.
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Kstme
Member
08-14-2000
| Friday, August 03, 2007 - 6:12 pm
Pamy, yep, have that one too...I concentrate so hard not to forget something I over compensate for it and keep on saying the same thing, but I don't remember that I've said it! If I didn't laugh about it, I'd go nuts! I truly believe that people do understand when you explain 'why', but I hate to tell anyone about it, except close friends. Yet, here I am blabbing on tvch...go figure! Yes, I can associate with friends not understanding when you're sick. Cause we look GREAT, don't we?? Something I have found very interesting. I rarely get sick, like cold/flu sick. Maybe once every five years. I know a few others with fibro that are the same. I always say that I am the healthiest sick person I know! Pamy, you just went through a nasty bronchial thing, do you catch colds/flu often. With the Lupus, Pamy, I have been incredibly lucky. It affects my eyes only. Major iritis attacks over the years. No other organs have been hit. I do have psoriasis from it and that's a thrill a minute...NOT!
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Pamy
Member
01-02-2002
| Friday, August 03, 2007 - 6:48 pm
yes, I think ppl with fibro have to have good sense of humor, otherwise I think we would be too depressed to get outta bed ....I get flu/broncitus a couple times a year...prolly cuz I hqavent quit smoking...which i know prolly isnt helping with fibro. I am glad you dont have that type lupus, but any type is still not good I would imagine. well it is very healing for me to know ya all are here and we can all help each other
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Seamonkey
Moderator
09-07-2000
| Friday, August 03, 2007 - 7:01 pm
{{{Pamy, Pam, Kstme and Dovez}}} Seems some of the nicest people are plagued with fibro Dovez and Pamznic, good to "see" you posting! Anyway, soft hugs to all.
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Kstme
Member
08-14-2000
| Friday, August 03, 2007 - 7:24 pm
Pamy, I still smoke! Not giving it up anytime soon, either. Drs. won't even address the issue with me anymore. Today, I have the fibro cough thing going strong. It's not deep in the lungs, it's upper chest, kind of in the middle of my throat and it will last until the attack is under control. Tommy was so used to it, it wouldn't even wake him and it can get really persistent! If I were on a plane, I'd probably be kicked off! Sea and Retired, thank you! It is good to have a place to vent our aches and pains and it's so great to see others here. NOT that it's great that they have this sh!t, but it's great they can talk about it. I still remember the day the fibro was diagnosed. I'd been having some pretty bad burning sensations throughout my body. I called it 'the lupus burn'. I finally mentioned it to the dr and he flipped out! It was kind of funny, really. He, basically, told me, not Lupus, nope, this is the new fun stuff, fibro, and you're going to love what this one does to your body! Whoohoo! I remember, in high school, I would be so tired I could barely walk through the halls. I was in drama and modeled quite a bit and I would take cat naps whenever I could. By boyfriend who is also my ex-dh, never understood what was wrong with me. When the whole Lupus thing was finally diagnosed, I called him and told him that I did have a name for the crap and it wasn't in my imagination! <we were/are friends> I think, having actual words put to what was wrong with me, helped so much. I only wish someone had found it earlier!
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Pamy
Member
01-02-2002
| Friday, August 03, 2007 - 7:40 pm
Kstme, never heard of fibro cough...does it feel like ya have broncitus when ya get it?? maybe that is what I have and taking these anitboitics are in vain I hear ya on the cat naps. I live for my noon cat nap when I am at wk...
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Kstme
Member
08-14-2000
| Friday, August 03, 2007 - 9:24 pm
Pamy, the cough is different than a bronchial cough. It's hard to explain. Higher in the chest, sort of up where you might get a deep throat tickle and have to cough that out. Thekid says I sound like a cat coughing furballs! haha I've had this for about ten years now. It usually starts about the third day into a really bad attack. Sometimes, it doesn't happen. Nothing is consistent with this stuff, is it? Since the Lupus and Fibro both attack my joints and surrounding tissues, sometimes I'm not sure which starts it off. I always have water with me but that won't stop it when it gets going. It drives me nuts!
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Pamznic
Member
03-01-2006
| Saturday, August 04, 2007 - 9:05 am
Kstme, I wasn't familiar with the cough (in my readings) that you spoke of but, I get it from time to time. Just as you described. WOW it's so cool to be able to talk and learn from like minded people. Love this thread.
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Pamy
Member
01-02-2002
| Saturday, August 04, 2007 - 9:12 am
aahhh well knock on wood I dont think I have gotten that cough then I feel a little better today, I havent cried yet! going to try that foot thing in an hr, I will let ya all know how it goes. Thanks again for helping me thru a very bad day!
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Pamznic
Member
03-01-2006
| Saturday, August 04, 2007 - 9:19 am
Pamy - So glad your feeling better today. Somedays when having a day like you did yesterday I tell myself tomorrow WILL be a better day. Very simplistic but it almost always works. Can't wait to hear about the foot detoxics most likely it will in any case feel great on your pinkies. P.S. knocking on wood as we speak 
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Kstme
Member
08-14-2000
| Saturday, August 04, 2007 - 12:55 pm
Pamy, how did the foot thing work out? I am so glad you're feeling better today. I have found, through the years, that you can feel the attack come on, it progresses along to the point that you think you absolutely can't take another day of living like this and the next day you're better. I've always referred to it as 'hitting the wall'. I have also found that I have far fewer days of feeling good than I did even a year ago. BUT, a lot of sh!t has happened this year, so I guess it makes sense AND I am getting o l d e r...ack!
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Kstme
Member
08-14-2000
| Saturday, August 04, 2007 - 12:56 pm
Oh Pamy, the news ran a story about the foot detox things here and they didn't give them high marks. They said a plain, very good foot bath could achieve the same feeling. Let me know what you thought.
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Pamy
Member
01-02-2002
| Saturday, August 04, 2007 - 1:26 pm
well the water changed color into deep red brown..gunk floated at top, and lots of dead skin after I took them out....feel no different....I will see how I feel tomarrow.....if nothing else had a great visit with my dear friend 
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Theowl
Member
09-28-2000
| Saturday, August 04, 2007 - 1:36 pm
I have a friend that has FM, and I saw a snippet on TV news about Miraplex, a med for Parkinsons disease, that they are giving FM patients. I told her about it and her Dr. gave it to her, and she feels GREAT!! She has so much more energy, and not near in as much pain as she has been it. I talked to my Dr. about it, but he won't give it to me. No reason. Have you guys heard of, or tried it? 
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Pamy
Member
01-02-2002
| Saturday, August 04, 2007 - 1:38 pm
no, wonder why your doc said no. I will ask mine and see what he knows about it
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Theowl
Member
09-28-2000
| Saturday, August 04, 2007 - 1:52 pm
Well Pamy, for one thing, he says that all of my pain is only arthritis. I have all the symptoms of FM, but since I was in a motorcycle accident when I was 19 and did a lot of damage to my body, that's it. 
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Kstme
Member
08-14-2000
| Saturday, August 04, 2007 - 1:57 pm
MsOwl, I have so many allergies that I've given up trying new meds. This is a great heads-up for those who can take them, though! 
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Retired
Member
07-11-2001
| Saturday, August 04, 2007 - 2:02 pm
(((Owl)))
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Pamy
Member
01-02-2002
| Saturday, August 04, 2007 - 2:14 pm
Owl, sounds like ya need a new doc that might be open to possiblity ya have Fibro.
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Pamznic
Member
03-01-2006
| Saturday, August 04, 2007 - 6:42 pm
MsOwl - It is very likely that the accident would indeed have triggered the onset of FM. Very different animal then arthritis. Not to sound ugly but it might be time to look for another Dr.
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Pamy
Member
01-02-2002
| Saturday, August 04, 2007 - 6:54 pm
one of the tests for fibro is to rule out arthritis, isnt it? Owl I went thru 3 docs before one even mentioned fibro to me. but really I dont know if it matters if you have a fibro diagnosis....no cure, they say nothing really helps...you can get pain meds for arthritis so I guess if you like the doc for other things it is good to keep him. anyone know if you can get disability for fibro? I think it is so hard to prove you are in god awful pain since you look ok...and since most of us put on happy face to hide pain
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