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Archive through August 03, 2007

The TVClubHouse: General Discussions ARCHIVES: Jul. 2007 ~ Sept. 2007: Health Center (ARCHIVES): Fibromyalgia & Chronic Pain (ARCHIVES): Archive through August 03, 2007 users admin

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Pamy
Member

01-02-2002

Friday, August 03, 2007 - 1:38 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
MODS! we have asked in the last 2 threads on this subjuect to please! not delete thread...we like to have it to refer to as needed....yet it keeps getting deleted!!!

there was a ton of great info in last thread that was copied because 1st thread was deleted...now that is lost AGAIN!

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 1:50 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
Thank u Pamy I don't no u personaly yet, But we have a mutual friend Meggie she mentioned that we suffer from this crappy (fibrofog again) can't think of the word. GEEZ, How long have you been diagnosed?
pam e.

Pamy
Member

01-02-2002

Friday, August 03, 2007 - 2:05 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Pam, aahhhh love Meggie!!

I have had it for over 2 yrs(diagnosed). I have good and bad days (pain wise) last month has been more like bad and very bad days! Doc took me off work for a week, I broke down at office today, said I just cant take this anymore, I have to force myself out of bed, use all my energy to work, weekends I spend much time resting to get caught up from week.....then I get depressed looking around house at all stuff that needs to be done.

I am getting that fog now, kids at wk laugh at me but sometimes I cry inside cuz I feel like I am losing my mind and cant stop it. I have started crying everyday and never did before, I am afraid my fibro is progessing and I dont like feeling like this.

My close friends have recently told me they can see thru me more now than ever, they tell me they can see the pain in my eyes even though I try and joke and laugh.


I cant clean like I used to and it depresses me that our house isnt pretty anymore.

I have meds that take edge off but nothing really helps 100%. I tried accupuncture and that didnt help(but i am going to try another guy, last guy was little creepy)

main thing that helps me is massage...but I cant afford to do it weekly.

i just hate even complaining about it...I am used to being life of the party....not pity party

Pam, how long have you had it? Do you have a lot of pain? or is it mostly the fibro fog that is affecting you right now? Do you have the depression that comes with fibro?

I think talking here helps, sharing ideas etc,,,,,there were tons of links etc that Mame put here but I guess Mods felt not important so they keep deletin tnis thread

Karuuna
Board Administrator

08-31-2000

Friday, August 03, 2007 - 2:13 pm   Edit Post Move Post Delete Post View Post Send Karuuna a private message Print Post    
Pamy, honestly, it's not that we think it's not important. It's just that it is very hard to have special status for any one thread, and to remember to treat it differently

We'll see what we can resurrect for you.

Pamy
Member

01-02-2002

Friday, August 03, 2007 - 2:16 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Kar, it wasnt just the Fibo thread, there were a couple others on main diseases that were asked to be kept for reference.

I learned my lesson...anything posted here is gettin put in a word doc from now on. I just hope Mame has time to pop in and repost some of her stuff

Karuuna
Board Administrator

08-31-2000

Friday, August 03, 2007 - 2:19 pm   Edit Post Move Post Delete Post View Post Send Karuuna a private message Print Post    
Pamy, keep in mind that we have to really trim back in order to fit the tens of thousands of BB posts also.

It's really not very good for the board to keep threads around that aren't getting used, since the more posts we have, the slower the performance.

We really do the best we can, just can't please everyone.

Pamy
Member

01-02-2002

Friday, August 03, 2007 - 2:20 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Kar, ps I am sorry to sound so cranky...it is just not a good day, freakin fibro!

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 2:33 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
I was actually diagnosed in 1989 and eventually had to leave a really good job and apply for SSI which I've been on since 1997. I am like you and choose to live my life as upbeat and positive as possible but I am in a great deal of pain everyday. The worst for me is lack of sleep (thus the serious Fibrofog) I don't want to appear like a downer so I won't go into it to much but, Having people who can identify helps so much. I do take a depression med. cuz chronic pain IS depressing. But I have learned in the 18 yrs of actual diagnosis that keeping positive is really important. Easy to say but often hard to put into work.

Nancy
Member

08-01-2000

Friday, August 03, 2007 - 2:34 pm   Edit Post Move Post Delete Post View Post Send Nancy a private message Print Post    
Kar--if you want to trim some you can delete my knee pain thread--i don't need it anymore..

Juju2bigdog
Member

10-27-2000

Friday, August 03, 2007 - 2:36 pm   Edit Post Move Post Delete Post View Post Send Juju2bigdog a private message Print Post    
((((Pamy))))

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 2:39 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
I have tried so many things over the years I'd love to share if you'd like to talk more off line etc. please feel free to contact me. I haven't been posting for over a year so I really rusty. May need your help in that arena.
Just so you know, summer does seems to be hard on us folks.
I pray you get some relief soon...
please keep in touch.

Pam

Pamy
Member

01-02-2002

Friday, August 03, 2007 - 2:42 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Pam, ITA!! wow since 1989!?? you must have had a great doc because I went to 3 docs for a year and no one even mentioned the possiblity until I went to last doc, he saw all my tests, did the fibro test and told me I had it.

I have read that until recently many/most docs didnt even acknowlege it is real!!! so thank God you had a great doc!

I agree talkin about it helps, esp with people that have it.

I guess I was guilty for not posting more often in last thread...but like you said we try and stay upbeat...I would read the info but many times not respond, didnt have energy or didnt want to acknowlege in my mind that I was in such pain, I guess.

Sleep used to be a prob, but Trazadone helps me so much, I still wake up every 2-4 hrs but at least I get sleep. I feel if I have slept 4 hrs in a row I have slept thru the nite! LOL

Dont worry about being a downer, Id like to know more about your fibrofog, since I seem to get it more and more.

I think that is going to be the hardest part of this disease....the pain I can hide from others....looking like an idiot cuz I forgot what I said 10 min ago is harder to hide LOL

Pamy
Member

01-02-2002

Friday, August 03, 2007 - 2:45 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Doc gave me 2 shots today and I cant stop crying today, 1 was b vitamin for energy and one was antiflamitory...cant remember what it was....would those cause crying??

thank God Bill took Dylan out for day...I hate that his first day back I am such a mess

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 2:55 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
sooo true about the fibro fog....
If you get a chance talk to meg about how it affects me. I am most embarressed about two parts of this illness. Extreme lack of energy and forgetting what I'm talking about or what I've already said. I am a talker and for some unknown reason I talk more when uncomfortable or sick with the wonderful things that accompany Fibro. Sorry bout the spelling can't locate my dictionary at the moment.

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 3:01 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
Pam
It's hard to say if the shots are making you emotional but consider this. When you are having an extreme day 1) Do you actually need more pain control, as it is my experence that to play catch-up with pain is really difficult. 2) Sleeping 4 hours (which is my magic number also) is extremely rough on people like us.

Pamy
Member

01-02-2002

Friday, August 03, 2007 - 3:05 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Thx Juju! aaahh Nancy, you are sweet.
xoxoxo

Pam, if you dont want to post what you have taken here you can email me.

It might help others to hear what you have tried also, but if its too personal to post please email me...would LOVE! to hear what you have tried
xoxoxoxox

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 3:05 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
One more aspect that I have real trouble with is I have a handicap placard and won't use it unless my daughter or Dad push me, In that same vein, I do not like to disclose my illness cuz most people don't care (get alot of "But you look so good") and I am sick of explaining it.

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 3:07 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
I just didn't want to take up to much space. I don't have any probs with talking here if it's okay with the Mods.

Karuuna
Board Administrator

08-31-2000

Friday, August 03, 2007 - 3:07 pm   Edit Post Move Post Delete Post View Post Send Karuuna a private message Print Post    
((( Pamy )))

Pamy
Member

01-02-2002

Friday, August 03, 2007 - 3:09 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
God works in mysterious / wonderful ways.

I have beeen sitting here crying and feeling sorry for myself and RING RING on the phone...it is a dear friend(my dance teacher since I was 13) calling to tell me about this new foot bath thing that pulls toxins out of body and her friend with fibro tried and felt better!!!

then she is talkin and mentions a chro/accupunture friend,,,,guess what I need??? my chro pushed me to curb last week (my insurance didnt pay enough for him..pffft)

I am going to try the foot thing tomarrow, I feel a little ray of light :-)

Pamy
Member

01-02-2002

Friday, August 03, 2007 - 3:18 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Pam, thank you for talking to me today, I didnt realize how much I needed it today until the emotions started pouring out.

Pam, I hear ya bout people saying you look fine...some days I wish I could put a big old body cast on so people could see I hurt LOL

yes I take more meds on bad days, I have a really high dose one that I save and only use on extreme days...not daily like my other med...I have taken the high dose one about 4 days last week..it didnt help

Pam, did something specifice make you post today, are you having a bad day? is something progressing that is bothering you? I dont want to keep whining about me...want YOU to be able to whine in here today also! :-)

(((Kar))) thanks for understanding...again sorry cranky earlier....I know you are having a bad year also, so your hug means a lot.

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 3:18 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
That is excellent -
I believe in trying everything and then in a few years trying it again. Some of my friends get great results from having message and other swear by accupunture.
Do you subscribe to the Fibromyalgia Network magazine?

Dovez
Member

08-27-2005

Friday, August 03, 2007 - 3:26 pm   Edit Post Move Post Delete Post View Post Send Dovez a private message Print Post    
hi all,
just have to jump in here.
i've had fibro for years and have learned a few things:
do try to eat a non toxic diet. a really good nutritionist can point you to foods that help with inflammation. infact, aol health series had an article posted yesterday about that very same subject.
avoid heat. these hot days are killers for us. try to stay cool so as to keep the body temp down.
sleep tapes can be very helpful. i cannot take sleep meds as they have the opposite effect: i am hyperactive on them.

all-in-all, life style modification can help. once i kinda fell into step with the symptoms and quit fighting the diagnosis, my mental health gradually got better. when i am really symptomatic, i go the rest route. and i also go over what i've been doing or eating that might have caused a flare up.
i do know that high altitude is a instigator. and, pamy, you will appreciate the fact that i am up at big bear....7000 ft high as i write this. actually, i just drove up here an hour ago so i passed you!

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 3:30 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
I have a few more tips that help me but I'll save them for later. I hope you can get some rest. My Niki is feeling neglected as her Mom has been playing online for awhile, that BB is hard to break away from.
Take care, perhaps later we can chat more.
Best Regards, Pam

Pamznic
Member

03-01-2006

Friday, August 03, 2007 - 3:36 pm   Edit Post Move Post Delete Post View Post Send Pamznic a private message Print Post    
Great points Dovez, so wonderful to have people who understand to talk to about all this. Thanks again to you too Pamy. TVCH ROCKS!!!!