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Gidget
Member
07-28-2002
| Wednesday, September 26, 2007 - 6:35 am
i had a cat on prednisone and it made her crazy too.
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Sharinia
Member
09-07-2002
| Wednesday, September 26, 2007 - 6:26 pm
Hey Kar - glad it seems that the stuff you ordered from NEEDS is helping You know I was thinking, you might want to consider doing separate trials with these and your new med so you can know for sure the impact each one is having. Here are some comments from users of Natural Calm - thought you might find these interesting .... http://www.evitamins.com/product.asp?pid=4196
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Sharinia
Member
09-07-2002
| Wednesday, September 26, 2007 - 7:00 pm
RG, I can sympathize with what you are going through - predinose can be awful I have been though the whole nine with this stuff, and I will be honest with you - it takes a LOT of commitment and suffering to get well, but it can be done. It's very common for hard core healing of many serious conditions to lose a ton of weight to the point of being skeletal. This really is not a bad thing. I can point you to some good books and web sites that explain this if you would like. I know many people (like myself) who were very underweight during their healing of candida, leaky gut, etc etc, and looked like hell. You won't die from eating a limited diet. I actually went for almost 2 months eating literally NOTHING because I had become allergic to all foods, and I still survived. I was on a strict anti candida diet for years. In fact, for a couple I could only tolerate a handful of foods because of widespread allergies. I spent about 5 years writing everything I ate on a calendar and stayed on a strict rotational diet. It was sheer hell. But here's the good news. I can eat absolutely anything I want now. I am pain and allergy free, and haven't taken a single med in almost 5 years. I am amazed at the number of people here with these types of problems. Like I promised Pamy, I'm gonna have to post some websites and info for y'all...
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Sharinia
Member
09-07-2002
| Thursday, September 27, 2007 - 4:14 am
yikes i see that i completely butchered the word 'prednisone' lol - sorry btw, did you know that steroids exacerbate a candida infection, and leaky gut, etc? the unfortunate thing is that many drugs can end up making you sicker - i am saying this as someone who has taken a ton - everything my drs told me chronic pain and allergies often stem at least in part from an inbalanced gut, and that can take many months or even years to correct. you may need to rely on meds initially - sometimes it is really necessary - but ultimately the goal imho should be to try to wean yourself off so you can truly heal. i think you know what i mean - some of these meds can put a lot of stress on your gut and liver, whether you are aware of it or not ... again, jmho based on my own experience, that of many people i have known, and many years of reading about this stuff. it is a real cure and very worth it - but admittedly it's not easy.
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Karuuna
Board Administrator
08-31-2000
| Thursday, September 27, 2007 - 6:13 am
Sharinia, I agree with trying to figure out which helps the most. Corvalen is often taken with magnesium to enhance its effects. It's more for increasing energy with some pain relief than it is for releasing spasms. The mag is for the spasms, so they seem to work on different issues, right? As for the meds, I do think I will try to ease off all prescription meds to see if these more natural meds are doing the trick. I do not think the new med is helping at all with the spasms etc, but I think it does help me get to sleep. As the pain grows less, I'm thinking I won't need it.
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Zachsmom
Member
07-13-2000
| Thursday, September 27, 2007 - 6:53 am
kar, if you are on prednisone, do not stop cold turkey! when i went to pain doctor he suggested steriod injections every 3 months. i could not do them as i was being tested for addisons and could not take steriods. that was when i was put on oxycontin. that helped with the pain, but it was VERY addictive and hard to wean off from.
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Mocha
Member
08-12-2001
| Thursday, September 27, 2007 - 7:05 am
Oh yeah prednisone definately needs to be tapered off.
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Karuuna
Board Administrator
08-31-2000
| Thursday, September 27, 2007 - 7:06 am
Oh, I'm not on prednisone. I was on lyrica, tapered that off, and for the past two weeks or so have been taking Zonagran, but I don't like the side effects.
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Zachsmom
Member
07-13-2000
| Thursday, September 27, 2007 - 7:08 am
ah sorry! i misread.
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Resortgirl
Member
09-23-2000
| Friday, September 28, 2007 - 2:52 am
sharinia, Thank you for all the great information! I have been told about a leaky gut, but I don't really understand it. I guess when the chiro is telling me about it I've been in so much distress that I don't have the energy to ask many questions... Zmom, can you tell me why it's bad to go off prednisone abruptly? What happens? I stopped taking it on Wedneday. I just couldn't think straight. I felt like drinking again, quitting my job again... my head was in a place to make very poor decisions. I had some left over Tylenol 3 and took one the other day and it actually did help. It's never really helped before and that's why I had some left. I think they gave it to me for the pain I had after the bad injection they gave me months ago. I'll take it when things are intolerable. That isn't a prescription drug in Canada, so I wish I would have bought some when I was there. It's just never worked very well for anything I've taken it for before.. oh well, back to visit Skootz!! Kar, I hope that all you're going through is going to be better soon. I can't imagine what you've gone through. My stuff has only been since February.. I know you've been suffering a lot longer then that! Prayers and positive thoughts to all!!
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Zachsmom
Member
07-13-2000
| Friday, September 28, 2007 - 9:28 am
RG- suddenly going off is not good. this is the warning i received from my pharmacist when i refilled my last script. If you suddenly stop taking prednisone, your body may not have enough natural steroids to function normally. This may cause symptoms such as extreme tiredness, weakness, slowed movements, upset stomach, weight loss, changes in skin color, sores in the mouth, and craving for salt, and may cause death.
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Sunshyne4u
Member
06-17-2003
| Friday, September 28, 2007 - 2:13 pm
I havent popped in here for a long long time. it strikes me that people may come here looking for solutions. I want to say that everyone can have a different level of Fibromyalgia and Chronic pain or Sudden onset of Pain can be caused by many completely unrelated things. there is not a solution that works for everyone. In a matter of fact, if you have a true condition it doesnt just Disappear unless you have eliminated the CAUSE from your life. ((Like I get the the worst full body pain/ migraines from canned tomatoe sauces and processed tomatoey foods )) most doctors will use a shotgun approach and just give out the "usual" meds. whether a person responds well to them is truly chance. I supposedly had "fibro" for years and it didnt stop me from being athletic, horseback riding etc. The only thing it truly affected me in was Ability to hike fastpaced for hours at a time. Pain was being accepted as part of life and I just went on with normal life. Part of having an illness is acceptance and often a bit of counselling is needed for people who have lost fun passtimes. Luckily for me I lost things in chunks thru the years. If it was all at once, like post car accident I would have gone completely wacky!! *** Now, fully disabled in so many diff ways from a number of Diff things I've gone to Fibro Support Groups and was left disillusioned and shaking my head. Never went back to one ever again. Chronic Pain Groups were even more diverse. People of all different stages looking for 'fixes or meds' to help rid themselves of a normal part of condition. Personally, I think that a Fibro thread relates to pain in a completely different way then a Chronic Pain thread. CFS and Chemical Sensitivity also can be related but again are technically separate conditions. you can have one but not the other three. or in combinations. ***
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Sunshyne4u
Member
06-17-2003
| Friday, September 28, 2007 - 2:21 pm
Another condition is IBS, leaky gut, malabsorption syndromes which can stand alone or be part of the others. Sharania's post lays out what worked for her. As for me, I never lost ONE pound but doing a severely restrictive diet for years on end finally let me realize which foods really messed me up (increased pain, some caused swelling, some caused migraines./ others made me feel like I'd been hit by a truck) I am not sure Why I am posting these things here OTHER than to maybe throw out a alternate view that there is no magic 'fix'. there are people who went to a few meetings I've attended that i could tell right away that they were no where near disabled and just needed abit of help trying out the 'simple solutions'. anyways, I've completely lost my train of thought at this point. Severe lack of sleep and here in Canada they do not give out those heavy duty drugs that i've seen people here mention. by the way, Prednisone caused a 15 lb weightgain in ONE day. It was all bloating water IMHO and caused major Brain Problems due to the increased intracranial pressure. It is not a fun drug and i refused it after a week. I'd rather save it for a time where I'm desperately in need so my body isnt used to it. I was on it after even Adrenaline and injected antihistimanes never controlled by allergic reaction.
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Resortgirl
Member
09-23-2000
| Friday, September 28, 2007 - 3:09 pm
Sunshine, when you say they (Canada) don't give out those heavy duty drugs are you talking about Tylenol 3? I'm sure Skootz said that you don't need a prescription for that. I'll ask her in case I misunderstood. It's too bad that you have had to get used to being in pain! What a bummer. But it's great that you were still active and enjoyed life. I know that I will get to a point that I will have fun again damnit! Even if it kills me! LOL! I know that I for one am not looking for an "easy" fix. Maybe some answers and alternatives, but I know it won't be easy. Thanks for all the info!
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Sunshyne4u
Member
06-17-2003
| Friday, September 28, 2007 - 3:15 pm
Tylenol three with CODEINE is a prescription drug (for awhile you could get it over the counter) And no I'm not stupid. Tylenol three is not a heavy duty drug. some of the other drugs mentioned here and in other threads ARE **** If you are having pain and swelling chances are the chiropractic is helping you along. My chiropractor had me going 1-3 times a week back in the 80s when my chronic pain started really causing me lifestyle problems. It took a while before it became obvious that the treatments were making me worse. I might have been 'aligned' but the soft tissue swelling was severely painful for a couple of days each time. <48>
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Resortgirl
Member
09-23-2000
| Friday, September 28, 2007 - 3:22 pm
Thanks for clarifying that. No use going back to Canada if I can't get good drugs....
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Sunshyne4u
Member
06-17-2003
| Friday, September 28, 2007 - 3:26 pm
if your pain is cured by tylenol three you arent anywhere near what I live with day to day. That is what I was trying to make clear. everyone is different and at different levels. I'd hate to think someone goes in and requests a major med when a milder one or better yet a lifestyle change would fix them up so life is tolerable.
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Resortgirl
Member
09-23-2000
| Friday, September 28, 2007 - 3:30 pm
Sunshine... First of all my pain isn't cured by tylenol 3. It was mentioned by zmom that it helped her, so I tried it and it helped more then the plain tylenol I can take. Second of all, I was doing my absolute very best to be light hearted with you because I know that you are very sensitive, and although your posts made me feel a little tense I didn't want to make you feel bad when I know you're trying to help. Please lighten up. You'll feel better.
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Kstme
Member
08-14-2000
| Friday, September 28, 2007 - 4:44 pm
Sunshine, I think I understand what you're saying. I try not discuss my aches and pains very often, because, inevitably, someone has some type of 'cure' that is 'sure' to work. For me, that's never going to happen. I try not to give advice on what someone else should do/use, either. I DO try to give support for those afflicted. I will give input as to what I may be feeling from time to time. Pamy had the best description for what I called 'the burning sensations' and when I described it to the drs., I heard, 'That's what it is!' Pamy you said you felt like glass shards were just under the skin and it was the perfect description! Anyway, Sunshine, we all get frustrated and fed-up. We all want to feel better and we all hope for a cure/s. It's natural.
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Karuuna
Board Administrator
08-31-2000
| Friday, September 28, 2007 - 5:04 pm
Personally, I like all the suggestions and discussions, since I haven't had much help from the docs, and they often don't tell you the things your friends will. No, not everything they suggest will work, but something might, and I still believe I can and will get better! I think all adults realize that if we throw out ideas, we don't expect someone to take us up on every one. It's just something that we had experience with, or worked for us. This isn't a place to get medical advice. It's just friends sharing stories and ideas about what worked and didn't work for them.
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Mameblanche
Member
08-24-2002
| Friday, September 28, 2007 - 5:42 pm
Well my back is very sore tonight and I'm quite grumpy from the pain, so I'm overcompensating by being extremely goofy in various folders tonight. My chair at work is crappy but it was the best of 3 I had to choose from. I do have tylenol 3's and may take one so I feel better tomorrow, cuz I intend to get my butt (and back) over to Curves for the first time in about a year on Saturday. Oh and I'll be snuggling up to some of my infamous microwaveable heating pads tonight too. Very soothing...
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Mameblanche
Member
08-24-2002
| Friday, September 28, 2007 - 5:44 pm
(((Gentle hugs for all in pain)))
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Sharinia
Member
09-07-2002
| Friday, September 28, 2007 - 6:14 pm
Sunshyne, I'm not sure if your post was in response to mine in trying to share some advice/suggestions (it sounded to me like it was). I am certainly not trying to judge, irritate or offend anyone - just offering what I know in case it might help someone. I agree that we are all different, and have stated that in this thread. As far as the weight loss I mentioned - I simply wanted to let RG know not to be alarmed - because not just I, but many others have experienced this in our healing. And more importantly, MDs and NDs who specialize in this feel that it is 'okay.' I know of others on restricted diets who like you haven't lost weight. Like you say, everyone is different ... I also agree that there isn't one 'magic fix.' I think that healing can involve a lot of trial and error and a LOT of hard work. But I believe that there are certain factors that we all can consider. Like for example, you said that certain foods trigger your symptoms. We can all test for that or do a diagnostic diet to find out if any foods are contributing to our symptoms. Same with environmental factors. I also believe that these types of sensitivities can be eliminated, no matter how severe. I know this because I have done it myself, and I did it with approaches I learned from others, including health care professionals. I'm not saying that every approach works for everyone, but I know that it is possible to get the body back into balance. I've healed not only debilitating allergies and mcs btw, but asthma, fibro, inflammatory arthritis, an autoimmune condition, carpal tunnel, polycystic ovaries, colitis, chronic sinusitis, pms, adrenal exhaustion - and multiple chronic infections like candida, parasites, and staph, and mercury and aluminum poisoning - and probably other things I am not remembering. These were medically documented btw. Admittedly it wasn't easy. We all have our own unique challenges and obstacles. I was very very ill for a few years and frankly wouldn't be here if others had not shared their experiences and knowledge. So of course I feel indebted and want to pay it forward if it can possibly help someone. Are you familiar with the work of Dr Sherry Rogers?
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Sharinia
Member
09-07-2002
| Friday, September 28, 2007 - 6:15 pm
(((hugs mames)))
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Sharinia
Member
09-07-2002
| Friday, September 28, 2007 - 6:42 pm
thanks Karuuna - I feel the same about sharing suggestions here (and other sites) About the magnesium. It can possibly help with muscle spasms, and it actually can give you an energy boost too if you are deficient, and also help with sleep. Like I said though, if you don't have a magnesium deficiency, then it probably wouldn't help with any of these. Because while all of these symptoms can be caused by magnesium deficiency, they of course can also be caused by something else (or both). And again, it is very possible that even if you tested okay for serum magnesium (the standard test), you have a 'hidden' rbc deficiency. From what I understand, some degree of mag deficiency is actually quite common - I believe 57% of the population? I am getting this info from Sherry Rogers MD btw. She's highly respected in the field and I admire her a great deal (fwiw)
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