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Archive through September 03, 2007

The TVClubHouse: General Discussions ARCHIVES: Jul. 2007 ~ Sept. 2007: Health Center (ARCHIVES): Fibromyalgia & Chronic Pain (ARCHIVES): Archive through September 03, 2007 users admin

Author Message
Pamy
Member

01-02-2002

Wednesday, August 22, 2007 - 5:17 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
yes very sad, I loved him on Fame

Mame, glad you were able to sleep, hope tonite is good nite also!

I took the flexril this morning and other than my noon power nap I wasnt sleepy/groggy, didnt feel any thing actually

Pamy
Member

01-02-2002

Saturday, September 01, 2007 - 1:23 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
well I had 2 decent weeks and starting yesterday my pain is on the upswing again:-(

I have so much I want to do on this long weekend and I am just so frustrated.

I have thrown up once and feel like doing it again due to pain

Sharinia
Member

09-07-2002

Saturday, September 01, 2007 - 2:07 pm   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
oh Pamy I am so sorry to hear this

you're not gonna believe this but I used to have serious fibro! and I actually cured it and wonder if I might know a few things that could help you.

how long have all of you had this? have any of you tried or considered alternative approaches??

i can't believe i've never noticed this thread! i know exactly what you all are going thru..

Pamy
Member

01-02-2002

Saturday, September 01, 2007 - 2:16 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Shar, I am open to any and all suggestions!
I have tried some things but nothing helps on the very bad days

you cured it???!!! yes! tell us!! There are a few of us here at tvch with fibro and I know they would all love to hear any advice suggestions you have!!!

Mictay
Member

09-29-2006

Saturday, September 01, 2007 - 3:18 pm   Edit Post Move Post Delete Post View Post Send Mictay a private message Print Post    
Pamy,I hope you are feeling better.My thoughts are with you.

Babyruth
Member

07-19-2001

Saturday, September 01, 2007 - 3:29 pm   Edit Post Move Post Delete Post View Post Send Babyruth a private message Print Post    
(((((((((()))))))))))

Sharinia
Member

09-07-2002

Saturday, September 01, 2007 - 3:35 pm   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
well first let me say that I totally believe that we are all individual, so I would never suggest that if everyone does exactly what I did that it would work for them.

but I sincerely believe that this is curable for just about everyone. so have hope!!

i know i am a bit younger so you might not think i was that ill.... but believe me, i was a worst case... i am so not kidding. i also had autoimmune stuff and inflammatory arthritis, and well i could go on & on ...

to some extent i think we all need to find our own path. our bodies obviously can respond differently to different treatments. I also think that everyone may have some variation in the underlying causes.

but imo, there are some common underlying factors that all fibro sufferers should consider and try to address in a way that works for them -- like toxicity, nutrient depletion, hormonal imbalance, and low grade chronic infection, particularly in the GI tract. food and chemical sensitivities can also exacerbate it (as you may know)

obviously this isn't something that can be cured overnight - i was sick for years - but if you are willing to plug away at these things consisently and keep trying, it is truly amazing how the body can heal.

i would be happy to talk to any of you in more detail either here or over email. don't be shy - you can tell/ask me anything!

others helped me heal - this is an illness where it really helps to network and share ideas and experiences imo

believe me, i have been thru it all... hell and back

you all have my empathy and total support! hugs xxoo

i am still 'healing' btw - but haven't suffered any rheumatological probs for several years

Pamy
Member

01-02-2002

Saturday, September 01, 2007 - 4:45 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Mictay and Ruthie..thank you and hugs back to you! well another day wasted..sigh....I pray I feel better and can get my stuff done tomarrow and monday.

Pamy
Member

01-02-2002

Saturday, September 01, 2007 - 4:46 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Shar, thanks for sharing. I would love to hear more. If you dont mind I think sharing here would benefit so many.

Sharinia
Member

09-07-2002

Sunday, September 02, 2007 - 10:25 am   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
Pamy, I would be happy to share more here. I am just not sure where to begin. Have any of you heard of the dysbiosis or GI tract connection to fibro? Have any of you seen an integrated or 'alternative' MD who treats fibro/cfs?

Pamy
Member

01-02-2002

Sunday, September 02, 2007 - 10:31 am   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
I havent.

Ginger1218
Member

08-31-2001

Sunday, September 02, 2007 - 1:43 pm   Edit Post Move Post Delete Post View Post Send Ginger1218 a private message Print Post    
Sharinia, what kind of doctor treats it, is it a Rheumatologist?

Pamy
Member

01-02-2002

Sunday, September 02, 2007 - 2:32 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
my doc is a doc of homopathy or something like that but he doesnt specialize in fibro

looking forward to hearing from ya Shar!

Sharinia
Member

09-07-2002

Sunday, September 02, 2007 - 3:38 pm   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
Ginger, yeah, I was treated by a rheumatologist initially. That would be the 'conventional' wtg. The thing is though, they generally just help you 'manage' your symptoms but don't cure it.

Pamy, you are doing homeopathy?? that is very cool if you are. It sounds like you are open to alternative stuff then (yaay :-))

I was like most people initially and just went the conventional route for health care. I very lucky that an open minded infectious disease specialist let me know about MDs who specialize in fibro/cfs.

So what these docs typically do is give you a stool (or sometimes urine) test that looks for an imbalance of fungi and bacteria in your gut.

I know this might sound weird if you've never heard this before, but it is actually well accepted in the alt med community, and I know TONS, I mean TONS of people who have cured all sorts of probs using these tests.

Because oddly enough, newer science has discovered that most of your immune system lies in your gut. And when your gut flora is out of balance, you feel like crap -- fibro pain, fatigue, sinus problems, IBS, allergies, endo problems, even heart irregularities and on & on can be linked to this.

I had the highest lab scores available for candida and staph bacteria in my gut.

I took an herb called uva ursi that was a HUGE help with my fibro -- knocked the baddies in my gut right out. There are many herbs that you can try, actually. Sometimes your bacteria/fungi may be naturally resistant to some herbs or meds. You can get tested for this, or do some trial & error. You really don't even need a test or to work with a dr necessarily, but it can be helpful.

And like I said getting the toxins out is also part of it (cleanses, detox baths, saunas, etc), and restoring your nutrient and hormonal balance if they are out of whack. Diet and environment are also part of it.

Of course, I am not a doctor and I have to put in the disclaimer that this is not meant to be 'medical advice.' It is just my own personal experience and that of many many others that I have met over the past 7 years.

You would be surprised at how many people have had amazing success with this stuff, and unfortunately the mainstream medical establishment has yet to really embrace it, though I think they are starting to...

I'll gather & post some web sites in case any one is interested.

Sharinia
Member

09-07-2002

Sunday, September 02, 2007 - 3:39 pm   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
btw Pamy how are you feeling today??

Pamy
Member

01-02-2002

Sunday, September 02, 2007 - 4:02 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Shar, thx for sharing the info..and yes I am interested in more/the sites!

yes! I am open to anything....last mo I went to accupucture/did the toxins out footbath thing/ massage/chro/even went to spiritual counselor!....nothing would make it go away....it just kinda got better(tolerable) after I took 5 days off work.

ya know what is ironic? the spirital advisor kept telling me she saw stomach trouble/problems with me...I kept saying no, stomach never bothers me...so what you are saying makes sense to me.

I guess I go to a Trader Joes type place to find that herb?

Sharinia
Member

09-07-2002

Sunday, September 02, 2007 - 4:45 pm   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
yup, the ironic thing is that you may not even feel this 'infection' or imbalance in your gut. Mine was practically off the charts and I think it got so bad b/c my gut just wasn't symptomatic for some reason.

But believe me, once I started treating my GI tract, sooo many symptoms went away. I mean it was like a miracle Pamy - unreal. Asthma, severe allergies, arthritis, carpal tunnel, polycystic ovaries, PMS, on & on... all of this stuff cleared up.

Getting the toxins out is a much longer process and a long term cure. I am still working on that. Although if you do it hard core, you can start noticing changes in 3-12 months. The fastest way is saunaing, but I had probs withstanding the heat.

Detoxing is really key for a long term cure. Cause when you are full of toxins, it weakens you in so many ways and makes you vulnerable to the chronic infections that underlie this illness. Toxins mess with your hormonal balance and interfere with nutrient uptake. They also make you vulnerable to cancer I believe and all sorts of diseases, so it is really good to try to get them out.

But it's not something that typically brings short term symptom relief. Although sea salt/baking soda baths (full body soaks) can be helpful (have you tried those??)

Trader Joe's or Whole Foods might carry uva ursi. It's available over the net for sure. I have more to tell you about this, but I'll do it in another post...

I do believe also that the spiritual component is important - but I'm not one of those who thinks that it's a cure all, ya know?

I am a big fan of energy med, though I've never actually tried acupuncture. But I love qigong and do that at home, plus some other stuff that is a bit more esoteric but derived from acupuncture. Hypnosis actually has done wonders for me.

But the interesting is that all of that stuff worked really well *after* I treated my gut, and others I've known have experienced the same thing.

Anyway, like I said... I'll gather some sites for ya

Nanac
Member

08-26-2007

Sunday, September 02, 2007 - 5:23 pm   Edit Post Move Post Delete Post View Post Send Nanac a private message Print Post    
I have beenreading your story about fibro, I have had it for the better part of 20 years now.I remember when they told me there was nothing wrong with me that a good shrink would cure. I was very young when it started, my late teens and then it didn't bother me again till my late 20's. I have been suffering with it now for a long time. Your idea's sound real interesting. I wish you had been around when they explain it to me . Thanks for the info.Talk to you later.

Pamy
Member

01-02-2002

Sunday, September 02, 2007 - 5:30 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
very interesting Shar!! I am going to see if I can find the uva.

havent done the bath...my friend has a foot toxin thing that I have done twice...but then I heard that that was just a crock...so who knows...I have seen different ppl do it and everyone;s water always came up different....

Pamy
Member

01-02-2002

Sunday, September 02, 2007 - 5:31 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
oh ps... I am little better today...was able to do 2 things on my list :-)

Pamy
Member

01-02-2002

Sunday, September 02, 2007 - 6:24 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Nanac...welcome!!!! I hope you will continue to post here...I swear this thread has helped me so much!!!!

Sharinia
Member

09-07-2002

Sunday, September 02, 2007 - 6:46 pm   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
oh ps... I am little better today...was able to do 2 things on my list

yayyyy - i know what that means :-)

yeah, i know some ppl who have done the foot things too (there are also foot pads that supposedly pull gunk out). some swear they help. i have never heard of anyone totally curing fibro this way but i can believe that they might help with detox

so P do you buy into the concept detoxing in general or are you still skeptical?? you know you can be straight up with me and i won't be offended this stuff is all pretty flaky and quacky and dubious sounding at first. i could suggest some stuff to read if you wanna learn more

Nanac, thank you for posting. I'm so sorry that you've had the fibro for so long. I've actually met women who had it for 20+ years and then got cured. I really hope the info I'm sharing here can help. I would be happy to try to answer any q's anyone might have.

Pamy
Member

01-02-2002

Sunday, September 02, 2007 - 8:18 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
well I didnt feel any different after the foot thing but like ya said takes awhile....its a good excuse to go visit with my friend so thats a plus! :-)

I am open to anything...nothing will be too crazy for me to try!

my fibro does seem to peak 1 wk before my period...does that happen to ya all? oh and the great thing is I found out I am peri menopause sooo I was getting them every 2 wks! I am now back to 1 time a month...so now I will get the joy of menopause to enhance the fibro

good thing I have sense of humor or I would just crawl in bed every day and stay there

Juju2bigdog
Member

10-27-2000

Sunday, September 02, 2007 - 10:33 pm   Edit Post Move Post Delete Post View Post Send Juju2bigdog a private message Print Post    
Pamy, the good news is that menopause only sucks half as bad as peri-menopause. The bad news is peri-menopause can last three or four years.

Sharinia
Member

09-07-2002

Monday, September 03, 2007 - 4:33 am   Edit Post Move Post Delete Post View Post Send Sharinia a private message Print Post    
I am open to anything...nothing will be too crazy for me to try!

yaaay that's the spirit!!!

btw my fibro was worse before my period too