Author |
Message |
Pamy
Member
01-02-2002
| Monday, September 03, 2007 - 7:35 am
LOL Juju...thanks so much for that ray of hope cant wait to hear Shar's ideas!
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Sharinia
Member
09-07-2002
| Friday, September 07, 2007 - 5:07 pm
pamy, of course I haven't forgotten ... I'll try to post more info this weekend (or this week for sure) how you been feeling??
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Pamy
Member
01-02-2002
| Friday, September 07, 2007 - 6:25 pm
Shar, sounds great! I am doing ok..little sore but bearable 
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Sharinia
Member
09-07-2002
| Friday, September 07, 2007 - 8:54 pm
thats good 
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Mameblanche
Member
08-24-2002
| Saturday, September 08, 2007 - 9:57 am
I feel like I've been run-over by an entire wagon train loaded with bricks, and hauled by mules. Otherwise, I'm peachy keen. (Takes moment to vent primal scream.)
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Pamy
Member
01-02-2002
| Saturday, September 08, 2007 - 10:17 am
aahh Mame, get some rest and feel better I am hoping to wk on our trust ppwk today, that is my big project
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Karuuna
Board Administrator
08-31-2000
| Saturday, September 08, 2007 - 11:40 am
Have any of you ever read the book From Fatigued to Fabulous? The author was on Dr. Oz's radio show the other day, and since I think highly of Dr. Oz, was wondering if this work had helped any fibro sufferers. He said his research has indicated a 90% improvement in fibro sufferers using his methods, altho they seem a bit complicated! Here is an article about research on just *one* of the components of his method, and alone it showed almost a 70% improvement in symptoms of fatigue and pain. It's available at health food stores. I was thinking of trying this for my muscle issues, since it doesn't seem like it can hurt. http://www.medicalnewstoday.com/articles/37399.php
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Pamy
Member
01-02-2002
| Saturday, September 08, 2007 - 1:19 pm
I will try anything. I was also told to try 'Cats Claw' its like a vitamin and helps build immunity
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Karuuna
Board Administrator
08-31-2000
| Saturday, September 08, 2007 - 6:40 pm
Pamy, that Dr. Teitelbaum has Fibromyalgia treatment centers all over the country. They don't have a center in California, but their only affiliate is listed in Torrance. FFC Affiliates Los Angeles Holtorf Medical Group 23456 Hawthorne Blvd. Suite 160 Torrance, CA 90505 Phone: 310-375-2705 Fax: 310-375-2701 You could always come to the one in Denver. 
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Pamy
Member
01-02-2002
| Saturday, September 08, 2007 - 6:51 pm
aahh thx Kar....well ya know that's where Bill wants to move to!
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Sharinia
Member
09-07-2002
| Sunday, September 09, 2007 - 2:04 pm
Karuuna, do you have fibro too? Teitelbaum's book was one of the first ones I bought when I was diagnosed with fibro/cfs. I thought it had a few helpful suggestions. One thing he highlights are the adrenals. Is that something that you all have addressed? When I got tested, I learned that I had stage 4 adrenal fatigue which means totally shot I was able to correct this in about 6 months which was a definite help (and necessity). What really helped my muscle recovery issues the most - I'm talking in terms of exercise tolerance - was dramatically lowering the mercury and aluminum levels in my body. The metals interfere with the enzymes needed in ATP (energy) production. Targeted nutrition also helps. In other words, if you get tested, you can learn which amino acids, minerals, etc you are deficient in that are needed in the energy cycle. From what I understand, virtually all fibro/cfs patients have elevated metals and nutritional deficiences and adrenal problems - it's a big part of why we get and stay so ill 
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Karuuna
Board Administrator
08-31-2000
| Sunday, September 09, 2007 - 3:08 pm
Sharinia, I have some unknown neuromuscular illness that bears some minor similarity to fibro, but fails to match it in some other major areas. For example, I have little or no fatigue; and I have no reaction to the critical points test. I have no overall muscle soreness or aching. What I do have is continuing muscle spasms and pain, especially in my arms and legs, hands and feet. On a bad day, I can barely straighten out my hands, and feel like I have hooks instead. I also have no sensitivity to touch, as do many with fibro. In fact, because my illness is primarily spasmodic,there's nothing better than massaging out the point of spasm. Unfortunately, since I can have dozens of those points at once, that can be a bit difficult! I have no problem with exercise tolerance - in fact, I feel best when I am exercising. When my spasms are at my worst, I go for a workout or at least a walk. The entire time of my workout, the pain is gone because the muscles are given productive work to do, rather than spasm. Shortly after my workout is over, however, it often returns. I've tried a prepr that was specifically a detoxification for metals, but that was of no help to me at all.
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Mameblanche
Member
08-24-2002
| Sunday, September 09, 2007 - 3:41 pm
I am 'over'sensitive to touch. But not everyone has all the same symptoms. It's one of the most frustrating things about Fibro. But I also have concertos instead of solos when it comes to pain spasms. I get knots all over, neck, shoulders, legs, arms, sometimes my butt cheeks burn. yeah, go ahead and laff. 
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Pamy
Member
01-02-2002
| Sunday, September 09, 2007 - 3:43 pm
oohh I love my butt massaged the best! so I know what ya mean Mame!
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Mameblanche
Member
08-24-2002
| Sunday, September 09, 2007 - 3:46 pm
<insert pic of blushing booty>
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Karuuna
Board Administrator
08-31-2000
| Sunday, September 09, 2007 - 3:53 pm
Mame, I would argue that sometimes Fibro is a concrete disease, and sometimes it ends up as a catch all diagnosis when the docs don't know what is wrong with you. There may be some differences, but in general, the symptoms should follow a similar constellation, eh? I *only* have spasms. No other symptoms at all. The spasms are similar to those experienced by some fibro sufferers; so that makes some neurologists lump me in the fibro diagnosis. I think that's just cause they don't know what else to call it. And that bugs me.
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Landileigh
Member
07-29-2002
| Sunday, September 09, 2007 - 4:18 pm
i spent over 10 years with a fibromyalgia diagnosis, sounding like every one of you. on all sorts of anti-depressants, pain medication, and sleep aids. it wasn't until i went through a sleep study to find out i had sleep apnea. getting a nights worth of rest my body was able to heal itself and the pains weren't there. i have other issues now, but i no longer have the muscular pains and sleep issues.
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Karuuna
Board Administrator
08-31-2000
| Sunday, September 09, 2007 - 4:21 pm
Landi, that's interesting. I have sleep issues that aren't related to apnea, but I do know the meds that have helped me most are the ones that made me sleep better. Even tho I only take them at night, when I sleep well I have little or no pain the next day. Hmmmm....
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Landileigh
Member
07-29-2002
| Sunday, September 09, 2007 - 4:35 pm
i could hardly have my body touched by a masseuse i hurt all over. my back would spasm so bad after driving that i thought i was gonna have to work hunchbacked.
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Sharinia
Member
09-07-2002
| Sunday, September 09, 2007 - 4:39 pm
Karuuna, that is interesting. Have you tried magnesium (I mean serious dosing - like mag iv's)? Also, have you looked into Lyme Disease?
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Pamy
Member
01-02-2002
| Sunday, September 09, 2007 - 4:41 pm
I am going on the pain upswing again...sigh I havent been able to do to much this wkend I have sleep med and they do help but i still wake up every few hrs on many nites...last nite I slept 5 hrs in a row, that is huge for me
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Sharinia
Member
09-07-2002
| Sunday, September 09, 2007 - 4:53 pm
sorry to hear Pamy I was gonna suggest.... maybe you wanna try epsom salt baths. they can make you really tired and your muscles really relaxed before bed
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Karuuna
Board Administrator
08-31-2000
| Sunday, September 09, 2007 - 4:59 pm
Landi, that sounds awful! Luckily my spasms are still small, and limited to my extremities, so I can massage them out. Just can't massage them all out at once! Sharinia, no, altho my blood work showed mag levels well within the normal ranges. From what I know of Lyme disease, my symptoms don't really line up with that. I have a suspicion that my symptoms are more likely an after effect of a bad bout of West Nile about 5 years ago. That's when I first started noticing the spasms, altho they were more of a nuisance then, and not painful. Pamy, I"m sorry to hear you're not doing well again. Maybe you should look up that doc in Torrance? Is that far from you? They are holistic practitioners, which is what I like about them. They use meds when necessary, but emphasize a more natural approach and treat the various symptoms in a variety of ways.
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Landileigh
Member
07-29-2002
| Sunday, September 09, 2007 - 5:24 pm
accupuncture helped, but mainly heat. and if i could have sat in a jacuzzi all day that would have been the best. i loved summers heating up my muscles.
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Pamy
Member
01-02-2002
| Sunday, September 09, 2007 - 5:38 pm
Shar, bath sounds good, will try one Kar, torrance is about 60 mi I think I just am trying not to miss wk....I am interviewing for promotion...I know I wont get it this time (ass kisser do gooder has it in bag LOL) but if you interview well you get put on list for future....thats my goal
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