TVCH FORUMS HOME . JOIN . FAN CLUBS . DONATE . CONTACT . CHAT  
 Wikia  Quick Links   TOPICS . TREE-VIEW . SEARCH . HELP! . NEWS . PROFILE
Archive through September 25, 2007

The TVClubHouse: General Discussions ARCHIVES: Jul. 2007 ~ Sept. 2007: Health Center (ARCHIVES): Fibromyalgia & Chronic Pain (ARCHIVES): Archive through September 25, 2007 users admin

Author Message
Pamy
Member

01-02-2002

Saturday, September 22, 2007 - 4:48 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
ok..i am gonna make order....what is the name of the rasperry stuff so i can order it also :-)

i am also getting cats claw...heard that is good too

Pamy
Member

01-02-2002

Saturday, September 22, 2007 - 4:52 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
found it!

Pamy
Member

01-02-2002

Saturday, September 22, 2007 - 4:59 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
when ya ordered from Needs did a box come up about paying for customs taxes? never have seen that before. the company is in NY so I thoguht it was weird

Karuuna
Board Administrator

08-31-2000

Saturday, September 22, 2007 - 5:39 pm   Edit Post Move Post Delete Post View Post Send Karuuna a private message Print Post    
Pamy, hmmm, I didn't have that on mine. At least I don't remember it. Are you sure you filled out that you lived in the US? LOL

Pamy
Member

01-02-2002

Saturday, September 22, 2007 - 5:54 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
yes I think so but who knows LOL

Dovez
Member

08-27-2005

Saturday, September 22, 2007 - 6:28 pm   Edit Post Move Post Delete Post View Post Send Dovez a private message Print Post    
hi all...

feelng for you, pamy. this weather is definately affecting us.
hang in there.

Pamy
Member

01-02-2002

Saturday, September 22, 2007 - 6:47 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
Thx Dovez...xoxxooo back atcha!

Mameblanche
Member

08-24-2002

Saturday, September 22, 2007 - 6:47 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
Hope you are feeling a bit better tonight ((Pamydoll))). I've had a headache for a couple of hours now. Just took a Motrin and hope the danged thing subsides.

Went for another MRI last night. On my right shoulder this time. Stupid appt was at 1 AM in the freakin' morning. We were at a party an hour out of town and had to leave early to get back in plenty of time. Best party I've been to in years and we had to leave. Pout. It was an awesome party. We just met this family at another pals dinner party. They are very musical, and they set up their dining/livingroom area as a café and folks got up and basically shared their talents. I recited a poem of mine. Vinnie sang King of the Road accompanied by some of the musicians. My friend is a piano teacher and she played a classical piece. Another gal read her short story. Folks were singing songs from John Denver to Carol King etc. And even little kids were encouraged to sing. As we were leaving one kid was about to sing Twinkle Twinkle Little Star. So cute. Now THAT was a party! We all brought goodies, and it was just the best night. We of course brought our lady friend who introduced us to this family. Mostly it was folks who lived in their little town. It was such a joyful night, adn then we found out it was the husband's b'day. And we all sang Happy B'day and their was a cake and candles. It was great.

Poor dh could barely walk his bad leg is being miserable. It's gone out on him painfully several times in the last few days and it's frankly been going on for weeks. It's just gotten a lot worse lately. I think between us you couldn't put together a healthy person from spare parts.

The best news is that this family has invited us to their Halloween party! Can't wait. I think I'll go as a cadaver. Okay, bad joke. I usually go as a vampire or a witch, lotsa black with lotsa cleavage. haha

Resortgirl
Member

09-23-2000

Monday, September 24, 2007 - 4:01 am   Edit Post Move Post Delete Post View Post Send Resortgirl a private message Print Post    
I know this isn't exactly the right thread... but I've been in so much pain the last week, and throughout the last 6 months and the only thing that the doctors will give me is prednisone. It's making me really crazy. I spent all day yesterday in my bed, crying. I know it's the drug, but it freaks me out. This time it didn't even help with the pain. My joints hurt, but along with that my muscles feel "feverish". They just hurt deeply...
I've also had 4 episodes of unexplained hives. They just pop up for no apparent reason. Two of the times I felt like I had trouble breathing until the benedryl kicked in. That, along with feeling like I wish the day was over before it even starts makes for a really unsatisfying existance lately. I've tried doing the elimination diet and taking supplements to rid my body of yeast and heal a leaky gut, but after a month on that I was down to 110 pounds and look like shit... so I started eating foods not on the list and I guess I just haven't been motivated to get back on track with that. Stress makes things worse, but stress is a part of my job.
Thanks for listening to my vent. I'm going to the doctor today to try and get a definitive diagnosis. Is it lupus? something else? just f^&*ing help me please~~

Pamy
Member

01-02-2002

Monday, September 24, 2007 - 4:10 am   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
(((RG))) I hope the docs can give you something to help.

Resortgirl
Member

09-23-2000

Monday, September 24, 2007 - 4:36 am   Edit Post Move Post Delete Post View Post Send Resortgirl a private message Print Post    
Thanks Pamy! What a big baby I sound like. sheesh.
I just have to try and focus and not believe the things my mind is telling me when I'm on prednisone. Everything looks bleak then. I know that watching my diet helped in the past, it's just so time consuming and unappealing. I think this week I'm going to try and just drink the shakes the naturopath gave me and see if I can at least get some of the swelling and pain down. I have to be firm with the docs though. I can NOT take anti inflamatories. They rip up my gut, but for some reason the doctors have a hard time comprehending that. I know that maybe they just don't have an alternative. Anyway, if anyone knows of a good medication that is not anti inflamatory and doesn't cause craziness, let me know....

Mocha
Member

08-12-2001

Monday, September 24, 2007 - 6:07 am   Edit Post Move Post Delete Post View Post Send Mocha a private message Print Post    
(((Rg))) I feel ya on the prednisone thing. I hate taking it but it keeps my hives away.

Mameblanche
Member

08-24-2002

Monday, September 24, 2007 - 8:43 am   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
((((((((((RG))))))))))) You are ABSOLUTELY in the right thread hon! I wish I had suggestions or answers for you, but all I have is a gentle hug. I've always said the NOT KNOWING the exact nature/cause of a medical problem, is the worst part.

Pamy
Member

01-02-2002

Monday, September 24, 2007 - 4:58 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
RG. this thread gave me sanity when my pain was so bad, just venting and having ppl come here with support helped me feel little better

so come here and vent, we all are here for eachother!

Dovez
Member

08-27-2005

Monday, September 24, 2007 - 5:19 pm   Edit Post Move Post Delete Post View Post Send Dovez a private message Print Post    
hi rg,
when i was first diagosed with lupus,i was put on prednisone.
i could not tolerate the mental repercussions and was actually suicidal. and i developed quite a rash from it.
for me there ended up being no benefits from it.
and the elimination diet did point me in the right direction for some of the foods that set off my symptoms.
so hang in there. there are some answers.

Seamonkey
Moderator

09-07-2000

Monday, September 24, 2007 - 6:28 pm   Edit Post Move Post Delete Post View Post Send Seamonkey a private message Print Post    
I have a friend on prednisone and it really does make her crazy!

Mame, since you were diagnosed with osteopenia are they planning to treat that? I had that early on and that was alarming since my mother had actual osteoporosis to the tune of broken ribs just because she turned an ankle.. I've always been on heavy calcium but did do a 18 mo on prempro (this was just before they panicked over the cardio side effects) and then went on fosamax later. The Fosamax and exercise seem to have combined and last we checked a few years ago I had GAINED bone density, yay!

I'm on magnesium for my crazy muscle spasms and it helps better than Mirapex did. I also take potassium which SEEMS to help stave off the horrible muscle cramps that strike in my legs and feet. My doctor has me on Mag-OX which hs says is very digestible, but I might ask him about the type that is recommended here too. Somedays I just BUZZ on the edge of pain, it seems.

Resortgirl
Member

09-23-2000

Tuesday, September 25, 2007 - 6:05 am   Edit Post Move Post Delete Post View Post Send Resortgirl a private message Print Post    
Thank you all for writing your experiences. Even though I know my hubby believes that the prednisone is making me nuts, I think it helps reassure him when he sees it in writing here. I've been just out of my mind the past few days. At times I feel so anxiety ridden that I think people are "plotting" against me, or I feel angry or just sad. In any event, it sucks. I'm probably going to have to find a different doctor and not sure how to go about that. It's not like we live in a doctor mecca around here. I'll get some referrals from friends and see what I come up with.

Other then that, nothing much going on.. I have to say I am amazed at how many people suffer from chronic pain here and are still so cheerful and full of life and love. I will have to try and muster some of that...

Karuuna
Board Administrator

08-31-2000

Tuesday, September 25, 2007 - 6:27 am   Edit Post Move Post Delete Post View Post Send Karuuna a private message Print Post    
(((( RG )))) I am so sorry you're having such a hard time with diagnosis and meds. I've been there and it is very disheartening and frustrating!

I've been doing a bit better, if I could just shake what's become the worst cold I've ever had. I've been toying with the idea of going to a one week cleansing spa that's not far from me. Presumably they can set you on the way to curing a lot of these mystery illnesses by a week of healthy diet, healing baths and massages.

If nothing else, it sounds like a wonderful week of pampering, and I sure could use that!!

Zachsmom
Member

07-13-2000

Tuesday, September 25, 2007 - 6:55 am   Edit Post Move Post Delete Post View Post Send Zachsmom a private message Print Post    
RG, what dosage of prednisone are you on? i have learned when the dosage is high, it makes me very very anxious and depressed. could you go on a lower dose? i never got hives but i felt like i itched all over and took benedryl and oatmeal milk baths and i was 'okay' but tired.

I take trazadone to help me sleep, if you are having trouble sleeping i would suggest that. it's non addictive/non narcotic. but be ready to fall asleep within an hour.

if you are talking about anti-inflamatories, are you speaking of tylenol, aleeve, ibuprofren etc?

i know i have taken a slew of narcotic pain meds. morphine, dilaudin, oxycontin, vicodin etc. one that did work well was tramadol. you might also ask for a fenadryl patch. good luck and i hope your pain goes away. i know chronic pain is very hard to live with.

Cndeariso
Member

06-28-2004

Tuesday, September 25, 2007 - 6:58 am   Edit Post Move Post Delete Post View Post Send Cndeariso a private message Print Post    
unfortunately, that is one of the side effects of prednisone. it makes me very hyper and i can't sleep while i'm taking it. i wish you the best of luck.

Spygirl
Board Administrator

04-23-2001

Tuesday, September 25, 2007 - 2:00 pm   Edit Post Move Post Delete Post View Post Send Spygirl a private message Print Post    
Karuuna, if you need company, I'd be happy to carry your luggage

Karuuna
Board Administrator

08-31-2000

Tuesday, September 25, 2007 - 2:17 pm   Edit Post Move Post Delete Post View Post Send Karuuna a private message Print Post    
Gee, Spy, that is sooo thoughtful of you! LOL

Resortgirl
Member

09-23-2000

Tuesday, September 25, 2007 - 3:02 pm   Edit Post Move Post Delete Post View Post Send Resortgirl a private message Print Post    
Thanks Kar, Zmom and Cnd...
Kar, I know that you've had quite a time! We were supposed to get together last July as I recall and your pain kept you from me... now it's my turn apparently. The spa sounds wonderful.. my chiropractor says every time she sees me that she wishes she could kidnap me, wrap me up and take care of me until I'm better. Sounds nice, not spa nice, but nice...LOL!

Zmom, I can take tylenol, but it doesn't really address the pain I'm having. I can not take any of the anti inflamatories because they affect my stomach to severly. I'm on a small dose of prednisone now.. started with 6 a day and am down to one now. But I have always been hypersensitive to drugs. I can't take anything in a full dose. I always take the 12 and under dose. I hope that eventually they find a cause, but if not.. if it's some mystery illness I hope I find a compassionate doctor that will care about how I'm feeling and help me find the best course of treatment for ME... not someone else..

Cnd, I get hyper the first day and then get very very depressed. Been crying all day on and off over dumb stuff.

Sage
Member

07-20-2000

Tuesday, September 25, 2007 - 5:21 pm   Edit Post Move Post Delete Post View Post Send Sage a private message Print Post    
((RG)) I hate that you are going through this, and I hope you find some relief and some answers soon.

By the time I get finished packing and moved, I'm going to need a week long spa too. As it is, I will probably spend a week in bed with the heating pad, trying to relieve the pain and fatigue I am already having.

Tess
Member

04-13-2001

Tuesday, September 25, 2007 - 7:55 pm   Edit Post Move Post Delete Post View Post Send Tess a private message Print Post    
RG, are you allergic to codeine? I find that sometimes the only thing that will help with the pain is a tylenol #3. I know it is a narcotic and can possibly cause problems, but I only take one if I'm in such dire straits that I cannot handle the pain. People are different thought. DH's doctor doles his out (for his back) in quite small amounts because his body has adapted to all the pain meds he's been taking the past 3-4 years, that he's severely limited now. I don't have a limit, but on the other hand, I make a 5 day supply last 10 months. Hence the difference.

As to the topic of prednisone, I've been on it more than I've been off of it for the past 17 years. It can make a person have huge mood swings and I know that sometimes I feel such unrelenting rage but I have nowhere to let that out. Certainly can't take it out on my tiny family and I'd rather sleep on my pillows than pound them to bits. <sigh> My usual starting dosage is 80mg but that is in addition to IV steroids. After any crisis is over, we do a very slow and gradual weaning off.

I wish I had something better to say besides validating your experience and offering some prayers for you and for everyone else in pain.