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Living with Chronic Pain

The TVClubHouse: General Discussions ARCHIVES: 2005 Dec. ~ 2006 Feb.: Health Center: Living with Chronic Pain users admin

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Archive through October 11, 2005Kearie25 10-11-05  12:50 pm
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Hussy
Member

08-06-2004

Tuesday, October 11, 2005 - 3:50 pm   Edit Post Move Post Delete Post View Post Send Hussy a private message Print Post    
I needed a lawyer because it was time to file the appeal. This is where the story gets a little long and confusing. My uncle passed away and My aunt and him have 4 adopted kids that I treat just like all my nieces and nephews because of the age difference and how close I am to my aunt. So I was staying over in Alabama with them trying to help her and the kids with their loss. I needed to file the appeal so I went to a lawyer over there. He would not take my case unless I changed my address and Doctors to over there cause He said my doctor wasn't helping my case and He didn't want to drive 4 hours over to Georgia for the case. I did as he suggested. Then a few weeks later I discovered I could not live with my aunt and her kids cause with all my problems I couldn't deal with a smartazz 12 year old that is running over her mom without stating my opinion which wasn't as welcomed as I thought. So now I am at a loss what to do, I need to wait long enough for the appeal to have been filed before I let the lawyer know I have moved back here I think.

Taterheadtwo
Member

09-29-2005

Tuesday, October 11, 2005 - 6:21 pm   Edit Post Move Post Delete Post View Post Send Taterheadtwo a private message Print Post    
hi all, my fisrt post here.i got hurt twice in 1995 bad, never healled up, and lost my job, since then i have only gotten worse.
now the present, i have been to contless doctors , yet have never gooten any real help, have given up on docotors helping me. i have pain 24/7 . maybe nerver related. i have weak muscles, limbs, tendons, bones, joints hurt and give, at time i cant even open a jar , and trying causing wretching pain, i sleep dozen times a day/night, maybe half hour at a time, wake up hurting and in pain, standing, walking, sitting laying more than a 1/2 time causing unbearable pain. i live off of ssi ( which took way to long to get, and have been told several times they might drop me since i could do something?? but if you have my type of pains whhich i know most here do, your body breaks down on you cant hold up doing anything for several hours at a time..
my question is, im not talking about suicide, but each year is harder, if i lose ssi i will be homeless , have no close realative and am single, no close freinds... i dont think i could survive being homeless( i was homeless at first, but then i didnt hurt 24/7 now i do, i coulnt walk far if i was homeless to get around?? this might sound stupid but i worry, im adfraid if i was homeless i have though about say acting like im robbing a bank, ( i have never been in trouble, never to jail are arested, but i hear all the time where federal prisoners get medical attention?
so my question is please weigh in tell me how stupid this would be( again if i could finaly get real medical help to not be in pain all the time, to not have my body, seize up, be nuasied all the time, i cant even hold a phone up to my ear for more than a couple of minutes with out that getting to painfull.. ( ok i get depressed but i fell all , everyone does.. and i love life, and people.. so please advise me, why iot would be stupid to try to go to a federal prison to get medical help...well take care all

Hussy
Member

08-06-2004

Tuesday, October 11, 2005 - 9:20 pm   Edit Post Move Post Delete Post View Post Send Hussy a private message Print Post    
I understand how you feel, Tater, but don't give up I haven't. I am very lucky that I live with family that takes care of me. I know just trying to get food stamps so that I can add something to the household is a pain in the ass. They said I need to prepare my food separate or I have to use my families income. It isn't fair to my family to do that. I was told when I was denied the second time I didn't have enough medical proof and this time I was denied cause, even though I can't do what I did they said there is something I can do. Doesn't make sense to me. Seems like they are just using any excuse to deny me. It sickens me to think that you have to get a lawyer and let them get part of your money cause the government makes it so that you need one. It is like they are working together.I do hope things start looking up for you. Have you thought about sharing a home with others in the same place as you?

Mameblanche
Member

04-13-2005

Wednesday, October 12, 2005 - 5:43 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
((((TATER))))Good advice Hussy!

Hussy
Member

08-06-2004

Thursday, October 13, 2005 - 2:37 am   Edit Post Move Post Delete Post View Post Send Hussy a private message Print Post    
Well tonight I went to the ER I woke with hip and leg pain on my left side. The doctor said it was chronic low back pain. Even though there wasn't anything they did to help me I did get a great shot. Plus a script for lortabs and fexeril which I am hoping will help...

Taterheadtwo
Member

09-29-2005

Thursday, October 13, 2005 - 5:14 am   Edit Post Move Post Delete Post View Post Send Taterheadtwo a private message Print Post    
left side rear hip pain , is one of my promblems. ten yrs ok , a ramp i was on fell, and i did the splits, had instant rear hip area pain, never found a doctor to find exactly what happened and how to get well, had pain in rear left hip area. yes i have been to bone, ortho, nero, internal, etc docs all dont seem to be able to help are solve, was advised to take it easy. and do ( piriformis and poasos type exercises) i have done thousands of them and yet they have never solved, i had done thousands of situps yet didnt solve the pain.
hussy i really do know that pain and others i have. i was told off the record that my imune , my body is out of whack, and ihave bone spuring, and have the cavity inside my spine where the blood vesels and nerves travel form my upper to lower areas, that cavity is slpwly shrinking, i will be paralized some day( truthfuly i welcome that, then i wont fell the acute pain anymore, in the ten yrs now , not only do i have the left hip areas pain, i have the nerve, stinging pn my left side all the way to the bottom of my foot, toes, i have acute hyper feeling, you can scratch my bootom of toes and i will pass out so much intense pain, yet the docs just ignore my complaints. so what i am trying to say, i so wish you could find a answer to releive your pain.i so hope you are not ignored like i have been, very good luck and good wishes

Hussy
Member

08-06-2004

Friday, October 14, 2005 - 1:39 pm   Edit Post Move Post Delete Post View Post Send Hussy a private message Print Post    
Tater, I have some of the same pain you have. I have been on bed rest for 2 days just trying to relax. Have you had a MRI of your lower back? I had the same left leg pain before and it was a bulging disc and I needed surgery, I did refuse having it fused I don't know if that is why I am having the same pain again. I do wish you luck with yours.

Taterheadtwo
Member

09-29-2005

Friday, October 14, 2005 - 3:20 pm   Edit Post Move Post Delete Post View Post Send Taterheadtwo a private message Print Post    
yes in these 10 years , i have had several mri, bone scans, etc. told i have narrowing in my spine, and bone spurring, several ( here is technical jargon like skv4 , etc.) but i have several reasons for the pain, but they wont do surgery.( i am on disability, - im betting they wont make any money on the surgeries , just having those expensive tests done) they care less if i say i hurt to the point of not able to function, having to curl up in a fetal position till i can abosrb are pain eases sometimes down to say a 7 are so...a average day for me , is bursitis, tendonitis, gout like conditons in most of my joints, bones,muscles, i have no strenght in my limbs most of the time, extreme headaches, nasua, oh i could so go on and probably one by one name areas of hurting and descript. i just take one day at a time, a good day is several hours of smiling, laughing at my cats, wasting time on this computer, maybe some tv( rotating form sitting to satanding to lieing down ) doing any very long make for pain extremes... a bad day is a 10 hurting so bad , even making all bones hurt, everm teeth, gum, earaches, throwing up , dry heave for hours, felling red hot pains on about 4 real bad spots on my spine, vertabrea, felling like my spine and hip areas is being sqeazed so bad i think its breaking bone, hip pain feeling like someone shoving a spike into me, and my right ankle feeling like again a spike being shoved into it( my right ankle was bronken 10 yrs ago, and thats the second major enjury that stared it all, ( would take too long to describe all about it, but i feel now the bone healed over ,pinch a nerve line, part of the scatia nerve and this is the main reason i have nerve damage , hyper sesitive all ove my body to pain.. sorry to post suvh a long post, but i am so tied of dead ends when it comes to doctors, not helping, only geting their quick easy $$$ and then ignoring you, and not treating the root promblem... i do hope you get the right help soon hussy, some people do get help, but some of us cant find a true carring docotor that can are will treat the real promblem

Mameblanche
Member

04-13-2005

Friday, October 14, 2005 - 4:28 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
(((Tater & Hussy))) I am going to treat myself to a massage (finally) on Monday. The aches and pains are not fun, but its the stress that's sending me to have a massage!

Hussy
Member

08-06-2004

Sunday, October 16, 2005 - 3:43 am   Edit Post Move Post Delete Post View Post Send Hussy a private message Print Post    
Mame, glad to hear you are getting something to help with your pain. I have heard getting in the water or massages help. I can't afford either though. lol. Tonight I am feeling much better than I have the past few days. Hope all is better with you and Tater... Cin

Mameblanche
Member

04-13-2005

Monday, October 17, 2005 - 5:58 am   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
Hussy, re: the spa massage, I can't afford it much, either, as my medical unemployment is about to run out any moment now. (Its kinda like I'm fiddling while Rome burns.... but I gotta do what I gotta do to get back on track.) Luckily this weekend my dh took over caring for mom on Sunday and I had the day to myself, went bookshopping and saw a film. Very relaxing. And boy did I need it! Today's spa-day should seal the deal.

Hussy
Member

08-06-2004

Tuesday, October 25, 2005 - 8:40 pm   Edit Post Move Post Delete Post View Post Send Hussy a private message Print Post    
I had to go to the ER again that is twice in two weeks for this flare up with my back/left hip. This time I felt as though the Doctor and Nurse thought I was there for drugs. I go for help but because I have no insurance they give me drugs and send me home, not even a x-ray. I know I need a MRI but they are not going to waste time with me with no insurance. sucks...

Pamy
Member

01-02-2002

Tuesday, October 25, 2005 - 8:46 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
((((Hussy))) I am so sorry you are going thru this. You are in my thoughts and prayers

Hussy
Member

08-06-2004

Tuesday, October 25, 2005 - 9:02 pm   Edit Post Move Post Delete Post View Post Send Hussy a private message Print Post    
thanks Pamy, very nice of you to say....

Mameblanche
Member

04-13-2005

Tuesday, October 25, 2005 - 9:13 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
Hussy when I read about your pain and the fact that you can't get an MRI or even a basic Exray, I am so mad I could spit. I hate the American Health System, and am so glad I am Canadian! And instead of your gov't following our fine example, we are slowly but surely following yours. God it makes me so mad that the richest country in the world won't help its own people out, but they have money to go exploring space (which is good I guess) and for war (definately bad!) Sorry I'm ranting, but I feel so bad for you.


Please consider yourself gently hugged.

Hussy
Member

08-06-2004

Tuesday, October 25, 2005 - 9:15 pm   Edit Post Move Post Delete Post View Post Send Hussy a private message Print Post    
thanks Mame, It makes me mad too...

Pamy
Member

01-02-2002

Tuesday, October 25, 2005 - 9:18 pm   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
the thing that gets me is that if she was here illegally she could get medical care for free..no questions asked

Mameblanche
Member

04-13-2005

Tuesday, October 25, 2005 - 9:18 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
Well are the meds helping at least? There has to be some charitable agency, social service, religious organization or something that you can access that might help you at least get an exray or a proper diagnosis and treatment. Geez.

Mameblanche
Member

04-13-2005

Tuesday, October 25, 2005 - 9:19 pm   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
Pamy, you're kidding right??? I can't believe that, its too ridiculous to contemplate if its true!


Pamy
Member

01-02-2002

Wednesday, October 26, 2005 - 12:01 am   Edit Post Move Post Delete Post View Post Send Pamy a private message Print Post    
It's true.

Taterheadtwo
Member

09-29-2005

Wednesday, October 26, 2005 - 12:27 am   Edit Post Move Post Delete Post View Post Send Taterheadtwo a private message Print Post    
yes , if one will go back and look at some of my posts, the ilegal alliens and the people and jail get better medical treatment then the lower class, poverty level americans, this is why might sounf folish, but if i get homeless again, i can walk much are far, and live with pain, and complications 24/7.and bad healht i am thinking about break a federal usa law to go to federal prison to try to get help, either that are perish on the streets. some thing to look forward too, huh,lol..
it is so sad most people at are near poverty get ignore, swallowed up by the medical peoples,never get the real help for the real promblems, most get shoived to the side no help , are forced to be happy with the way they put too many on depression drugs. if the medical inc would treat the promblems, people wount escalate and go down to where they need this so called depression route, which isnt a answer only trying to sedate hurting people with medical promblems. this probably sounds confusing, best i can state bad day for me, just saw the back hip pain post and i can so relate to that for the last 10 yrs.

Juju2bigdog
Member

10-27-2000

Wednesday, October 26, 2005 - 9:31 am   Edit Post Move Post Delete Post View Post Send Juju2bigdog a private message Print Post    
Taterhead, a word of warning on your health care plan - just because you commit a federal crime does not mean you will get to go to a federal prison. Federal and local prosecutors AND the local police have the option of deciding whether your case will go local or federal. It is not your choice; it is theirs. An ill disabled woman probably would not be considered a good candidate for federal prosecution.

I realize you are probably not serious, but just in case you get tempted, think of the worst place you could end up if you commit a crime, and that's probably what would happen.

Taterheadtwo
Member

09-29-2005

Wednesday, October 26, 2005 - 12:28 pm   Edit Post Move Post Delete Post View Post Send Taterheadtwo a private message Print Post    
you i know it sounds so folish, dont want to be in aplace worse off.. but i cant help seeing alot of tv, and web info showing federal prisoners, getting free medical treatment, and here i am begging for a doctor who will get down to qhats really wrong with me, what started my downhill heatlh promblems and never has been treated, and now more has devoloped added on top, layers of medical promblems now, make life hard and painfull, and i know im just one of many out there in the same boat.

Mameblanche
Member

04-13-2005

Saturday, October 29, 2005 - 10:00 am   Edit Post Move Post Delete Post View Post Send Mameblanche a private message Print Post    
For starters, where you live, Tater.. do they have free social services agencies? I'd start there... OR at the local church/mosque/synagogue.... whatever. Speak to someone in a bit of authority for some guidance and direction. They might have excellent medical connections or some charitable funds to help you out. Give it a try and get back to us regarding how that goes... Sometimes you really have to work your way around a system to get help within it. Breaking the law, would only compound your troubles tenfold. I'm sure the jailhouse beds are not the most comfortable for a healthy, hearty person, I can't imagine an injured, disabled person trying to cope under those circumstances. Plus those places are regimented, and I don't know about you, but when I'm in pain, I tend to coddle myself and do what I can but only when I can. In those places you eat, sleep, and go to the loo, on their say so, not yours. I know you were only blowing off steam, but one day you might get so down or out that you might kick it up a notch... remember, its just not worth it and will backfire. At least for now you have your own life to live as you please. Doing something illegal will curtail all of your basic freedoms, I would think.

Sherbabe
Member

07-28-2002

Saturday, January 07, 2006 - 6:09 pm   Edit Post Move Post Delete Post View Post Send Sherbabe a private message Print Post    
Am revisiting this thread today for a couple reasons. I just read an article in paper that says "Herniated Disc Technology discovered by NASA Scientists. web site is www.discpainreport.com or phone is 1 800 962 8878. Sid research has proven non surgical spinal decompression 86% succes rate in treating debilitation back pain.
2nd reason: My niece was told her tail bone is at a 45 degree angle. She has has been in excrutiating pain for years. At first, she was misdiagnosed, the just like the messages above was accused of being a drug seeker. Don't know how to help her. She is finally being treated, but, her condition is very rare. Her husband just changed medical insurances, so they are waiting to see if it will cover specialist at University of Michigan hospital. Any body know of this condition where your tailbone is broke and laying sideways?

Ginger1218
Member

08-31-2001

Sunday, January 08, 2006 - 9:36 am   Edit Post Move Post Delete Post View Post Send Ginger1218 a private message Print Post    
After all I have been through with my knee and my foot and the sciatica, my doctor wanted me to have an MRI of the lumbar spine. He called me to come to his office for the results and I knew it was not good. I have severe spinal stenosis. I have severe compression on the nerves and a lot of other stuff. I asked him if that was worse than herniated discs and he laughed and me and said much worse. Sooooo, now I will go to an orthopedic surgeon (but I am NOT having surgery), just figure out ways of pain management, maybe epidural. I am also starting a major diet, because the weight affects it a lot.

Taterheadtwo
Member

09-29-2005

Sunday, January 08, 2006 - 9:42 am   Edit Post Move Post Delete Post View Post Send Taterheadtwo a private message Print Post    
Ginger i feel i need to warn you about epidurals, i had 3 in my spine, 1st made me worse took 7 months befoe i was loose enough to do it again, the 2nd was a little help, the 3rd really messed me, i have had etreme stifness, tight joints and oh yeah the pain a 10 becuase of it on top of old pains, and promblems.. i cant tell you not to take the epidurals, but i have heard form many others, they will cause more harm then good, also ( and this sounds like you) they cause bone growth, in the spine area where they were stuck in, so i alos have the bone grinding, pinching
i am worse for having the epidurals, but this is just my experience... i am adfraid most doc dont know are wont treat you right, ive been trying for over ten years to get help, better. but each year is harder it seems to survive

Ginger1218
Member

08-31-2001

Sunday, January 08, 2006 - 9:44 am   Edit Post Move Post Delete Post View Post Send Ginger1218 a private message Print Post    
Thanks for the input Taterheadtwo. Tell me, if you don't mind, what did they give you epidurals for? Was it the same thing I have?

Mak1
Member

08-12-2002

Sunday, January 08, 2006 - 12:26 pm   Edit Post Move Post Delete Post View Post Send Mak1 a private message Print Post    
{{{Ginger}}} I'm sorry you've received yet more unsettling health news and hope that you can find the most effective treatment. I hear you about NOT having surgery.

I found this site that gives you an overview of symptoms, causes, and treatment options. It might help you to have some info and questions when you go to the orthopedist appointment. Spineuniverse.com

Kady
Member

07-30-2000

Sunday, January 08, 2006 - 1:49 pm   Edit Post Move Post Delete Post View Post Send Kady a private message Print Post    
i go to a pain management doctor for my back. i have 2 compressed disc, scoliosis and trouble with my sciatic nerve. i have an 18 inch steel rod on my spine.

i have had several spinal epidural shots and they practically saved my life. i was bedridden till i had my first series of 3 shots. about 9 months later(this past september) i had another. they worked well for me.

ginger, you now have 2 different opinions. i know i never want surgery again. the last surgery i had only gave me about 6 weeks of relief.

Ginger1218
Member

08-31-2001

Sunday, January 08, 2006 - 2:42 pm   Edit Post Move Post Delete Post View Post Send Ginger1218 a private message Print Post    
Mak and Kady, thank you so much for the info. Good stuff to have before I see the doctor. I did a lot of research to find a top doctor in Manhattan who specializes in this. Besides all of this, thank God, I am feeling better than I was for the past 3 months. At least I am mobile and not in as severe pain.

Sunshyne4u
Member

06-17-2003

Friday, January 13, 2006 - 2:40 am   Edit Post Move Post Delete Post View Post Send Sunshyne4u a private message Print Post    
I wonder if we should discuss MEDs. What has worked for you? What hasnt?

I think that meds can help or hinder. Some medications actually amplify the pain!! I was put on Paxil at one point and it gave me insomnia as well as magnify my pain.

I have just been to a Pain Clinic in Vancouver and they suggested a new kind of muscle relaxant and Nerve pain blocker.

The paperwork still hasnt reached my family doctor but the Blocker is called Lyrica. It is an experimental Pregablin.

I have taken Gabapentin and I understand this new med is similar.

It all comes down to quality of life.

((I always feel so bad when I read about how awful the Medical system is in the States.))

Taterheadtwo
Member

09-29-2005

Friday, January 13, 2006 - 5:04 am   Edit Post Move Post Delete Post View Post Send Taterheadtwo a private message Print Post    
for back and hip pains, pianon m scal[ down my back hips, and whole left side is in pains, dull to sharp acute, throbbing, 24/7.... its really a a shame are sham, i live ina small city that claim its totaly a medicl base city, lost of construction all the time for hosp, and doctor bld. but every doctor i have seen are called , its just a big circle, dead end. it would take hundreds of post to go through what i have done are treid are seen, yet i sit here still in acute pain, one day at a time.. and i fear their are million more like me out there that arnt being treated properly are not at all, yes i so wish i had been borned in canada, their medical system is better than usa. in usa if you have fancy inurance you get treated
if you dont have insurance you are a outcast and get 3rd rate care are no care.