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Lolly
Member
05-30-2004
| Sunday, July 18, 2004 - 6:35 pm
Hi, I am just wondering if anyone here has lupus? I do. Some of the things I am experiencing lately have me very concerned..TIA
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Tashakinz
Member
11-13-2002
| Monday, July 19, 2004 - 6:36 am
My mom has been living with lupus for almost 20 years and has had just about every symptom and side-effect you can imagine. What are you experiencing?
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Herckleperckle
Member
11-20-2003
| Tuesday, February 22, 2005 - 12:51 am
Well, recopied the article . . . Just a reminder, I joined Ivanhoe.com--and get access their archives for a year. What appear as article <links here, shown in blue> are not true links. However if you would like me to copy any of them for you, just let me know. Source: Ivanhoe.com Reported November 8, 2004 Lupus 2004 Executive Summary: Drug and Non-drug Treatments (Ivanhoe Newswire) -- For scientists, lupus is a mystery that has been hard to solve. The immune system, instead of attacking foreign things like viruses and bacteria, starts to affect the patient’s own tissues. Symptoms of lupus vary widely depending on the individual case and the form of lupus present and can include achy or swollen joints, prolonged and extreme fatigue, skin rashes, pain in the chest, anemia, sensitivity to sunlight, hair loss, abnormal blood clotting problems, mouth or nose ulcers lasting longer than two weeks, excessive protein in the urine, and others. For the vast majority of people with lupus, effective treatment can minimize symptoms, reduce inflammation, and maintain normal bodily functions. The majority of symptoms of lupus are due to inflammation and so the treatment is aimed at reducing that inflammation. This can be done through a number of different medications. According to the Lupus Foundation of America, in a typical year, there are over 200 research abstracts listed that pertain to lupus. Here are some reports Ivanhoe Broadcast News has reported on recently in regard to advances in drug and alternative treatments for lupus. Drug Treatments Cancer Drugs Help Lupus: Lupus is not a cancer, but oncologist Rob Brodsky, M.D., of Johns Hopkins Kimmel Cancer Center, and colleagues have found using high doses of a chemotherapy drug for four days is more effective than lower doses over long periods of time. <Click here to read full article.> With positive results from high dose treatments of the anti-cancer drug cyclophosphamide, researchers at Johns Hopkins' Lupus Center and Kimmel Cancer Center have brought new hope to patients suffering from moderate to severe forms of lupus. <Click here to read full article.> The use of two drugs appears to combat the cause of the disease. The first is the use of the drug Rituximab, a drug normally used to treat lymphomas. The second is a treatment involving BlyS, or B Lymphocyte Stimulator. <Click here to read full article.> DHEA for Lupus: A study finds the drug prasterone, the pharmaceutical form of the steroid hormone DHEA, reduces the disease flare-ups associated with lupus and did not have negative side effects. <Click here to read full article.> CellCept for Lupus: Between 50 percent and 75 percent of all lupus patients have kidney dysfunction at some point in their lives. Rheumatologist Ellen Ginzler, M.D., M.P.H., of State University of New York Downstate Medical Center, is using a drug called CellCept to help these patients. <Click here to read full article.> Other research also shows CellCept may be an effective treatment for patients with the form of lupus that does not affect the kidneys. <Click here to read full article.> Sleep Aid for Lupus: Now, there is a new use for an old sleep aid, thalidomide, that eliminates the embarrassment of face lesions. <Click here to read full article.> Another study also shows thalidomide to be effective in clearing up a skin condition that affects many lupus patients. <Click here to read full article.> Anti-Anxiety Drugs for Lupus: A study by researchers from the University of Michigan and the University of California at Berkeley reveals a "chemical cousin" of anti-anxiety drugs such as Valium and Xanax significantly reduces kidney inflammation in mice with a disease similar to lupus. <Click here to read full article.> Non-Drug Treatments Diet may Affect Lupus: Diet -- and especially, vitamin C -- may play a role in minimizing the effects of lupus, say Japanese researchers. <Click here to read full article.> Lighting up Lupus: One rheumatologist is using ultraviolet A-1 light therapy to treat the disease with visible proof that it’s working. <Click here to read full article.> Group Therapy Benefits Lupus Patients: Brief group therapy sessions can help women with lupus regain function in important areas of their lives. <Click here to read full article.> Alternative Doctor: Anne Nedrow, M.D., of Oregon Health & Science University in Portland, says she credits prayer as the reason for her lupus being relatively calm over the last several years. She promotes techniques of becoming more aware, using imagery, and using relaxation to help with a number of medical problems. <Click here to read full article.> Promising Therapy for Autoimmune Diseases: A promising therapy for HIV is also showing promise in cancer patients and may soon be used to help lupus. <Click here to read full article.> Related Articles of Interest New Detection: Researchers from the Fred Hutchinson Cancer Research Center in Seattle have developed a new test that may help identify cases of lupus that cannot be detected by the standard screening test. <Click here to read full article.> Predicting Future Disease: Analyzing the blood of healthy individuals may predict future autoimmune diseases, such as rheumatoid arthritis and lupus, say researchers from Oklahoma Medical Research Foundation in Oklahoma City. <Click here to read full article.> Fatigue and Disability in Lupus: British research supports a hypothesis that fatigue and disability in lupus are related at least in part to poor levels of aerobic fitness, and that aerobic exercise may be a potential therapy for the treatment of fatigue and physical disability in SLE. <Click here to read full article.> Lupus Patients at Risk for Atherosclerosis: People with lupus are more likely than their healthy peers to have calcification of the arteries, shows a study in this week’s The New England Journal of Medicine. <Click here to read full article.>
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Kstme
Member
08-14-2000
| Tuesday, February 22, 2005 - 7:50 am
Thanks so much, Herc!!!!
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