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Archive through June 27, 2004

The TVClubHouse: General Discussions ARCHIVES: 2004 Nov. - 2005 Jan.: Parenting Place {ARCHIVES}: My Child is Sick... (ARCHIVES): Archive through June 27, 2004 users admin

Author Message
Maris
Member

03-28-2002

Friday, June 18, 2004 - 4:24 pm   Edit Post Move Post Delete Post View Post    
I had ulcers as a teenager and they plagued me well into my 20s. I had my gall bladder out in my 20s because of gallstones and for some reason that took care of my ulcer problems. Havent had one since. Mylanta before bed is a huge help.

Danas15146
Member

03-31-2004

Friday, June 18, 2004 - 5:01 pm   Edit Post Move Post Delete Post View Post    
Thank all of you so much for your input. I'll keep you posted. Right now I am just working up my nerve to call this doctor on Monday.

Landi - I hope that your Holly gets well soon.

Texannie
Member

07-16-2001

Friday, June 18, 2004 - 5:11 pm   Edit Post Move Post Delete Post View Post    
My son was very sick last year. We had to wait for a specialist too. Well, the first time I met the guy was in the ER of the Children's hospital cause my son took a turn for the worse. Do NOT be afraid to call. Your mommy instincts are way better than any appointment taker!

Abby7
Member

07-17-2002

Friday, June 18, 2004 - 6:21 pm   Edit Post Move Post Delete Post View Post    
Dana, I can't give much more advice then is already here. However, hugs to you and your daughter. I hope her pain goes away soon.

Landi, I'm so sorry to read about Holly. Big hugs to both of you.

Carrie, there is a note to Scotty in your folder.

It is so hard when our loved ones are in pain. I hope your babies get their health back soon.

Landi
Member

07-29-2002

Sunday, June 20, 2004 - 8:42 pm   Edit Post Move Post Delete Post View Post    
thank you everyone for your kind words. holly is dealing with this every day, and learning different things to eat that won't bother her stomach

Carrie92
Member

09-15-2003

Sunday, June 20, 2004 - 9:29 pm   Edit Post Move Post Delete Post View Post    
Thanks everyone for the messages for Scotty - he loved them! He got that cute little shy/embarrassed look on his face... but he really did think it was neat that so many people sent him messages! He is feeling better, and no new pox have shown up since yesterday, so we're just waiting for them to dry out and he should be good as new.

Landi, sorry to hear about Holly, what a tough thing to have to deal with as a teenager!

Dana, hope you find the right help for your little one.

 to both of you!

Goddessatlaw
Member

07-19-2002

Thursday, June 24, 2004 - 4:41 am   Edit Post Move Post Delete Post View Post    
I'm posting here about my 7-year-old niece, Ally. She has just been diagnosed with pediatric morphea, and I'm reading frantically to try and figure out what this is and what this means. It's somehow related to scleroderma and is untreatable? Does anyone know anything about this disease? I'd appreciate any information or hearing of anyone's experience with this disease. My brother is in a panic and I'd like to be able to calm him down with some positive information. Thanks in advance.

Kristylovesbb
Member

09-14-2000

Thursday, June 24, 2004 - 5:37 am   Edit Post Move Post Delete Post View Post    
Gal, I found this article for you.

Localized Scleroderma Is No Cause for Alarm - Brief Article - Statistical Data Included
Family Pratice News, March 15, 2000 by Betsy Bates


BRECKENRIDGE, COLO. -- Thickened patches of morphea that herald pediatric scleroderma usually represent a localized form of the disease, rather than the severe systemic form seen in adults.

Treatment and physical therapy may be warranted, but localized scleroderma is no cause for alarm, said Dr. Patricia A. Treadwell, professor of dermatology and pediatrics at Indiana University in Indianapolis.

"I try to reassure parents. In this age of the Internet, a lot of parents have already looked up scleroderma. They come into the office with stacks of paper and tell me how worried they are about the internal involvement.

"It's extremely rare to see generalized scleroderma or systemic sclerosis in children," Dr. Treadwell said at a meeting on practical pediatrics sponsored by the American Academy of Pediatrics.

"Localized scleroderma is the type that is seen in children," and it tends to be localized to the skin, she said.

Localized scleroderma in children has a significant association with trauma. Its presentation is variable.

Some children will have classic indurated areas of involved skin. "If you felt this, it would feel thicker than the surrounding skin," she said, displaying a slide of a child's skin that had an evident region of morphea.

But she noted that other affected children have no evident induration.

Prominent follicles, scaling, and hypopigmentation or hyperpigmentation may also be present. The dyspigmentation may be widespread.

"Sometimes when children have generalized morphea, it is difficult to tell which is the normal skin and which is the abnormal skin. My approach is to ask the parents," she said.

Linear scleroderma, called "en coup de sabre" since it can resemble a dueling scar, or "mark of the sword," can also occur in children. This form of scleroderma is very distinctive in appearance and more resistant to treatment than localized scleroderma.

Dr. Treadwell showed a slide of such a case, in which a thickened scar extended in a vertical line across the forehead and into the scalp, causing permanent hair loss. After treatment "there was some decrease in inflammation and less induration, but in fact, there was still a significant scar."

"Linear scleroderma patients do not seem to be helped by much of anything I've tried over the years," she admitted.

Treatments for localized scleroderma include corticosteroids, penicillamine, methotrexate, calcipotriene, hydroxychloroquine, and sulfasalazine. Plasmapheresis and psoralen with ultraviolet A have been reported as potentially helpful.

Scleroderma may cause permanent scarring and contractures and may impair growth, so Dr. Treadwell advises referring patients early for physical therapy, particularly if the scleroderma crosses a joint.

Antibody testing of children with dermatologic and/or musculoskeletal manifestations of scleroderma is unlikely to provide any useful new information. "Early in my career I did lots of ANA [antinuclear antibody] testing. Some of them would be positive and some were negative. I never exactly knew what to do with that," she said.

Studies have shown that antibody test results are not correlated with systemic involvement in the absence of other symp-[INCOMPLETE]

COPYRIGHT 2000 International Medical News Group
COPYRIGHT 2001 Gale Group


Goddessatlaw
Member

07-19-2002

Thursday, June 24, 2004 - 6:17 am   Edit Post Move Post Delete Post View Post    
Thanks so much, Kristy - that's one of the most upbeat articles I've read so far. I'll pass it on to my bro. Ally already has patches on her legs and arms and is experiencing cramping in her legs, so I'm not entirely hopeful that she'll come out on the light end of the disease. But, on the upside, she's a big, strong, otherwise very healthy kid with a completely sunny disposition and alot of brains. She's built to handle whatever comes her way. I've already put my boot up my brother's ass about keeping a positive outlook, because Ally will immediately read and feed off his reactions. Boy, I never saw this coming.

Kristylovesbb
Member

09-14-2000

Thursday, June 24, 2004 - 6:57 am   Edit Post Move Post Delete Post View Post    
Goddess, I will sure do some heavy duty praying that she has the light form of this disease.

Goddessatlaw
Member

07-19-2002

Thursday, June 24, 2004 - 7:04 am   Edit Post Move Post Delete Post View Post    
Thanks Kristy - we'll sure take all the prayers we can get right now.

Grannyg
Member

05-28-2002

Thursday, June 24, 2004 - 8:14 am   Edit Post Move Post Delete Post View Post    
Gal, so sorry to hear about your neice. I will certainly keep all of you in my prayers.

Mware
Member

09-14-2001

Thursday, June 24, 2004 - 10:00 am   Edit Post Move Post Delete Post View Post    
Add mine to the list of prayers for Ally, GAL. All the best to her, and to the family as they help her with this.

Goddessatlaw
Member

07-19-2002

Thursday, June 24, 2004 - 1:16 pm   Edit Post Move Post Delete Post View Post    
Thanks, Granny and Mware. She's going into St. Louis Children's Hospital on Monday (they sure didn't waste any time, PTL) so we should know more soon. Her parents are going to fill her in on the diagnosis this weekend. Here's hoping for the best on that - my brother seems to be calming down a bit after the initial shock of it all. I mean, you go in to have some dry skin patches looked at and come out a few appointments later with a potentially life-altering diagnosis for your child. Pretty heavy stuff.

Jmm
Member

08-16-2002

Thursday, June 24, 2004 - 2:26 pm   Edit Post Move Post Delete Post View Post    
GAL, Here are a couple of sites I found that you might want to look at.

Chat Line

Schleroderma Foundation

Hopefully, one of these will give you more complete information.

Reader234
Member

08-13-2000

Thursday, June 24, 2004 - 5:05 pm   Edit Post Move Post Delete Post View Post    
Adding prayers for Ally, will put her on my prayer list exp for Monday - {{{HUGS}}}

Lumbele
Member

07-12-2002

Thursday, June 24, 2004 - 6:35 pm   Edit Post Move Post Delete Post View Post    
Good vibes going out to Ally, GAL as well as to you and your family. Keep us posted.

Herckleperckle
Member

11-20-2003

Friday, June 25, 2004 - 12:39 am   Edit Post Move Post Delete Post View Post    
{{{Ally, her parents, GAL}}}

Danas15146
Member

03-31-2004

Friday, June 25, 2004 - 5:46 am   Edit Post Move Post Delete Post View Post    
Add my prayers for Ally to. I hope that everything turns out well.

I was able to get Samantha into the rheumatologist yesterday (the louder you yell - the more they are willing to help you out ...) He does not think that she has arthritis and is pretty sure that it is not lupus. They took 12 more vials of blood yesterday and are checking her thyroid, kidney function and all kinds of other junk. They also gave me a script for napersen that should help more than the motrin has been.

Mygetaway
Member

08-23-2000

Friday, June 25, 2004 - 8:37 am   Edit Post Move Post Delete Post View Post    
I meant to say something before Gal.. {{Good vibes to Ally and your family..}}

Teachmichigan
Member

07-22-2001

Saturday, June 26, 2004 - 5:34 pm   Edit Post Move Post Delete Post View Post    
I have a 9 yr. old going in for a triple whammy Tuesday and wondered if there were any words of wisdom to help the little guy suffer as little as possible. He's having tubes put in his ears, tonsils out and adenoids out. He's had tubes before (about 3 years ago), but with the "extras" added this time, I'm sure the recuperation time will be a bit longer. We keep reminding him that crying will only make his throat hurt worse, so we're hoping he's old enough to keep that in mind after surgery.

We've stocked up on popsickles, jello and other soft foods (potatoes, macaroni, noodles, etc.). Anything else we should plan for?

Lumbele
Member

07-12-2002

Saturday, June 26, 2004 - 7:02 pm   Edit Post Move Post Delete Post View Post    
Icecream, loads and loads of icecream!

Danas15146
Member

03-31-2004

Saturday, June 26, 2004 - 7:12 pm   Edit Post Move Post Delete Post View Post    
Teach - Samantha actually just had the triple whammy last June. She did very well - the only time that she felt pretty sick was in the recovery room and that's expected with any surgery. Didn't really want much food -- just jello and cut up popsicles. Our ENT told us to go easy on dairy products (ice cream, pudding, milk) because it can cause mucus production and coughing hurts. Good luck to you and your son. Load up on lots of videos that he likes so he'll lay down and rest!

Lumbele
Member

07-12-2002

Saturday, June 26, 2004 - 7:14 pm   Edit Post Move Post Delete Post View Post    
Oops, better scratch the icecream then.

Danas15146
Member

03-31-2004

Sunday, June 27, 2004 - 1:36 pm   Edit Post Move Post Delete Post View Post    
I know - we spent weeks telling Samantha she could have all the ice cream she wanted and then the ENT shot that to heck!